I want to share my story so that perhaps some of us can find a way to educate hospital staffs about Parkinson's Disease.
I had fallen in my home and was out for about two or three mins. MY husband immediately drove me to the hospital I had an MRI and a full body scan taken but nothing was found. I had large bumps on my head an a concussion. THe Physicain's Assistant who was in charge, told me I must stay in the hospital for one night.as they thought it could have been a heart problem. I told them to call my caridioalgist who would tell them recent tests showed my heart was fine. THey would not call so I went up to the cardio floor. My bed was a cardio bed that moved up and down and turned so that my blood would circulate to my heart.. with a concussion and PD a ,moving bed was about the worst thing I could experience.. I asked for a different one but they said this was the only kind of bed on that floor. I got into bed and phoned the nurse's station to ask for some ice. Their response to me was "Where are you going to put it? ON your heart?" They didn't bring ice. About an hour later I phoned again. A nurse came with a bag and asked what I was going to do with it. I told her I had fallen and I had large b umps and I would put it on my head. She said it wasn't on my chart. I told her I also had PD, she said that wasn't on my chart either. I must be cured I thought. Then a nurse came in to ask what evening meds I took . I told her i have them in my purse. She shook as she told me I must not take meds from home I can only take medication from the hospital pharmacy. I told her in about fifteen mins I would have an attack so she would have to hurry. She came backand told me the pharmacy only had one of my pills and I should take it. I told her no way I needed all three together and I took my pills from home. She ran out of my room in a tizzy. THen a hospital doctor came into my room. I told him what I had been going through and that I had PD. HE left the room to look PD up on the computer and returned to ask."DId you know PD isn't curable?" They knew nothing about PD. He also said that the emergency PA wrote on my chart that I needed to see a PT before I could be released because my gait was bad. I responded by telling him I'd be there the rest of my life if they were going to try to fix that.
We need to educate our hospital staffs about PD.
My experience was horrible and should never happen again to anyone.
I did write to the head of the Memorial Hospitals of Southern Calif.He read my letter and got back to me saying he would speak to all of the staff members that had contact with me. I appreciated that..