Daughter aged 11: My daughter who's 1... - Partners for Behc...

Partners for Behcet's

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Daughter aged 11

shine78 profile image
5 Replies

My daughter who's 11 as behcets I'm trying to get her to meet others with it her age and also someone I can chat to as well I'm in Barnsley South Yorkshire/uk it would be nice to meet others close to us thanks x

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shine78 profile image
shine78
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5 Replies
LesleySG profile image
LesleySG

Hi

My daughter who is 12 was diagnosed with Behçets in July 2014 by Great Ormond Street Hospital. She is seen by both Great Ormond Street as well as the Behçet's Centre of Excellence in London. Although we are not close to you as we live in Winchester, Hampshire, it would be interesting to have a chat with you. If you are interested, perhaps you could contact me via private message?

Zebra profile image
ZebraPartners for Behcet's

There's a Facebook group for parents of youngsters with Behcet's. There are others there near Sheffield and York. Let me know if you're not already in it and want connecting.

shine78 profile image
shine78 in reply to Zebra

Hi yes I would like connecting to the group iv tried to find it but no luck thanks

s-pando7 profile image
s-pando7

Hey! I know this post was a while ago, but I got diagnosed with Bechet's around your daughters age, I am now 23 and am in school to become a Nurse and then go onto become a Nurse Practitioner and I would love to chat with your daughter even just a little and help her out, it might help since I am younger and closer in age! let me know if you'd want to private message :)

shine78 profile image
shine78 in reply to s-pando7

hi sorry about the late reply but been busy with my daughter it might be good for her to chat to someone other than me so private message sounds good to me