Parkinson's Movement
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Meds wear off out in public how to handle.

Yesterday whole shopping with one of my son my meds wore off. It was 1/2 hour before the next dose. I started tremors so bad which affects my speech. I just want to know how do you handle this when out in public all of a sudden your shaking so bad. My son is 18 but he could not drive so I went and sat on the bench took my meds early then sat there for a bit till I felt better to drive home. I want to know how others have handled situations like this at their work or out somewhere. And what to do if by yourself. My Dr is taking me down on the amount of sinemet I take. This does not happen often but I just switched Drs and the new Dr says the old Dr was giving me to much medication. Yes all are movement Drs.

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Hi Blessed4431,

this happens to me almost on a daily bassis, i just sit and wait till my meds kick back in,

i used to try and hide away and not let anyone see me however now i dont care , i have PD and there is nouthing any one can do about it , i take the micky out of my self and let people know the its my friend Parkie who has invaded my body but only for a short time , it works for me

Take care

Al

Ps

Some time my wife Laraine has to come and take me home ( or the police) Joke

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thank you alsh59, I know it happens often I do let my friends and family know. I guess every time it has happened so far I have been out in public and it happened that made it so scary. I guess I should think who can I call to bring me home ?

Thanks so much

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Hi blessed, yes this happens quite often to my husband and usually when he doesn't expect it a real nuisance, but now has got used to it, so frustraing too. difficult for him to plan but he just gets on with it. Don't mind the public, they problably do not notice as much as you think and if they do they should help. My husband usually takes his medication earlier if it helps he says his body lets him know when meds wearing off but not always. I believe it has something to do with when you eat etc. Might be worth making a note of how often this happens in a Diary so you something to present to Doctors on your next visit it will maybe enable them to work out a better medication regime, but as I say the person who has PD knows whats going on in their bodies not the Doc.

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I guess I will get use to this, I think my problem is that I have four young adult children ages 19-23 and the 3 youngest have muscular dystrophy my oldest has bipolar disorder as does my husband. The youngest of the 3 just had a pacemaker put in the end of June. I''m use to public comments believe me. Between the wheel chairs and a service dog. I'm use to being in control of what ever happens with the kids. Now I have no control over me and that is scary when you are alone or with someone else who really is not well also. I was just scared yesterday.

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I'm sending positive thoughts your way. Sounds like you and your family have to be really strong to deal with so many health issues.

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Thanks jemor I appreciate that

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Hubby now realizes when this is starting and will take a 1/2 pill (sinemet) unless it is close to his next dose and then he will take a full one. Good luck and hope you are as lucky next time.

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Thanks wifeofparky, That is a great idea

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Yes, I go by symptoms and not by clock. Occasionally over medicate and then explain to my fellow passengers (if on bus) why I'm doing the one legged cancan. THe majority are very understanding.

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I appreciate all the suggestions.

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Happened to me and the doctor did to me just what your doctor did for you...cut back on the medication; but, another time he add 1/2 pill C/L. So I guess it is up to the Neurologist????

~~Dennis

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This happens to me fairly regularly, I have emergency 'rations' in the car and I sit it out till I am safe to drive, or mostly and luckily my wife gets to drive. I have the added problem of having to work out early on if it is a diabetic hypo which fortunately has a faster frequency of tremor and in both arms. I would never be tempted to drive (I don't do hurrying) and many of my circle of friends fully understand and helpful.

I don't do meds by the clock either, just regular and when I don't forget same the levels each day...... which mostly works for me. so my suggestion is keep it regular and speak to the Parkinson's nurse if things are going pearshaped

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Thank ya'll for the advice

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