Another bad day: Hi, Just when i thought... - Cure Parkinson's

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Another bad day

33 Replies

Hi,

Just when i thought i was getting to grips with this deamon, he/she strikes again, seen Pd specialist yesterday and they uped my meds now on double what i used to take, and not only that they have changed my timeings , so tonight i am totaly out of it , my vidio was prob bad , tonight i feel a lot worse , just managing to type this , iv got my ipod on and shaking all over to the tunes , shit i wish this would stop just for a few days , and go back to what i was like , but hell no, not so lucky, just got to deal with same shite different day, well the weekend is here and its a holiday week end in the UK , going to visit so friends on Sunday at there Caravan in wyeams bay near gourock, fuken hate caravans but i have been told i have to go , only staying for one night as i will go off on one if any longer, so on saturday i will be watching Cup final . hope Kenny wins this one,

have a good weekend all

Love

Al

xxx

33 Replies
AndyC profile image
AndyC

Hi Al

I had a great holiday in Wemyss Bay in 2003......it rained the whole time!! lol but we had a great time nonetheless.

I`ll also be hoping king kenny can be successful tomorrow.......for our American friends Its the (Soccer) FA Cup Final tomorrow Liverpool Vs Chelsea....King Kenny being Kenny Dalgliesh the Liverpool coach.....thought i should clear that up Al.

Anyway mate be well LLAP......Live Long And Prosper :-)

DeParkiePoet profile image
DeParkiePoet in reply to AndyC

Thanks andyC, that explains it!

LLAP

drew410 profile image
drew410

Hi Al, fecken shame - thought things were getting better for you.

I never thought a prody would support Kenny but glad you do. I will be rooting for the man masel'. Wish I could do something for you but i am at a loss.

Good job you've got Laraine - made of the same stuff as my Elaine.

Enjoy the footie, high regards, Drew

in reply to drew410

hi Drew,i am a prody and so is King Kenny , any way will also be watching Rangers Vs Motherwell , in the Pub if i can walk that far , might get La to drop me off and pick me back up , Yes thats what i'll do, however i know, she will make sure i do not take too much money with me so i cant have any more than 2 pints .

Ah Parkinsons gauranteed to save your liver,

take care

Al

DeParkiePoet profile image
DeParkiePoet in reply to

Dear Alsh59: I'm right there with you! Just got a flu bug 2-3 weeks ago and the symptoms of pD went ballasatic on my head. Raging stupity, increased, super Slo Mo increased. frozen cramps, increased...So I couldn't sleep, couldn't type couldnt write, disaster right?

Wrong; Even though I felt the worst yet. I made a decision to have fun at 2 am on 2 hours sleep, so I had made rhubarb earlier and I had some coconut Ice cream- yes you got it! I scarfed it down and yummy yummy it felt real good sliding down my esophagus. I got out my digital recorder and had a blast writing /talking my life story. that decision to have fun was made on the floor in agony and peestained shorts. Something unthinkable just a month ago. there you go...

go king Prody whatever that means!

All I know is : I AM THE LUCKIEST MAN ON THE FACE OF THIS EARTH. I NEVER GOT THAT UNTIL i GOT THAT (PD)

PatV profile image
PatV in reply to DeParkiePoet

I hear ya Jomc. The worse it gets, the more I have to laugh. Glad I can .

Make sure you get plenty of rest Al, you poor wee soul - tomorrows another day x

JAYNIE profile image
JAYNIE

HOPE ALL WORKS OUT FOR U !!

XOXOX

JAYNIE

shasha profile image
shasha

hi al - sorry to hear you are so crap ... know how you feel with the incresed meds though # they dont seem to stop you moving

wheras me - i cant move !!

have a good weekend and stay WARM ..

XXX

Thanks All,

I seam to be ok just now time 09.30 gmt, so will just have to see what the day will bring,

Have a good weekend

Al

jillannf6 profile image
jillannf6

Hi Al

Sorrry u have had a s...t day andhope ur meds Do work 4 u.

I am still v weepy and am still of no fixed abode until Fri 11 may

Is the depression still bad4 u.?

I suffered frm it for most of my adult life and the anxiety has been dreadful with this non-move. I have been falling over so much my right leg is purple with bruises from my but downwards!

But today is another day

(or as Andy would say "tomorrow is another Jam"

L Lo Jill

:-)

Ps where would I B without u guys and the smileys and table dancing

DeParkiePoet profile image
DeParkiePoet in reply to jillannf6

DEAREST JiLL GOOD LUCK DARLING ;

tlongmire profile image
tlongmire in reply to jillannf6

Jill so sorry about your falls. Hoping you are on your feet and stay there soon. :-)

Court profile image
Court in reply to jillannf6

Hi Jill.

Sorry you are so depressed, although it is no wonder with all your falls and the messing round with your moving date. Still, it is nearly here now and I really hope you will feel better when you have settled in. You must really be stressed out and the weather has not helped. Hope you have a sunny day for your move.

Take care.

Lol Sue

:-)

keep smiling and remember we are with you every step of the way, i will do a wee table dance for you later , and post you the pic

Al

xxx

jillannf6 profile image
jillannf6

Yeah great

Lol,Jill

:-)

DeParkiePoet profile image
DeParkiePoet

LET'S ALL DO A WEE DANCE FOR JILL IN HOPE OF THE GOOD LUCK FAIRY BRINGING HER SOME GOOD LUCK, FOR A CHANGE!

i second that, i will be doing a wee dance later , but that might be the beer, started to shake just over an hr ago and feel i am slowing down and no beer yet , hope to get through the dAy

Al

tlongmire profile image
tlongmire

I hope your meds start working for you. Take care and have a great weekend.

thanks

time 20 .45 gmt back to near normal

this is some crazzy stuff we have to deal with

Al

AndyC profile image
AndyC in reply to

You`ll never be near normal mate!!! lmfao :-D

Glad ya ok

Ok so i lied , spent most of day in pub shakin like a bag of bones , manager phoned LA TO COME AND GET ME , NOW AM FINE , NOT, just a wee bit tippsy , naw am pissed and goin to ma bed

Al

Iron1 profile image
Iron1

Here's a big hoooRAAAAY for the spirit of the English (ps one of my favorite songs is "Why can't the English learn to speak" (My Fair Lady)

It seems to me that you guys (and gals ) speak da.... well about the PD

monster . Don't lose your sense of humor..... my own hallucinations and horrifying night sweats have ceased and I owe it to no one but myself,. the study of a new weapon against psychotic experiences my neuro , and my hubby and caregiver . ONWARD! here we celebrate Cinquo di Mayo( sp, ) goinfg out for some Mexican food (not liquid alas)

Enjoy the holiday -59,,flongmire -Jill and all whom I have met here..

from the Yankee across the big pond

iron

in reply to Iron1

Cheers big man,

but iam not English , i am from Scotland the best country on the planet

and glasgow the finest city of all

take care

Al

oops sorry , young lady have a good night with the mexican.

am pissed jut now and on my ipod shaking away the night, no sleep for me , i might miss some thing and that would not do,

gon yer sel and have a blast

Al

muttie profile image
muttie in reply to

I'LL DO A WEE DANCE FOR YA, AND GOOD LUCK DONT BE PISSED! OK ..... BE PISSED ....... THIS PD IS PISSY SORRY IF I OFFENDED ANYONE...... BUT IT IS WHAT IT IS !!!

in reply to muttie

You can only Take offence not give it,

and you are right with the PD thing

Al

muttie profile image
muttie

A SCOT FROM GLASGOW EH I WAS A MCDOUGALL ONCE AND MY GRANDFATHER WAS

FROM THE

FINE TOWN OF INVERNSS I HOPE YOU GOT SOME SLEEP!! SCOTLAND IS A BEAUTIFUL PLACE !! GOD PUT YOU IN A BONNY LAND WIYH WONDERFUL PEOPLE,SO DONT BE PISSED , PLEASE!!! I WISH I WAS THERE. GREETINGS FROM HOT AND VERY DRY ARIZONA U S OF A

good morning its 04.15 gmt thanks , Scotland is a fantastic place and Inverness is indeed a fine City,

many thanks for your kind words

Al

mitchdee profile image
mitchdee

the one thing we parkies have in common is a sence of humour and a liking of the bevvie ( drink for non scots). hope everyone is having good holiday weekend, wemyes bay al....nce marina with lovely resturant down that way. my plans for today are nice long walk along beach irvine to troon. stop for coffee then home to paint spare room which i started 2am last week when i couldnt sleep. live myself so no one to stop me doing silly things or finish what i start lol..dad came round yesterday and nearly had fit as i was painting bedroom furniture in middle of living room....off work tommorrow so will try avoid homebase lol got my number for the glasgow 10k next sunday 11598 so anyone in area give me a wave

diane

I'ii look out for you , i am not that far from Glasgow and my Daughter and nice are also doing the 10k, when you get to Troon you should pop in the see my mum , Jean she lives at 13 Titchfield street , right at the beach, she would make you more than welcome ( she is off her nut 7 years old goin on 18)

Alan

Not Long back from a wet and bloody cold weekend, Caravan not bloody likely, never again unless its in the south of France, not the west coast of Scotland, froze my nuts off

Al

jillannf6 profile image
jillannf6

Hi al yes but u did it

Lol Jill

:-)

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