Hate: I hate being ill I am defined By... - Cure Parkinson's

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Hate

jupiterjane profile image
24 Replies

I hate being ill

I am defined

By the disease

That invades

My body

And counted out

Way before I

Even take my

Last breath

I hate being ill

The fights have

Become one-sided

No one wants to

Pick a fight with

A sick person

And they certainly

Don’t want to be

The creep that

Wins one!

I hate being ill

Everything I say

Or do

Seems to scrutinized

By family, friends,

People I don’t

even know but

Who have an

Opinion on my life

Boasting a

“cure for what ails you”.

I hate being ill,

To admit

That I need help

Forced to speak aloud

The problems I blame

on Parkinson’s Disease,

Unable to do some of

The simplest things

I hate being ill

I swear that the shredded

Cheese packages are

Impossible to open

And the caps on

2 liter soda bottles

Are put on with

A pneumatic tool

And my sweater,

I just can’t seem

to stop putting it on

Upside down, inside out

And all buttoned up wrong.

I hate being ill

Being defined by

My disease

Accepting the

Fight

That life has

Started in my

Body

My mind

Cleaned and oiled

Daily

To protect the

Connections

From the rust

That corrodes

Halting any

Messages

Needing to

Get through.

Stopped short

A blank expression

Fills my face.

I hate being ill.

It fills me up

Stealing from me

The essence of

Who I am

Moments filled

With memories

Gone with another

Piece of me.

Forever lost.

I hate being ill.

Jupiterjane

Written by
jupiterjane profile image
jupiterjane
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24 Replies
jillannf6 profile image
jillannf6

Jane

Your poetry really,gets to,the heart of it

I,shave been in such a weepy mood and its did make me wail a bit more

Keep ur chin up

Lol Jill

Carrigan profile image
Carrigan

You are hurting but very talented. take care

MagicMax profile image
MagicMax

We are all aware of the negatives. Perhaps you can use your obvious talent to express the positives?

jupiterjane profile image
jupiterjane in reply to MagicMax

Hi,

Poetry is my form of expression. I have written many positive poems, check out my other blogs, but I cannot be positive all the time. We all need time to grieve, to cry...

jillannf6 profile image
jillannf6 in reply to jupiterjane

Hi Jane

I agree

We all Have a negative side

Mine has been to the fore with my impending move and the frustration go not being able to speak coherently or do physical things to help

lol Jill

:-)

shasha profile image
shasha in reply to jillannf6

hi jill

so sorry you are having to still go thru the mill - i know what yiu mean adbout not being able to do anything to help - it makes me feel so useless

xxx take care xxx

GrammyC profile image
GrammyC in reply to jupiterjane

You and I must have been in the same frame of mind when you wrote this. I had a bad Parkie day on Saturday. I finally shook it off after clicking on the Parkinson's Humor website. YumaBev always makes me laugh. If you haven't already, check out her website...It will lift your spirits. I always enjoy your poetry. Thanks for sharing it with us.

mccshe profile image
mccshe

I know how you feel, believe me I do. I just had a terrible weekend not being able to do the simplest of things. Exhausted and stiff , pain everywhere. But today i am going to get up, brush myself off, and hope for a better day.,and try again not to be defined by this illness.

I am planning on being successful !

Thankyou for a thought provoking expression of feelings, I hope you feel better....today!!!!!

jillannf6 profile image
jillannf6 in reply to mccshe

Hi Mcshee

I have replied to Andy,s blog in a negative way

Lol Jill

Lomtootie profile image
Lomtootie

Thank you for putting into words what I have been feeling for 6 years. I sometimes think I am alone on an island. Not that I'm glad to know I have company...but to know that I'm not a freak...and that there are others is somewhat comforting.

Brooke profile image
Brooke

We all feel that way if we are honest. Pray........and do not give up.

jupiterjane profile image
jupiterjane in reply to Brooke

Being able to purge my feeling through my poetry helps me tremendously to never give up!

Brooke profile image
Brooke in reply to jupiterjane

I write poetry also and it helps. You can read one of my poems if you go to archives and look under my name. Do you live in Jupiter Fl?

jupiterjane profile image
jupiterjane in reply to Brooke

No, I live in Springfield, Missouri by way of Cincinnati, Ohio. I'd love to check out your poetry! Thanks!

Sadiesadie profile image
Sadiesadie

Beautiful poetry!!! And it gets right to the point! I think all of us feel that way to some degree at one time or another. Thank you for putting it into words.

PatV profile image
PatV

Hate is a strong emotion. It takes strength to put your thoughts together in a coherent manner. jupiterjane, you are strong. Even if the blinkin' packaging defeats you. As it does me--damn. I try to find humor in some of these situations. The spills, the clumsiness. We look like an apathetic bunch,but give us a chance to express ourselves--look out!

muttie profile image
muttie in reply to PatV

RIGHT''''''''''''' WATCH OUT!!!!!!

Anemone profile image
Anemone

Right now, this moment, I am with the you who wrote this piece.

Not later, I hope, but right now. Ugh.

Thanks. Believe you are better right now.

muttie profile image
muttie

YOUR POETRY IS INDEED INSPIERING IT MOVES ME MORE THEN I CAN SAY!! KEEP IT UP AND KEEP YOUR CHIN UP TOO !!!! THANK YOU FOR SHARING. ellie

Jimshasky profile image
Jimshasky

Keep writing?..get it out!

susiep profile image
susiep

We all hate this disease,however I have found the more negative the worse you feel, try to do something different you will find when you put it aside it seems to temporarily go away,try it it works!

jupiterjane profile image
jupiterjane in reply to susiep

Like I told MagicMax earlier,

"Poetry is my form of expression. I have written many positive poems, check out my other blogs, but I cannot be positive all the time. We all need time to grieve, to cry...", but Thank You for your thoughts!

Court profile image
Court

You never disappoint and put into words what so many of us feel. This illness is so cruel and we are all entitled to have 'off' days. I know I do. You make good reading whether you are up or down. Please continue to let us share your thoughts.

Thanks

Sue :-)

shasha profile image
shasha

hear hear court

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