strange but true: hello all - it us very... - Cure Parkinson's

Cure Parkinson's

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strange but true

shasha profile image
21 Replies

hello all - it us very odd but i am now back on modoar and it seems to be having some effect- for thise who dont know me -i was on tons of drugs for PD and then told i had PSP IN NOVEMBER

SO WAS OFF ALL MEDS UNTIL I WENT BACK TO SEE MY NEURO LAST WEEK - I TOLD HIM MY NECK WAS HURTING AND HE SAID TAKE YOUR MODOPAR AGAIN - WELL I HAVE AND NOT ONLY DOES IT HELP WITH THE NECK PAIN - I THINK IT IS HELPING WITH THE WALKING AGAIN !!!!

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shasha
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21 Replies
Carrigan profile image
Carrigan

Great news stick with and good luck x

shasha profile image
shasha in reply to Carrigan

THANKS SO MUCH FOR YOUR MESSAGE

LOVE SHA XXX

jillannf6 profile image
jillannf6

hi sha

good news

keep it up if you can

lol JIll

:-)

shasha profile image
shasha in reply to jillannf6

will do jill

xxxx

honeycombe3 profile image
honeycombe3

Sharon,

You are star! I'm thrilled to hear this news - you deserve all the good things life has to offer.

Love & hugs,

Angela

shasha profile image
shasha in reply to honeycombe3

this is the 3rd time i have tried to reply but it keeps disappearing !! thanks for your kind words

love sha

Court profile image
Court

Hi Sharon

So pleased for you. I was wondering how you were getting on. Please keep us posted. Good luck/ You deserve it.

Sue xx

shasha profile image
shasha in reply to Court

thanks sue - will do

That is nice news to hear wishing you all the best

shasha profile image
shasha in reply to

thanks oldtyke

camper profile image
camper

Sharon

That's really good news. How much madopar are you taking?

Viv

shasha profile image
shasha in reply to camper

i am taking about 2 per every time i have neck pain - which is twice a day maybe 3 times if i get it again

shasha profile image
shasha in reply to camper

in france it is MODOPAR AND NOT MADOPAR - STRANGE EH ?

tlongmire profile image
tlongmire

That's wonderful Sha. :-). :-) What area of the neck hurts? Mine just kills me in the back at the base. :-(

I'm so happy to hear positive news on your walking. :-) How is Fred coming along?

Hugs and love, Terri

shasha profile image
shasha in reply to tlongmire

hi terri - yes it sounds the same for me too - the neck i mean - pain at the back and down low -

fred is doing very well thank you though he still has pain and stiffness from time to time

i am sorry to say the walking is stillnot good but i feel it is a little better

love to you and tommy xxxx

WayneP profile image
WayneP

Ya just got to laugh Shasha. That is why they call medicine a practice. Glad you are walking better.

fishinggirl profile image
fishinggirl

Nice to hear good news!

janab profile image
janab

do they have this medication in the states ?I also have a stiff neck? what is it called?

shasha profile image
shasha in reply to janab

hello i take modopar or madopar - but dont kniow if it is available in the states

Pete-1 profile image
Pete-1 in reply to shasha

Madopar contains Levodopa and Benserazide.

Benserazide is not (last time I heard) licensed for use n the US.

This chemical does the same job as Carbidopa in Sinemet so functionally Madopar and Sinemet are the same thing

shasha profile image
shasha in reply to Pete-1

thanks pete - i had forgotten all about this comment .....

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