A week ago Kat00 asked for a show -of-interest in developing a program which would create a list of persons with Parkinson's Disease. The response was encouraging. The following is a synopsis of possible program features as discussed with Kat and from responses of the group:
Participation in the program would be voluntary. (would not involve gov't. or medical records).*
Participation could be self-initiiated by PWP with provision for monitoring and for deletion of erroneous entry.
Entries could be computer sorted alphabetically by last name.
The program could create two lists, The first might identify persons on the planet Earth, living with Parkinson's Disease. Information requested might include:
Last name___First name___Country/(State/,Provence)___Year of Diagnosis___
The second list would pay tribute to persons who died with Parkinson's, either recently or in the past. An entry could read: IN MEMORIUM: Last name___First name___------"Free text*---Died with Parkinson's__Date______-
The "free text" could be used for brief comment, (loving husband/wife, or Parkinson's Movement nickname.)
*In her comment, Hikoi informed us that Sweden already has a national register of PWP
Kat pointed out that in the US the program would haveto be radified by all 50 states individually, an impossible task.
Many of you have indicated a wilingness to help. Anyone with computer programing skills?