Hi, I,m Fitzy,just become a member.Male, ... - Cure Parkinson's

Cure Parkinson's

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Hi, I,m Fitzy,just become a member.Male, 61years old and this is my first blog ever!!!!!! so please bear with me.

fitzy777 profile image
38 Replies

At the age of 49, diagnosed with PD..I was devastated ,Remember going.to the clinic,People in wheelchairs, with. zimmer frames shaking uncontrollably..This was my world now.

15 years later,due to medication, positive attitude and the support of family I Manage 80% normal life, .Still drive, have active .life style .Last November my wife and I spent the worst 3 weeks of our li ves due to over prescribed medicatiion........thats another blog.

just before i sign off. remember we all have a different and difficult journey.so stay positive, TOMORROW IS ANOTHER DAY , AND IT WILL BRING A CURE ONE DAY!!!!!!!!!!!!!1 good luck. Fitzy

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fitzy777
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38 Replies

Welcome to the mad house ... oops I mean, welcome.

fitzy777 profile image
fitzy777 in reply to anthonyjohnrobinson

Thanks, Anthony for the welcome,Been in a few mad houses before

AndyC profile image
AndyC

Hi Fitzy

Welcome to this brilliant site. You will never go short of a friend on here.

My name is Andy I'm 50 and was diagnosed in Oct 2011. I live in Sheffield.

On here you will find stories jokes and anecdotes as well as the odd gripe. I look forward to reading your blogs.

Take care

Andy

fitzy777 profile image
fitzy777 in reply to AndyC

Thanks Andy,we have in common the age we became PDers..still going strong,at 6i, still got a good life,.that cure could be just around the corner, you are still a youngster, GOOD LUCK!!!! regards Fitzy

Precious44 profile image
Precious44

Welcome to the best site having to do with people who have Parkinson's and their caregivers. I am a 68 year old widow who was gived the PD diagnoses, 4 years ago, but had be diagnosed with Fibermyalgia 12 years ago. According to my Neurologist the Fibermyalgia was more than likely the Parkinson's. I found this site about 2 weeks ago now, and I have it to be a really great place to learn more about the disease. The people on this site are compassionate, caring, helpful, gracious, warm, humorous and just really nice. I am so greatful to have found it, it's like coming home. I hope you find it to be helpful to you.

oh, I always give hugs because I need them.

Hugs,HUgs,Hugs

Precious44

fitzy777 profile image
fitzy777 in reply to Precious44

I am so over joyed to have found this site, and to know that there are people like ,you ,still exist, you are precious!!!!! HUGS Fitzy.

jillannf6 profile image
jillannf6 in reply to fitzy777

hi fitzy

welcome to the parkinsons site

and ther onlien [arty tonight

lol jill

:-)

ps i live in uK in nw england

but am from yorkshire originally

jillannf6 profile image
jillannf6 in reply to jillannf6

Hi fizzy

R un joining the party

Lol jlll

:)

...

Hi Fittzy,

welcome to the best PD site in the world, my name is Alan and i live just out side glasgow, on here we all share the GOOD the Bad and the UGLY side of PD,

we are a happy bunch of peeps although some times we rant , but thats ok

Regards

AL

fitzy777 profile image
fitzy777 in reply to

thanks for the welcome AI ,be bloging soon , when I get the hang of it ,regards Fitzy

jillannf6 profile image
jillannf6 in reply to

Hial

Rub joining rthe party?

Always good to see new people joining the site.

Kindest regards

fitzy777 profile image
fitzy777 in reply to

Thank you for the welcome ,regards fitzy

jillannf6 profile image
jillannf6 in reply to

Hi ole tyke

rub joining the party

Lol Jill

:-)

tlongmire profile image
tlongmire

Welcome to a great site with many kind, caring and compassioate people. :-)

Hugs, Terri

fitzy777 profile image
fitzy777 in reply to tlongmire

thank you for taking the time to welcome me regards Fitzy

philb profile image
philb

Hi Fitz,

Like you this is my first time on this site, I just wanted to say thanks for being positive. I am 45 and I live in Kent, I was DXd in June this year and have been wondering what the future holds - I know PD is different for each person but it was good to hear your story.

Phil B

AndyC profile image
AndyC in reply to philb

Hi Phil B :-)

Welcome to this awesome site, glad you found us. I`m 50 and was dxd in Oct 2011, for about an hour and a half after dx I felt sorry for myself but then thuought "you know what PD youre not gonna rule my life, I`m gonna rule you, to hell with you!!!!!!" since then I`ve got on with my life as if nothing is wrong.......laughter is the best medicine.....and ( in my case ) the love of a good woman!! ;-) plus PMA.....Positive Mental Attitude.

Take care and I look forward to your blogs my friend

Andy :-)

fitzy777 profile image
fitzy777 in reply to philb

Phil ,stay positive you are young plenty of time to find a cure. At 61 I still have a dream.

good luck FITZY

in reply to philb

Hi Phil,

Going to share a wee story

Glasgow Patter on A bus

Posted by alsh59

0 minutes ago

Edit | Delete

Went to see my GP today at 9.40 am my daughter Lauren dropped me off before she went to her work, once finished with the Dr I decided that as it is a typical day weather wise in Glasgow i.e. heavy rain and strong winds I would venture in to Glasgow City centre by Bus, now I have not been on a bus for over 30years, so on I popped , very shaky and by this time dishevel and wet, got my ticket and went to sit up stairs ( don't know why) I fell up most the stairs as the driver moved off, not bad I thought, sat down and put my iPod on to listen to my friends new album, after about 10 mins the bus stopped out side Glasgow's Barlinnie prison or aka ( The Big Hoose) at the stop was all I can describe as some local Glasgow worthies just realised from prison, nothing unusual there I thought to my self , then they all trooped up the stairs singing and dancing as to celebrate there freedom , once seated they dully rolled up a few joint's , now I know what a joint smells like as I have the smell of cigarettes, .

One of the party noticed me and came bounding over to offer me a joint, I am shaking like a jelly by now not of fear just PD, I declined and he sat next to me , then out came the carry out ( Glasgow Slang for drink) a few bottles of Buckfast ( A tonic wine adopted by the local drunks ) once more I was offered a wee swally ( Drink) again I refused and told the guy it was too early for me , imaging my thoughts as he said ( well pall look like your an alky any way, look at ye shakin fae heed ta toe, you must have been on a bender yer sell .

I tried to explain what was wrong with me , he did not understand just laugh and moved set, as I got up to leave the bus I fell flat on my face , all the guys just out of jail gave me a round of applause and wished me good luck.

Just a day in Glasgow hope this put's a smile an you faces as you read this.

For my self i just cracked up very funny

in reply to

Just my sort of humour. Once you can laugh at yourself half the battle is won.

I wish you all the very best that life has on offer.

Keep your sense of humour and you will never be truly ill.

By the way Buckfast tonic wine is quite nice.

i'd have thought a bit expensive for alki's mind.

Hokuto profile image
Hokuto in reply to

It's too bad you didn't take a toke; maryjane is said to be very helpful for Parkies like us. Another good reason to change our (everywhere) outdated and primitive drug laws!

moonswife profile image
moonswife

Welcome both Fitzy and Philb. You have joined an amazing group of informed, concerned and caring comrades. Any question is welcome, and usually promptly answered. This group is from all corners of the globe, joined by a single gawdawful disease. Hope it's not your last post.

CJ49 profile image
CJ49

Welcome Fitzy & Philb! You will find that you not only joined a new site, but also found an "extended family" here. ..Everyone here is "the real McCoy", if you know what I mean....We all care about our fellow PD friends, and if you need help on some matter, or just want to "let off stress"....Well.....welcome to our "cyber home."....Looking forward to your posts! <3

grammieof3 profile image
grammieof3

Welcome welcome i haven't been on here long but u are at the right place these people take time to listen to u. Its a wonderful site. Look forward to hearing more from u. Oh i am 54 live in texas i have had the maddness ( just kidding thanks Anthony) for 7 years now i forget. Anyway welcome. Dena

fitzy777 profile image
fitzy777 in reply to grammieof3

Thank you for your welcome regards FITZY

Annie81963 profile image
Annie81963

Welcome Fitsy you will enjoy this site,alot of good folks sharing info to help make PD less scary.It helps to know we are not alone.

Anna

fitzy777 profile image
fitzy777 in reply to Annie81963

THANKS you are my kinda girl regards FITZY

shasha profile image
shasha in reply to fitzy777

HELLO FITZY - AND WELCOME TOO - THIS IS TRULY AGREAT SITE FOR FINDING FRIENDS AND FOR INFORMATION - I AM 66 AND LIVE IN FRANCE WITH MY WONDERFUL AND CARING HUSBAND FRED - SO GOOD TO HAVE YOU ON BOARD

LOVE SHA XX

JanellenGrimaldi profile image
JanellenGrimaldi

Welcome, welcome, welcome!

I was dxed in 2009.

This is a great forum to share your fears and concerns as well as your inspirational stories. We are not suffering alone as long as we have each other on this blog. Best to you!

Jane

:-)

lilmikejil profile image
lilmikejil

Hi Fitzy,

I recently joined this site. Everyone is so friendly and caring. I have a place where my fears and concerns are understood. I know I'm not alone. My name is Lilli, I'm 61 years old and live in NY. I was Dxd 4 years ago. I have PD on my left side. The stress at work is getting harder for me. I'm hoping to retire soon. I work in the education system high school level. Looking forward to your next post.

Lilli

jillannf6 profile image
jillannf6

HI ALL

i am jill and have psp

this is a great site for getting info for laughs jokes/online parties and just finding fellow souls on our way

lol Jill

:-)

fitzy777 profile image
fitzy777

Just a big thank you to all members for the warm welcome , regards Fit zy

cowmom27 profile image
cowmom27

welcome fitzy from western NYS in the USA. I am more than sure you will love this site. I am 66, was diagnosed in March 2006---mad as hell for about 2 wks---waste of energy that can be used more wisely!!! I was working in a busy emergency room at the time and had no issues R/T the PD but other issues led to my decision to return to the elder population that as a nurse was always my favorite area to work in. Increasing fatigue and poor stamina I thought it wise to retire 4/2011 after a 46 yr career-I miss it terribly. While I have 'bad' or 'down' days I guess you could say I am one of The lucky ones--=-I can still care for myself, my home, I do all the cooking, cleaning. laundry, still drive, care for my grandkids 2 days/wk. At the same time this can be a 'curse' as I frequently over-do on my good days---living with PD is a roller coaster but considering the alternative I'll stay on the roller coaster for as long as the good Lord allows me!! Have a wonderful day---------the sun is shining here--always look for the things that make you smile each day!!! Until 'we meet again' (((((()HUGS))))))))))) Gail

fitzy777 profile image
fitzy777

Hi, Thanks for welcome,,stay strong and positive,and your faith is a bonus god, bless ,Fitzy ,

shall1019 profile image
shall1019

Hi. My name is Susan - I'm 72 - live in Palo Alto, CA in the San Francisco Bay Area. Earlier this evening I thought I was introducing myself to this blog and sent my info on it's way never to be seen again.

Anyway I've been reading your comments for about six months - thought I should share my experiences. It's too late tonight to go any further but I will later. I thought I had Chronic Fatigue Syndrome for about 10 years but about 2 years ago I was diagnosed with PD.

More later - it will be fun getting to know you.

in reply to shall1019

I feel sure we all hope to get to know you very well

Kindest regards from the other side of the water.

or as we say in Yorkshire t'other side o' t'watter

shall1019 profile image
shall1019

Thank you. It's not clear to me how to navigate this site (where to start). How do you respond to just one person?

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