Recently I have been very hurt by my adult children's attiude to my PD. Last week I willingly agreed with my PD nurse to take anti depressants to help me cope but inefficient GPs mean I've not actually got them yet. During this last week I've experienced regular episodes of psychological pain ,- each up to about 2 hours - more extreme than I could ever have even begun to imagine . I find it impossible to describe how bad they are without sounding melodramatic - During them I can't speak, can't move (not a PD freeze) and just being conscious is unbearable and I look terrible. Suffice to say if I felt equivalent physical pain I'd be in intensive care! Having just emerged from the worst episode yet I'm beginning to realise that they seem to coincide with medicatiion wearing off/ not being as efficient. But which is cause and which effect? This evening genuinely felt like being in hell - sounds really OTT now but not at the time - after taking my next dose of madopar it gradually eased until after 30 mins I felt quite normal - just fed up . I don't have any hallucinations, confusion or psychosis during them - just searing pain. Now I'm dreading the next episode..I've tried to explain to the GP and I'm promised the anti depressants by tuesday, but they may take 6 weeks to kick in. I simply won't survive this going on for 6 weeks. . Has anyone else experienced this extreme effect? And if so any ideas for prevnvetion or minimising.I wonder if I'm having some sort of breakdown? Many thanks for reading this - hope I don't come across as completely unhinged . . . ..
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