Vitamin B treatment

[134A]

Vitamin B treatment

Has anyone had experience with thiamine (vitamin B-1) treatment for PD

[ion_ion]

Do a search on the site and you'll find a lot of info!

[134A in reply to ion_ion]

Thanks I already have . It looks very promising!

[Hidden]

Diagnosed 2012

My regimen:

The positives after B1: no bradykinesia, I cut my food with a knife, no button difficulties, brush my teeth now w/o needing elect brush, more strength. Getting in and out of bed, turning over is easier. No more constipation. Parkinson's progression stopped. Suppressed most motor and non-motor symptoms...

Entering my 9th year post diagnosis and have not fallen, not once, to the surprise of my neuro.

I follow this regimen:

My neurologist. She prescribed one tablet every three hours (25/100 IR), and one 50/200 CR at bedtime.

Just completed the first night (12/30/2020) with this protocol. Can say the doctor was right. Smaller doses more frequent. Keep the dopamine at even, consistent level without extreme highs. Best nights rest in a long time. Lot less tremor. In my eight years since diagnosis, no dyskinesia, no falls. Current (Nov. 2020) Push Pull Test only one step recovery. See video of this test under Announcements. Click See All. FaceBook group, Parkinson's thiamine hcl

2 x day (6 a.m. 2g, and at fourth hour 2g) vitamin B1 (as thiamine HCL) 500mg easy swallow capsules.

Magnesium L-Threonate 144mg per week.

Doxazosin causes constipation. Not recommended.

Pramipexole 0.05mg, once nightly. Caused edema. Not recommended.

B1 Thiamine therapy reference / stop progression, suppress motor and non-motor symptoms:

(Thiamine HCL is oral substitute to injecting B1) 2 x day (morning 2g and at lunch 2g)

Doctor Costantini strategy that I find helpful "thiamine hcl stops the progression forever...".

Parky people say the first five years is your honeymoon stage with Parkinson's. After that, progression more rapid.

I have gone from slow motion to normal motor action since joining the growing number of PwP that have started B1 regimen/protocol. –

Doctor Costantini - “Why is this? Because there is no medicine or drug that is able to affect all of the organs, whereas all of the organs function thanks to Thiamine. An important detail”, adds doctor Costantini, “the Thiamine therapy brings no collateral damage with time”.

[134A in reply to Hidden]

Thanks RoyI sent that information to my ND

He recommended this

youtube.com/watch?v=Fx6MQpO...(Not working as expected?)

Might be a better version?

[Joanne_Joyce in reply to 134A]

Has anyone found this more effective? Is it worth trying?

[ddmagee1 in reply to Hidden]

Roy, I’ve been on this B-1 therapy for a year now, and it seems to be starting to work, just like you’ve stated! Perhaps more studies need to be done proving the benefits of B-1 therapy! Since I am not a pro medical person, or researcher, I am not qualified to give advice; however, since I am a PWP, diagnosed by 3 qualified medical Physicians, I can only vouch for what B-1 therapy has done for me! I am beginning to feel like I have a new lease on life! Hopefully, this improvement will continue! I, also, take other B vitamins, COQ10, magnesium, and other vitamins.

[Hidden in reply to ddmagee1]

"Parkinson's disease"

Vitamin B1 use instructions :

Join my Facebook group Parkinson’s thiamine hcl

m.facebook.com/groups/23226...

Parkinson’s relief web page.

Once in, go to Announcements, click See All- Guide.

[Aquateal]

Hi! I tried taking Thiamine (Vit B1), but didn't notice any difference in Parkinson's symptoms. I gradually worked my way up to 1 g. a day, but I didn't notice any lessening of my symptoms, so I stopped taking it. I don't know if it would have helped if I kept taking it, but the pills are extremely bitter and it causes your pee to reek!!

[chartist in reply to Aquateal]

Aquateal,

On this forum, it has been found that the effective dose of B-1 for PwP is as low as 25 mg/day to as high as 4.5 grams/day. The length of time to find benefit is anywhere between the day you start to as long as 7 months to see the first benefit.

As with all things PD, nothing works for everybody all the time, but B1 has shown benefit for the majority who have tried it. The following is a link to the benefits that forum members have reported that they have gotten from HDT/B1 :

healthunlocked.com/parkinso...

Art