My wife is newly diagnosed with beche... - Partners for Behc...

Partners for Behcet's

523 members43 posts

My wife is newly diagnosed with bechets and struggling with medication side effects and doctors who know nothing about how to treat

mballou6 profile image
1 Reply

We just don’t know how to find a real path to treat this disease and maintain quality of life while on these medications that strip quality of life. It can’t be perfect but I just want my wife to feel like she can advocate for herself and feel as good as she can. The doctors in the US just say it’s a rare disease and we just don’t know the best course of action to treat and just prescribe more medication that seems to not work or do more harm. Please help! Thanks

Written by
mballou6 profile image
mballou6
To view profiles and participate in discussions please or .
1 Reply
Lettie999 profile image
Lettie999

if you are on Facebook look up the behcets support groups on there, the US members will point you in the direction of the best specialists and medications.

Standard treatments we all benefit from are

1. Predislone (steroid)

2. Methotrexate

3. Humira

Sadly you have to start at the lower end of the treatments and work you way to drugs like humira once the cheaper drugs have been tried.

Wishing you both lots of luck xxx