Is cognitive decline common in PD? - Cure Parkinson's

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Is cognitive decline common in PD?

emswife profile image
20 Replies

People close to me have commented that I seem to be much more disorganised and more easily confused recently. Is this common and how do I prevent a steady decline?

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emswife profile image
emswife
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20 Replies
drew410 profile image
drew410

More common than you think (no pun intended). I would suggest that you speak to your GP about this.

Beachdog profile image
Beachdog

Sadly yes.

pdf.org/en/cognitive_impair...

in reply to Beachdog

Thank you! That was very helpful to me.

in reply to

After going to Beachdog's link I found this link:

Found this useful information:

pdf.org/en/parkinson_exerci...

Found it encouraging!

One of the main reasons I retired from teaching.

bawford profile image
bawford in reply to

I agree with DiCan . Yes this is very real!! This was one of the main reason's I went on disability from a sr admin position at a world wide company. I feel more depressed dealing with this than the pakinson. It even affects my thinking and spelling.

MrDay profile image
MrDay

Hi, I have had PD for about five years. In the past year I have felt a significant worsening of my cognitiva ability. I feel this loss very difficult and stressful. Much worse than others symtomer.

Mr Day

wordworks2001 profile image
wordworks2001

This may sound rather simplistic, but I find that challenging my mind every day whenever I can helps my cognitive ability. I do puzzles, contribute to blogs, stay up to date on issues that concern me, write letters to my state and federal legislators, bird watch, post on FB, etc. I have had PD for more than 15 years.

emswife profile image
emswife

I have a p/t job which takes up some time about 6 days a week, so I keep my brain active. It bothers me that n spite of the intellectual challenges and stimulation this brings, some days I feel I couldn't "manage a bag of apples" or to use a British expression "organise a bun fight in a bakery".

tlongmire profile image
tlongmire in reply to emswife

LOL!! I feel your pain. :-)

srarndt profile image
srarndt

I've read that approximately 40% of parkies end up with Lewy Body Dementia.

(Generally PD specific)

Add that to the % of us who will, like the non-PD population, be suffering from all other types of dementias, and the side effects of our medications I would have to give you an affirmative answer.

But, NOT ALL IS GLOOM AND DOOM! Fight it, make it delay by rigorous physical and intellectual exercise!! More and more studies are singing harmony on this!

Steve (Bisbee, AZ)

in reply to srarndt

Good advise, Steve.

tlongmire profile image
tlongmire in reply to srarndt

Yes, very good advice.

mccshe profile image
mccshe

Oh my , disorganized and easily confused, not to mention losing things all the time! Frustration has become my middle name!

i don't take it lying down though. I continually try to learn new things.

Believe it or not I am still silly enough to believe that I can learn to play the piano which I've been at for approx. 2 years now.

Also there is a great site called Lumosity which has many types of games for memory and such, you should try it...It helps !

honeycombe3 profile image
honeycombe3

Emswife,

I went through a very bad patch in this area with gradual deterioration of my cognitive faculties until I pressed the panic button as I thought dementia was setting in. I'd had the odd moan at my regular clinics but it took floods of tears to break through to my support team. It was the PDS nurse who looked at meds & told me she had come across this before in patients taking Orphenadrine (Disipal) for PD. I came slowly off it & my cognitive function has improved. The downside is that nothing else has been so effective in managing the tremor,rigor & pain

JerriB profile image
JerriB

Yes, and this is why I am on disability and unable to continue my career as an E-Learning Producer/Programmer. Computers simply do not run if you cannot program correctly :), but I don't dwell on it. I currently take a cocktail of Providual, Azilect and Sinemet first thing of the morning and that keeps me focused and pretty good throught the day, with Sinemet two times more per day. We also play a lot of board games and cards that challenge my brain. This seems to help also. In the evening I see the dementia creeping back as the meds wear off. I am like most this is more frustrating than Parkinson's.

emswife profile image
emswife

thanks to all for reassurance. Im not losing my marbles without a fight, although I too cannot return to my f/t lecturing post. I miss it, but Im philosophical, at least Im beginning to come to terms with having to give up that job.

Susie01 profile image
Susie01

My cognitive function has degressed faster than my physical decline. It is really difficult, I also have had more difficulty with speech in the last 6-8 months.

i am 42 y/o. went through dbs surgery. been dx for over 10 years. i am moving away from my family in a couple days. wife says im not the man she married from cog decline. having to relearn to live, now alone. didnt do much for my depression.

S70AWD profile image
S70AWD

I see this was published five years ago. How has it gone since then?

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