." It's okay we love you" telling people ... - Cure Parkinson's

Cure Parkinson's

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." It's okay we love you" telling people that you have Parkinson's. and different responses.

Precious44 profile image
16 Replies

Not many of my friends know that I have PD, I get tired of explaining how it effects me and that I can't write. And the floor feels like it moving all the time under my feet and I see and feel things and there's nothing there. Well today I went to play Bunco with the women that

are there every month. You have to keep score, so you have to write on a little pad. You have a partner, so I asked my partner at each game, if they would do the scoring, they were all very gracious and did the scoring. Then at the very last game, I had a new partner, I asked her as I has asked the other if she could doing the scoring and told her I couldn't write. She replied "You can write, you just don"t want to keep score." I said "No I have parkinson's". I she was so embarrassed and kept saying "she was sorry". I think the whole group knows now, I started crying. I really wasn't ready to let them all know. Because then every one is going to come and say "I'm so sorry", But they surprised me with their compassion. One woman hugged me and said "it's okay we love you." then she told me" she was a nurse and had taken care of a women who had PD and if I needed any thing to call her. She said its an terrible disease and to promise her that I will cal her If I needed anything". The one that had stared the whole thing gave me her number also. I hate this, I don't want to see piety., that's the reason I didn't want to tell them. I have 2 friends who know,1 usually goes to appointments with me, so she can fill out the paperwork.There are a lot of very wonderful people out there. Because this is an older 65-79 they knew what Parkinson's was.

Hugs,Hugs,Hugs

Precious44

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Precious44 profile image
Precious44
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16 Replies
Annie81963 profile image
Annie81963

Hugs hugs and more hugs to you Precious44!!

Precious44 profile image
Precious44 in reply to Annie81963

Annie81963, Thank you for the Hugs, I never can get too many. I hope you have someone who hugs you. if not

Hugs, Hugs, Hugs ( )

Precious44

When you're feeling good in yourself that day, you need a hug to say well done.

When you're not feeling to good you need hug to say it's OK.

When you're feeling really bad you need a hug to say we're here for you.

When you're feeling alone and isolated you don't need a hug to say anything.

You just need a hug.

Precious44 profile image
Precious44 in reply to anthonyjohnrobinson

We human beings need to be touched in a non threatening way. and Hugs are the Best. I never can get enough. Thank you for your Hug, here is one for you ( )

Hugs,Hugs,Hugs

Precious44

JAYNIE profile image
JAYNIE

NO WONDER I LOVE HUGS !!!! GIVING AND RECEIVING ........

I WISH I COULD GET AT LEAST ONE HUG A DAY. TRYING TO TEACH MY DOG IZZY TO HUG.......<GRIN>

Precious44 profile image
Precious44 in reply to JAYNIE

It is Saturday night and getting late. Here is a HUG for you () Good night.

Precious44

Sending cyber hugs ((((((()))))))))) xx

Precious44 profile image
Precious44 in reply to

Thank you so much, I really need hugs today. Today is my husband Birthday, but he is an angel in heaven. I miss him terribly. He was a wonderful man, and we only had 3 1/2 years of joy,unconditional love, fun,dancing, garage selling and and antiquing every week end. I had a surprise Birthday party planed for him he would have been 60, but he died 8 days before his birthday. He surprised us.

Sorry for going on.

Hugs, Hugs, Hugs

Precious44

jillannf6 profile image
jillannf6 in reply to Precious44

HI PRECIOUS

I am so sorry re your husband

HUGS HUGS AND HUGS

TO you

my partnere and i hav e knwown each othe4 for 4and half yrs and have just moved in otgether in our wonerufl grouon floor apartment

but we need ot have fun a syou say

an this b..y psp does nto make it easy

life is mean tot be lived i know

today si anothe rday

lol Jiill

:-)

PatV profile image
PatV

People who love you for you don't pity you. Maybe only people who don't really know you as a person, and who cares what they think. That's how I feel anyhoo. I hadn't thought about people pitying me. That's because I live in New York City :D

PatV profile image
PatV in reply to PatV

I did keep it from my yoga instructor while I was recuperating from torn meniscus and didn't even take cane to class. I didn't want him to go easy on me.

Precious44 profile image
Precious44 in reply to PatV

PatV I have been told that it is false pride....If so yes I have it. Because I don't let anyone know if I am in pain, or my tremors are bad between medication.

Hugs, Hugs, Hugs

Precious44

jillannf6 profile image
jillannf6

hi hug s r so ijm[portant :-)

and i wish my c atliked beign hugged

but he is too vain i think

lol Jill

:-)

Precious44 profile image
Precious44 in reply to jillannf6

I know it's not exactly the same as in person by here is a HUG for you ( )

Getting late. Good Night

Precious44

Maja54 profile image
Maja54

Hi Precious I just join this group not long ago and I am happy I did.People here talk to each other about anything . nothing is unimportant and everything is on agenda. Taking about hugs , hugs are great, important to human and animal world. Is sometimes the only way to communicate . I too like hug from time to time. But the most precious gift was given to me by my autistic grandson , who for long time , did not know haw to and what was the purpose of it . He did't like to be touched softly.I like you to know , he is highly intelligent boy , his GPA is consistent 3.5 sense he started school now he is graduating from high school . Want's to build rockets . Boy I can go on, someone stop me. Well one day we were playing and he wanted to play something else , so I sad ,OK I do that with you. He squeal in delight and trow him self in my arms he sad, I LOVE YOU GRANDMA, no mater what I throw at you you are always ready and say yes. Thad day he started to. understand , what the hugs were and y people like them and why they are given . I LOVE HUGS.

Maja54 profile image
Maja54

Hope you like my take on hugs.

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