I am one of those who took 7 yrs. to be diagnosed. By the time I was diagnosed, I was in stage II. I am an RN and was let go from one job for what I
now know to be cognitive changes that occur with PD. I also had a constant tremor, the job required me to draw blood, and they continuied to MAKE me draw the blood! I can only imagine the fear those patients had of me with me hands shaking out of control.
It was about six months later that I was finally diagnosed, first by myself. This gives you an idea of how much the medical professionals know about PD!
I am a single mom and only have child support at this time. I kept looking and finally found a job I thought I could do with the PD. It was a desk job, but looking back was a recipe for disaster. It was an intake center, the room was maybe 10X10 with 4 desk back to back, numerous computer screens around the room that we had to monitor and 2 screens on each desk that was also for input and monitoring the various hospitals we covered and 2 phones on the desk that rang without ceasing, oh, and the lights were turned out in the room.
Obviously, I was only able to keep up for a couple of weeks before I was right back to where I started prior to medication. My hands were shaking, I had virtigo, crashed on my days off and had another "episode" as I call them where I had severe tremors and could not walk without falling,. My doc prescribed additional meds, but it did not work. I was let go after 6 wks.
I was told by a Disability Attorney that I would probably be denied 2-3 times, when I got the third denial to come back and it would be taken to Disability Court which is already booked a year in advance.
I do not know how I need to respond on the appeal, does anyone have pointers? The problem is, when I see someone who is an advocate, they look at me and think that I am fine. As my doctor told me, we all start out with a certain number of brain cells, that I "obviously" had more than the average so can still appear to be "normal" function. Though I have times when I do things I have no recollection of or cannot remember how to do something I have done thousands of times! Then of course I also have the tremors in all extremities and the periods of times when I cannot walk without falling and cannot even hold a glass or a utensil to feed myself. Lest it scare you, those "episodes" do not occur so frequently with meds and are usually when I have overdone it physically or am under a lot of stress.
The basis of my question, what have you experienced when filing for disability and what "new" information did you use in your appeal. I have the documents from each of my prior employers as to why they let me go, thought that would be helpful. Do I need to have friends and family write what they have seen during those "episodes" when I cannot function at all?