I'm awake ....... maybe.: Victory, the day... - Cure Parkinson's

Cure Parkinson's

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I'm awake ....... maybe.

anthonyjohnrobinson profile image

Victory, the day is ours .... well mine ..... well the next hour maybe ... the medication has just kicked in and I'm floating in the air.

It's these uppers and downers that get me down, starting with early morning.

I am awake how am I today?

Damn, I'm a awake but my body is not, I can't move and will just have to lie here until I can. Good job I put that old towel between my legs, I will need it later to .. you know what I mean.

Damn, I can only crawl out of the bed, it is going to be a long day.

Great I feel fine lets get into that shower, well actually I would like to book today as a normal stay in bed but I have to work.

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anthonyjohnrobinson profile image
anthonyjohnrobinson
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8 Replies

I realise we all seem to have that problem to a degree in a morning.

The Neurologist suggested that the morning dose of medication be taken an hour before you get up.

Do you think that might help in your case?

I wish you all the best.

Yogibear profile image
Yogibear

I always take a Madopar Dispersible (booster) on waking for a kick start. It works. xx

grammieof3 profile image
grammieof3

Have you tried provigil its my get up and go medicine after i take all my go to sleep drugs UP DOWN UP DOWN

PatV profile image
PatV

OH boy do I know! one minute I'm stone faced. Then when meds kick in (who knows when !!!) I'm doing a bad imitation of an Italian comic. Heaven help me if I'm in a situation where I'm required to be seated (on bus, in a meeting). Best I can get up and walk around, time to do the chores, etc. Otherwise I'm prone . I lay down on floor in a meetng yesterday. Someone had to step over me so I got up. :P

I have the DBS and do not experience any of these challenges and never have! I'm sorry that you do! Now I understand your posts a little better!?! I'm very sorry for your degree of this awful disease! I'm sure someday I will. But for now I'm so thankful for all the effects I do not have! I know the DBS is not a cure and it will happen one day! And wow, what some of you say; scares the you know what, right out of me!

Blassings,

Carol

Brooke profile image
Brooke

The chorus of this song reminds me of what we deal with,The song is Hot and Cold by Katy Perry.Here is some of the words....

You're hot then you're cold

you're yes then you're no

You're in then you're out

you're up then you're down

You're wrong when its right

It's black and its white

youtube.com/watch?v=A_SivUV...

Where I live in The Villages,Fl we do a lot of line dancing. One of these is called "The Cupid Shuffle". I said I want to make up a dance called "The Parkie Shuffle" but I needed a song,maybe this is it.LOL

compucure profile image
compucure

Anthony just wanted to say thank you for your posts - many is the time during my dark nights of the soul that I have drawn solace from them. So thank you my friend. By the way I live in Chipping Norton and have lived with this crazy thing called Parkinson's for nigh on 18 years and had DBS in September 2011. Out of the mist. Tony

sandeelee profile image
sandeelee

ditto to all of the above. and when you finally come to a final answer, I will ditto to that too.

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