Royal Square Neurological Hospital in London

[Yogibear]

Hi everyone,

I have been referred to the above hospital due to "wearing off" causing dystonia problems. Has anyone been for treatment? I am hoping for miracles (smiles).

[alllowercase]

Is that part of the UCLH in Queen's Square? (University College London Hospitals) If so, that is where I go every 6 months. To check, is your consultant Mr Jarman?

I find them excellent.

Adrian

[Yogibear]

Thank you. My Consultant will hopefully be Professor Lees.

[Hikoi in reply to Yogibear]

He is a world leader. Probably the best known neuro in the uk.

[Hikoi]

Yogibear.

I believe it is a worldclass unit with some internationally recognised leading staff. Also a very good neurosurgery unit. Perhaps the best unit in the country but there are many good neuro units. Hope it goes well for you.

[Yogibear]

thank you everyone. Adrian yes it is UCLH and your Dr Jarman is listed with Prof. Lees. I am hoping they will come up with something good.

[Yogibear]

Do you reckon I should let my meds wear off for my consultation so they will see firsthand what I am talking about. I often feel if have a consultation fully medicated it's hard to be heard. Any tips?

[srarndt]

I would suggest trying to communicate with the doctors b4 showing up non medicated...they might need you on your meds or they might need you off of them for a prescribed length of time, etc.

Steve (Bisbee, AZ)

PS: DBS manages my dystonia symptoms very effectively

.

[Yogibear]

Srandt what does it feel like daily with DBS?