Shakes getting worse?: Hi Hubby is taking... - Cure Parkinson's

Cure Parkinson's

25,478 members26,791 posts

Shakes getting worse?

Visionvalue profile image
7 Replies

Hi Hubby is taking 10/100 Cocareldopa 5 times a day but his shakes are getting worse does anyone else taking this med have the same experience and if so what did you do to relieve the shakes if possible. Its getting quite distressing for him and keeping him awake at night

Sue

Written by
Visionvalue profile image
Visionvalue
To view profiles and participate in discussions please or .
7 Replies

Do you think he needs a drug re-evaluation It just sounds such a lot of the drug n a daily basis

could over dose be making him feel worse?

Just a thought.

froggatt55 profile image
froggatt55

I agree with oldtyke your hubby should have a drugs review

We are all different but I took 25/100 Sinemet but it didn't stop the shakes until I added Azilect

oldskool49 profile image
oldskool49

My new program is Carbid 25/100 plus Requip 2mg at least 6 times a day. All this is doing is leveling the shaky, right leg movement field. And this is the 3rd change up this year. And I go back again to see Doc tomorrow.

Dennis profile image
Dennis

I shake and have tremors at night as well and pain on inside of both legs. Told the nueo

about it and she gave me medication to desolve under my tongue. Usually it works but I

can only take tow a day., ~~~~Dennis

Hikoi profile image
Hikoi

Hi Visionvalue

I know what your husband is experiencing, my shakes keep getting worse too.

Your husband is on 500mg L Dopa /day which isn't excessive at all. Its hard to know whats really happening for him but I notice my shakes appear if I am undermedicated or due for another dose. This condition progresses and we often just have to keep adjusting meds. Ie increase or add to them to cope with the changes. You may find a diary handy to see if there is a pattern. Does he shake constantly or only at certain times, just after taking meds or when his next dose is due etc? It would help decide what is happening and what to do next.

Visionvalue profile image
Visionvalue

Hi Hikoi

It's constant. It stops only when he is in a deep sleep but after an hour or two comes back and wakes him up. He takes his last tablet at 12 midnight others in four hourly intervals.

He has trouble holding a cup of tea even though we got one with a lid on and am looking to get a fork and knife combined as I cut his meat up for him so its easier at mealtimes for him. Every day there seems to be something different with PD doesn't there but we always find a way round these things :)

Hikoi profile image
Hikoi

Oh dear, i am sorry to read that. Tremor is one of the most difficult things to treat.

You may also like...

Tremors getting worse.

My levo meds don't work like they use to. Does caffien energy drinks help or hurt my situation. They

PD symptoms much worse after getting Covid vaccine

Sunday morning, PD symptoms were much worse ... bad tremors, unable to get up from a seated...

Whole-body shaking

understand if the shaking I experience is a PD symptom or not. Could PwP experience tremor if...

Vitamin B makes dyskinesia worse?

my dyskinesia is much worse. Does anyone have similar experience? Thanks, Laura

Is it just me, tremors worse after strenuous work

tremors get quite a bit worse. I got really cold the other day and had a similar experience. Anyone...