I'm 49 years old and I was diagnosed in 2006, via med-challenge, after having spent 2 years in doctor's appointments and having testing done. I lost my job and my access to health insurance and ended up going to the local, public low/no cost health clinic for care. The doctor there picked up on my circumstances almost immediately and asked me to try Sinemet. It was like a miracle! The symptoms I'd been trying to understand and manage nearly disappeared. The only problem was that the treatment came with its own set of problems: full body hives, paresthesia, sudden vertigo and extreme nausea.
I spent the next 3 years working with my doctor to find the right medication combination for me. I've worked my way through Symmetrel (Amantadine) and Cogentin (Benztropin Mesylate) and I used the Neupro patch successfully up until it was recalled in the US (2008). Right now I use a combination of long acting Requip (Ropinirol) and a transdermal Emsam (Selegeline) patch. Both have their drawbacks (vertigo, dehydration, localized paresthesia) but so far I feel they manage my symptoms well without completely destroying my quality of life.
I'm curious about the treatment choices of others who are also allergic to Sinemet. I am concerned that I will run out of medication choices in a few years time.