Finally a doctor that understands - Pernicious Anaemi...

Pernicious Anaemia Society

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Finally a doctor that understands

Rosa1948 profile image
10 Replies

I have a wonderful doctor. Even though blood test levels were high due to my taking b12 sublingual (over the counter), I was extremely tired and weak. She started my on b12 shots, starting to feel better but still not quite myself. First 2 injections are 2 weeks apart and than monthly along with my sublingual b12 . She told me that she will not be testing my b12 levels instead she will judge by how I feel for the frequency of shots.

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Rosa1948 profile image
Rosa1948
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10 Replies
Gambit62 profile image
Gambit62Administrator

Glad you have found a doctor who understands. Hope you continue to improve

jalbey profile image
jalbey in reply to Gambit62

That's fantastic news. It seems like the message is beginning to trickle through to doctors very slowly. The PAS are doing a great job and we as patients need to pass on information to our GPs that we get through this forum. Thanks to those who keep posting the information here.

LadyNZ profile image
LadyNZ

I am so pleased for you!

Sleepybunny profile image
Sleepybunny

"I have a wonderful doctor"

Great to hear someone say that. Makes me a bit wistful though.

Are you in UK Rosa? I've become convinced that the chances of finding a B12 knowledgeable GP in the UK are virtually non-existent.

Rosa1948 profile image
Rosa1948 in reply to Sleepybunny

No I live in USA.

Rosa1948 profile image
Rosa1948 in reply to Sleepybunny

USA

Wales1 profile image
Wales1

What?!!! Lucky you!! Where's this doctor and how can I make an appointment to see him/ her?!!

Rosa1948 profile image
Rosa1948 in reply to Wales1

U.S

Rosa1948 profile image
Rosa1948

My dr listened to how badly I was feeling and I explained how others in a pernicious anemia support group on Facebook had taught me so much about blood test results and getting enough b12 not just into our blood but into our cells.

o19f17f15 profile image
o19f17f15

i live in Anglesey North Wales and also have an excellent GP.( one of the younger generation of women GPS.

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