Monitoring Parkinson's: Is there... - Parkinson's Movement

Parkinson's Movement
17,388 members17,263 posts

Monitoring Parkinson's


Is there anything you do to monitor your Parkinson's, e.g. self-assessment? diaries? list on the fridge of things to ask your clinician?

11 Replies

over the 14 years of having pd i write on my computer when there is a change in my pd and also any drastic changes in medication..... it helps to look back and analyse any deteriation in my condition but mostly i ask myself when? why? and how things have changed to see if there is any pattern


How incredibly useful to have an ongoing record - great idea.

Since I started taking medication (Ropinirole) last July (diagnosed 6 years) I have kept a PD Diary. It is just an A5 notebook, so most of the entries are a line with date and time of meds. Other things I include are meds / dose changes, different feelings, tremor bad, when I see Doctor, nurse, consultant etc. In fact anything that is not the "norm", I will write down, including now (having CBT sessions) anxiety isues and the cause. At the back of the book I record my Wii Fit balance game score increases to potentially align with medication increases! :)

If something changes that I note in my regime it may trigger a thought of occuring previously and I can look it up to observe for potential similarities.


Brilliant you monitor with wii-fit - do you do it at the same time each day?

in reply to CPT_Helen

No, far from it (barely weekly)! I added some comments to a Wii Fit thread on PD Junction. Briefly, I had mot used my Wii for a long time and found that I was able to relatively easily beat my balance game scores, whereas previously I had struggled. The thought I had was that I had started medication in the meantime and it was having an effect that was not easily "visible" to me, but able to improve my "game ability". As I increase my dose(Ropinirole), my scores have still been improving slightly.

in reply to Pauli

I am still monitoring my Wii balance game scores (Football heading and Penguin fishing for this purpose) and recording them in my diary.

In a 30min session this evening I created 3 new record scores for me.

In about 10 games of heading, 5 of my scores made places in my top 10.

It will be interesting to see when I stop creating new high scores, when I have stabilised my meds.


that's fascinating that it is a way of recording the less visible effects. keep me posted.Q


I hadn't thought of adding that to my diary but you are right, it is a good measure of balance. I will start adding it today!

Thank you

I have in the past, I no longer do. I have found that the more I monitor my condition the more problems I discover. I am a great fan of denial (a fair accomplishment after eleven years.) I'm doing OK and as long as I am I don't want any more medication, nor do I want to be referred to any other area of practice for fear they will find another incurable, dibilitating disease. I don't mean this as an indictment of physicians but they all want to find something to prove their worth. I just don't need anything else. Childish? Perhaps.

For the first two years i took photos of my face with the computers' camera. I was looking for the changes in my appearance and also I was monitoring my different moods that could be seen in photos. Now I do it very rarely, but still sometimes I take a picture and can easily see the change.

In the beginning I had a need to wrote of my feelings and thoughts, nowadays not so much, but I still write some things down, or a poem, so I have something throught which I can see the development of my desease and of my thinking.

Not sure where you are located, but my Neurologist is at OHSU. They have a web site where i can email my doc and access my records including test results. This allows me to report any changes and indicate the urgency if any. (I was diagnosed 1999)

You may also like...