I have alot of pain and numbness from my ... - Cure Parkinson's

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I have alot of pain and numbness from my toes curling. Is this normal?

lmacquinn profile image
18 Replies
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lmacquinn profile image
lmacquinn
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18 Replies

The thing I have found with PD is the quirky and unexpected, so what is 'normal' becomes a bit tricky to answer! I guess I look at it as what is symptomatic of PD rather than it being something else like flu. But here I can offer some insight, toe curling was my first symptom and my big toe is practically all numb. Yes it was painful when I had shoes on, and some I couldn't keep on at all. I am pleased to say that numbness is the only thing that remains since I have been on Levadopa. So for now, at least I have some respite. Funnily I found those wacky socks with 'toes' helped. KIndest C

lmacquinn profile image
lmacquinn in reply to

I figured it was common but wasn't sure if the numbness was from Parkinsons or diabetes. Either way it's not nice.

carolineb211 profile image
carolineb211

Yep, me too. I have one toe that is determined to hide beneath the one next to it, makes it tricky to walk at times, especially in sandalls!

lmacquinn profile image
lmacquinn in reply to carolineb211

definately painful to walk

olpilot profile image
olpilot

I had that with pretty bad cramping in my legs, dr called it dystonia, fairly common in PD. He prescribed amantadine and it started to work in a couple days, now rarely have much pain or curling.

lmacquinn profile image
lmacquinn in reply to olpilot

I'll ask my DR about that med. thanks

BILLYRAY profile image
BILLYRAY

just myy right foot will curl up...not much pain oher than the pain of falling

Two small toes left leg. that is where it affects me.

HomeinVa profile image
HomeinVa

My toe curling was the symptom that got me to a neurologist. I also have what one neuro referred to as hitvhhiker toe (big toe points up). Meds have not worked, surgery was a bust and caused more problems, so now I get botox injections every three months. A little pain when the shots go in, but it causes those muscles to relax within 10 days..Good luck to you. I hope you find something that works for you.

tlongmire profile image
tlongmire in reply to HomeinVa

My big toe points up and the others go down causing pain in the arch and up the back of my calf. Where did they inject the botox--big toe?

HomeinVa profile image
HomeinVa in reply to tlongmire

I get several injections. Two too the back of the calf and three in the bottom of the foot. It is called EMG, I don't know what that means but it uses a machine to let the doc know he is hitting the right muscle group. They also prescribed me a lidocaine lotion to apply to help with the sting of the injections. Hope this helps. Good luck.

PatV profile image
PatV

my latest symptom is toe curling (clutching really) on my right (non-affected ) foot. makes it scary to get around and make coffee, etc. do not want to trip and fall! I have to put on rigid shoes until meds kick in , which I hate. I am always barefoot indoors. normal? what's normal for pwp's???

harding55 profile image
harding55

My toes curl on my left foot. The joint on my 2nd & 3rd toe looks deformed now. It is usually more comfortable when I wear shoes or slippers. I had 2 fractures in my left foot in April and the dr didn't realize it til May. He thought it was gout. I think it's time for a new doctor.

honeycombe3 profile image
honeycombe3

Is this normal? It is for me. (8 yrs dx, no comfort).

Iron1 profile image
Iron1

Definitely- for me the toe numbing and foot cramping usually indicates that I will have to rest or cope. IF I had a front row ticket on Broadway I would definirtely put up with this symptom and massage feet toes ankles, and wear supportive shoes.

As far as diagnosis - I wouldn't stay with the doctor who thought you had gout. I have in switched docs myself, and have found that second opinions can make a big difference

Iron

moonswife profile image
moonswife

I have it too, but then so did my mother, father and sister and they did not have PD. I must have been the least lucky: bunions, toes curl and overlap, are numb and cold a lot. Hereditary bad fee, for sure. PD complications on top, probably. Had custom shoes made. Maybe they are helping, but I am not sure.

shasha profile image
shasha

yes my lft foot is being a b----r at the moment - stopping me walking --

honeycombe3 profile image
honeycombe3

Sharon, my friend nothing can keep you down. You are an inspiration to us all. Let me know if you canget to UK i'm looking forward to meeting you,

Angela

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