Parkinson's Movement

experiencing invisible tremors

I have for the most part invisible tremors,it took longer to get a dx, but the tremors are every bit as real, and are starting to move out. I take requip three times a day, azilect once a day and amantadine twice a day. It helps a lot but the tremors are strong in the morning, anyone else have much experience with invisible tremors?

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18 replies

    ivyanne
    ivyanne

    I have resting tremors. They only show up when Im not active.. sitting etc. Requip brings out compulsive behavior in me ( not the good kind..lol) and Amantidine causes nausea but when my Sinemet is on... no tremors...

    fishinggirl
    fishinggirl

    Are you talking about tremors inside your body? I get those and thought something was going on with my heart or sugar levels. Amantidine is great for that. I only notice them when I'm not busy but they are there is I haven't had my meds.

    Court
    Court

    These are the worst kind of tremors to get as they are real but do not show themselves. I told the Consultant and she said they are quite common. I also suffer from tremors that are visible and they both feel the same to me. Must mention Amantidine on my next visit.

    jillannf6
    jillannf6

    hi sue
    hyes but i tried amanatadine for thne fallign
    and got the dos eup so tha ti was takign it twice a day
    but you hagv eto be careful when the second dose si taken as it can cause hallucinations
    not nice
    i stopped tkaiagn it as i twa snto helpig the \psp
    lol Jill
    :-)

    Court
    Court

    Hi Jill
    Hope that you are keeping ok. Maybe I will keep the same meds at least until after my holidays. I am not too bad, still having off times and pains from hips downwards, but we keep going, don't we?
    Hope the work on your new apartment goes well. It will be lovely when finished, I am sure. Any opinion on P.D. Junction site?
    Lol Sue
    :-)

    Jocee
    Jocee

    I've had pd for 25 yrs and I don't know what invisible tremors are.... please explain.....thanks

    olpilot
    olpilot

    you feel the tremors in side of you, mine are in my shoulder mostly, and when I lay down to rest. It feels as though if you were looking at, or feeling them they would be there, but there not. I feel them, but there is no external evidence. Sometimes they lasr for hours, makes my shoulder of arm very tired, like I'd be weight lifting. My contol of the arm and shoulder is affected, by being much less controllable, seems ti miss a lot when I reach for things. I've read about them, about 30% of PWP don't have tremors, and I'm wondering if this kind of replaces them for those folks. I have also read PD advances in people with out tremors.

    tmhiggs
    tmhiggs

    yep, PD progresses quickly in patients w/out trermors and is more severe i am one of the unfortunate ones bec i have no tremors.. i was diag at 40 and now 43. had to quit job, cant drive take meds every 2 hrs and don't always work and when they dont work i feel almost paralyzed, cant hardly move or walk and some i need assistance like getting dressed, things of that nature. thank god for a wonderful husband. this really sucks big time. it is like that for me every day up n down.

    PatV
    PatV

    I don't have tremor but painful dystonia foot dragging & now after 6 yrs on sinemet dyskinesias. Fun.

    shetawk
    shetawk

    Have you tried blue glasses?



    olpilot
    olpilot

    ????? only if it were so easy..................

    olpilot
    olpilot

    I have dystonia in my legs and feet, if I don't have shoes on it feels like I'm walking on the side of my feet, cramping too. Amantadine does seem to help both invisible tremors and dystonia. With the requip and azilect things aren't too bad most of the time, but it does seem to be getting a little worse.

    shetawk
    shetawk

    I felt for a while that there was a butter churner running down the center of my body but it didn't show on the outside. Ativan and toprol help calm things.

    olpilot
    olpilot

    Thank you all for your responses, it helps to know I'm not imagining this, hard to convince anyone else when to most "seeing is believing".

    olpilot
    olpilot

    Internal tremor in patients with Parkinson's disease.

    Shulman LM, Singer C, Bean JA, Weiner WJ.


    Source

    Department of Neurology, University of Miami School of Medicine, Florida 33136, USA.


    Abstract

    Although sensory symptoms were not originally described in Parkinson's disease (PD), in recent years it has been increasingly recognized that painful sensations and paresthesias occur in approximately 40% of patients. It has been our observation that PD patients often describe a sensation of internal tremor, a feeling of tremor inside the chest, abdomen, arms, or legs that cannot be seen. We investigated the prevalence and characteristics of internal tremor by administering a questionnaire to 100 consecutive patients with PD and 50 age-matched controls seen in our movement disorders center. A sensation of internal tremor was present in 44% of this sample of PD patients and in 6% of the control population (p < 0.0001). The presence of internal tremor was unrelated to Unified Parkinson's Disease Rating Scale score, Hoehn and Yahr stage, duration of disease, or the presence of observable tremor. The frequency of other sensory symptoms (aching, tingling, burning) was higher in the PD patients with internal tremor (73%) than in those without (45%; p = 0.005). Internal tremor is associated with anxiety in 64% of patients (p < 0.0001). It was described as uncomfortable and was unrelieved by antiparkinsonian medication in three quarters of patients. A sensation of internal tremor is commonly reported by PD patients and should be recognized as a useful diagnostic factor in PD

    Dated 1996, why is it so hard to get drs to listen?

    turtledovemom
    turtledovemom

    Is this like the feeling that your phone is on vibrate, but you're not wearing your phone (best way I can describe this)? I have those almost constantly. Thank God, the visible tremors in my back and legs were actually witnessed, once by an e.r. doc and frequently by my husband.

    olpilot
    olpilot

    some what like thaat, with mine it is as if my arms and hands really are moving, I feel it but when I lok they are still, but I still feel the movement. I have the same trouble trying to do anything with my hands, but I just look bungling and inept, careless even, but no shaking. The pain and fatigue is very real too. Amantadine does help with it just like in visible tremors.

    jeaniegal
    jeaniegal

    Propranolol helps my internal tremors.

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