I have multiple diagnosis, I take about a dozen meds. I have hypothyroid, asthma, PTSD, COPD, depression, parkinsons, and many more..

[Lindaonmeds]

I was diagnosed w/parkinsons 2 mos ago but believe was undiagnosed for many years. This is new to me and I am very tired. Any replies will be helpful. ty

[MsNoir]

posted a question about psych meds and PD earlier - check those responses

[Lindaonmeds in reply to MsNoir]

I don't know where to find those responses..I apologize, but PD and this site are both new to me. Confusion is one of my problems, so bare with me. Also, I have lost a lot of my ability to spell words I once knew how to spell. ty for your answer. All help and explaination invited.

[Espo]

You probably were undiagnosed (or incorrectly diagnosed) for many years. Most of us were. And as for your being “very tired,” 3239 Parkinsonians at the website “Patients Like Me” (patientslikeme.com/about ) report Fatigue as a problem: 361 of us describe the problem as “severe,” and 1236 of us describe it as “Moderate.” Welcome to the club – you are not alone!

[Lindaonmeds]

ty for ur reply. At least I know someone "hears" me..I have been in denial, am talking to PsychAnalyst about it today. I've been doing a little research and this site has been very helpful for realizing my symptoms were PD all along. I will visit the link u mention. ty so very much for acknowledging my inquiry. your PD friend online..linda

[PatV]

Hi Linda I"m no doctor, but I'm sure treating your PD will help your other problems. I had thyroid removed right before having PD symptoms. After 8 years of fiddling with meds, I would say double and triple check all interactions and talk to all your doctors about all your side effects. Good luck to you, we're all here for each other.

[Lindaonmeds]

Thanks for the reply, I appreciate the info. My thyroid has been removed 20 years, I had Graves Disease. My thyroid meds are always being adjusted. I have frequent blood work done. I'm just now, after 2 mos., coming out of denial about my diagnosis, but after reading about all the many symptoms I can see why I have felt the way I do for so long. One dr actually told me my symptoms were all because I didn't drink enough H2O!! One told me there was nothing wrong with me. During last hosp visit dr wanted to put me in assisted living, then a trip a few mos ago to the ER I was diagnosed w/PD by the attending physician, then 2nd opinion from neurologist affirmed my diagnosis. This has been a long road for me. It is almost a relief to have 2 drs who even agree with anything. Ok, enough rambling-just need to vent a little, tks again for info Pat. Any other replies would be greatly appreciated. tks

[dubdiva]

Hiya

like yourself I have other issues, Graves (at constant war with my endo),, mild copd, Hep C,

depression on and off since a teenager, and beebn inn oainm management fir 5 years, git diagnosis of probably parkinsons for Christmas (rather have gitten a sweater) and I dont know which is doing what, and Like someone else said I wonder how much was PD all along (always had tremour) Im still id denial stage, (my newest on is that the Levadopa combo is causing Parkinsons lie symptoms but I had the symptoms first- I wpould love to come off everything and know what was really going on and the fact that thers no blood test ect for pd makes it all the more complex. Just know Ive felt lousy for a good 5 years now. But do know this site has kept me from the usual self flagelation that is maybe par iof the disease..talking , asking, venting, it all helps knowing what others are going thru to know , for me anywway that Im not crazy, I read stuff on here and go O h wow I did know that was Pd related, -but back to your original talk of being tired, thats the biggest issue for me and till coming to this site didnt know that its PD related..It helps whenI let myself lie down when I need to without the self judgement.(which is wierd as we should be kinder to ourselves upon hearing this,- anywayIm not sure if Ive said anything helpful. jsut that I I understand.. God Bless-

[Lindaonmeds]

yes, very helpful..sometimes just to know after going to so many drs, clinics, and so many symptoms, it is good to know that someone actually "hears" me. It's not all psychological. I go to an analyst who originally dx the post traumatic stress disorder, but this is all so new..the PD dx. It's not that I'm happy to have this dx its just that I've known I've been ill for so long and dr's just blew it off as "mental" so at least, after looking at some of the PD symptoms, I realize I'm not crazy, haha, after all. I have a lot of stress in my life (like many others with PD) and trying to stay busy is best for me right now. I have learned breathing exercises that help me to ward off some of the stress reactions. I will continue to research. I have just started coming out of denial and am looking into the actual symptoms of PD. stress makes the PTSD and depression so much worse. Well with all this to say I will say that I know I am very blessed, have (try to) a strong faith in God and I am as active as my body and mind will let me. My analyst agreed that exercise is the best thing for me. So far neurologist said he could give me meds but there would be side effects...I take so many meds now I told him I would rather wait. So...I will just keep on keeping on...I may not be in denial now, but I will learn and do what I need to do to live a more productive life. I tend to get very depressed over having a hard time getting dressed, makeup, hair, etc. I don't want to feel like others think I'm not even trying cause I am. It's just that it is really hard and I want to learn to be more optimistic about life. OK-there-my vent for now. tks for the help and always welcome replies and hearing others stories as I am still new to this site. ty again, Blessings to all....

[dubdiva]

You a said teh magic word-being heard is so important-Im also doing EMDR for PTSD and he's an enormous help, A nd the most magic word of all God. When I get tired or stressed sometimes I think I 'll just give in and and stay on the couch and give work ect , but My mom whi also had PD (undiagnosed till right befire she ppassed -I dont know how as hers was textebook, spent mcuh of her life i bed and it just made movement all that much harder, I guess like everyone, we need to constantly re-invent ourselves and as you said learn new wasys to live- God Bless You and evryine here1

[Lindaonmeds]

Tks for the reply. It recently occurred to me that my dad probably had PD. I was only 23 yrs at the time of his death, and he was 67. He died from emphesyma. Looking back I remember his left hand shaking while he would be sitting on the coutch. That was actually a nice flash-back, but sad he died so young and couldn't get around the last couple yrs of his life. Are you talking about rapid eye movement treatment for the PTSD, or is EMDR a type of doctor..not sure.