My husband got the first shot of Covid vaccine on Saturday at noon. By Sunday morning, PD symptoms were much worse ... bad tremors, unable to get up from a seated position without help, and much more trouble walking. On Monday morning he was much improved and pretty much back to his baseline. I am wondering if any other PD parents have noticed this type of reaction? Perhaps I should let the Health Department know of this reaction ....
PD symptoms much worse after getting ... - Parkinson's Movement
Hi, depending on where you live I definitely would let the health department know. I talked to my neurologist’s office this morning and they said that they recommended that a person with PD get the shot but I have heard a lot of comments about PD patients getting a shot and coming down with the same symptoms as you talk about. I have yet to get one just for that reason.
Thanks for sharing this information!
We were told to expect flu like symptoms for 2 days following the shot. My husband had no reaction; I was sick for a few hours the day after the second shot. Fine since then.
DO GET THE SHOTS. If you don’t, you are a vector passing on the virus to innocent others.
Yes! Definitely get the vaccine. The symptoms for my husband were over in 24 hours. He is for sure opting to get the 2nd shot. My post was informational. It was not to discourage anyone from choosing to be vaccinated.
The vaccine does not prevent transmission
When they say it's 95% effective, I thought that means it reduces your odds of getting it by 95%?
Yes it reduces your odds of getting it. However, if you are carrying the virus on yourself and you touch /transmit to someone who didnt get the vaccine, the virus can begin to duplicate on an unvaccinated person. You on the other hand will have the antibodies to fight it off.
95% effective hast to be understand like this (and I am fundamentally not against vaccination !)
((((But in the moment I have"to calm down other cats" >>> I had a rip contusi0n on my not P-side and first I took Voltaren dolo 25mg, and than I became Novalgin from the doctor and I now I have after using three days almost the same symptoms as your husband (!?!?)))).....not easy..........
And for march 2021 : still plan : to come to Swiss ??
So frustrating. I am sorry for what you go through. It’s sad for someone who loves someone with Parkinson’s to watch them have to deal with it all😢
Thanks for the article.
It says, "Out of these 170, 162 had received a placebo shot, and just eight had received the real vaccine." While 95% who got the placebo got the virus. Probably I'm a little slow, but that does not explain to me what 95% means -- if it does not mean you're 95% less likely to get the virus.
We moved the date back cause of COVID. We now arrive in Zürich in the middle of the afternoon on May 2, departing May 6. Also, we have to buy our airplane tickets on the presumption that we will have to self quarantine for 10 days upon arrival, so if that is not a requirement in the middle of April, maybe we can visit during that week as well
Hi Marc. Is the May trip for evaluation or for the actual surgery?
The procedure. They already did the evaluation for the procedure I had this past past March, altho they want to follow the same full week schedule, so they must have some testing and evaluating to do. I doubt my skull thickness has changed, so maybe I won't have to do more MRIs.
We've already bought nonrefundable air tickets, so now, needing something to be anxious about, I'm worried that the mutations will interfere.
In the UK nobody is saying that any covid vaccination prevents you from getting in. It’s meant to make it less severe if you get covid. Where did you read that it’s 95% effective at preventing you from catching covid MBAnderson?
That comes directly from Pfizer and Moderna
"In briefing documents submitted to the FDA, the Moderna vaccine showed an overall efficacy of 94.1% in preventing COVID-19."
"New Pfizer Results: Coronavirus Vaccine Is Safe and 95% Effective"
It is true that people who have been vaccinated can spread the virus, but if we are 95% less likely to get the virus, we are 95% less likely to spread it.
Ok in the UK we are being told that covid vaccines won’t stop you getting covid, they will just make it less severe.
I do believe it is true a person who has been vaccinated can still get the virus and is also true that they're less likely to get the virus.
Our government are giving us really mixed messages. I don’t know what to believe anymore!
Who in the UK is providing the information, the politicians or the scientists?
That Harvard paper has tons of information and is I believe reliable.
I read it a few days ago. Bottom line, even after we get vaccinated, we should continue with the same exact precautions, because while the likelihood is greatly diminished, it is still possible.
I heard an epidemiologist on the radio say none of the vaccines will end the pandemic. She said the government need to step up as they know what they need to do.
An epidemiologist said the government knows what to do? That's a twist.
I think the record is pretty clear that the government in the UK, while better than the government in the US, is not much better if you count the number of times they've gone back-and-forth on restrictions.
I don’t think our prime minister is any better than Trump. I think he’s worse, if you can imagine that!
I do believe he is terrible, but it is not possible to be worse. If we went into mental institution and gathered up a dozen people into a committee and asked them to run the Covid 19 task force they do a better job than the United States federal government has done.
We have more covid deaths per million than the US. Apart from Belgium and Slovenia we are the champions of covid deaths.
I didn't know that.. Okay, you win. Ours is bad because he is not only stupid, but primarily he is seriously lazy. Is BJ also lazy?
BJ is very lazy. He didn’t even turn up to the first emergency ‘Cobra’ meetings last spring. He’s not stupid, he’s a sociopath.
I believe if a computer randomly selected the president and the cabinet from the general population, our country would be better off.
At least you have some hope now. We have at least 3 years until we have an election.
Your information and citations are misleading. Read the clinical trial reports. These trials were far too short. We won't know for months if any of them truly prevent infection or reduce mortality in the critical age cohorts.
Right now it is just a guess.
You must be referring to the description of the trials in the New York Times and Harvard articles? If so, I didn't write those articles so I have not posted any citations. If their content is misleading, why don't you send them an email and point out where they are wrong and you're right.
Agree. Still need to wear a mask etc.
There is video in the link from Mayo Clinic which is the demonstration of why mask are effective.
“We found the most important measure for reducing the risk of exposure to COVID-19 is to wear a mask," says Matthew Callstrom, M.D., Ph.D., chair of the department of radiology at Mayo Clinic in Minnesota. "We found that both disposable paper medical masks and two-layer cloth masks were effective in reducing droplet transmission and we did not find a difference between mask types in terms of how well they blocked aerosol particles emitted by the wearer."
“Reducing disease spread requires two things: first, limit contacts of infected individuals via physical distancing and contact tracing with appropriate quarantine, and second, reduce the transmission probability per contact by wearing masks in public, among other measures. The preponderance of evidence indicates that mask wearing reduces the transmissibility per contact by reducing transmission of infected droplets in both laboratory and clinical contexts. Public mask wearing is most effective at stopping spread of the virus when compliance is high. The decreased transmissibility could substantially reduce the death toll and economic impact while the cost of the intervention is low. Thus we recommend the adoption of public cloth mask wearing, as an effective form of source control, in conjunction with existing hygiene, distancing, and contact tracing strategies. We recommend that public officials and governments strongly encourage the use of widespread face masks in public, including the use of appropriate regulation.”
The Mayo Clinic is not collaborating with laboratories and hospitals in Scandinavia which are not collaborating with laboratories in Eastern Europe to all share the same talking points to run a scam on the the aggrieved class in the United States and if you think that's not true, then you have problems worse than Parkinson's.
depending on the type of vaccine, after the shot, vaccinated people may be infective, so need to stay in quarantine avoiding contact with weak people. (pls read the drug package leaflet)
I don't understand why this is not known by vaccinated people and undervalued (and untold during pre-shot conversation) by practitioners. Vaccinated people usually don't stay isolated in quarantine after the shot and they risk to spread the virus more than un-vaccinated healthy (no-symptoms) people.
This is crazy. The most of the last Poliomyelitis Disease outbreak are vaccine-derived.
See the WHO link: who.int/csr/don/archive/dis...
But the most of the people believe that the viruses are spread around by un-vaccinated people.
Doctors should be well aware of this but many of them don't inform patients.
This means to me that many polio epidemics are spread around by vaccines and vaccinated people, while un-vaccinated healthy people are wrongly considered responsible
This is related to live (not mRNA) oral (not injected) polio vaccine. It is rare and should not be generalized to all vaccines. Not being vaccinated against polio is far more risky than being vaccinated.
I'm not so sure. I knew quarantena was required for virus weakened vaccines and not for inactivated and mRNA vaccine. In Europe vaccination campaigns started in dec-2020 and we are recording many positive cases after Pfizer covid vaccine (mRNA) shots. Discussion is rising.
Info on media are in conflict; for COVID testing phase has been too short and results will be released to public in 2023/2024. Until that date and (hopefully) the official approval by authorities, the product is experimental and we have to rely on declarations by producers.
However... too much money involved.
Exactly, the statement that vaccines are safe and effective is not true. All vaccines come with risk just like all drugs. They are not effective and that is why most require booster shots. It is also true that those that get vaccinated can shed the virus especially in the first two weeks of vaccination.
As long as they keep these viruses alive in labs and keep injecting them in our children we will never get rid of these diseases. Vaccines only cause more mutations of the virus. But this COVID vaccine is only called a vaccine so that the medical community would readily accept it and force in on the people. Actually it is a medical device you can find out more on Moderna's website where they compare it to the workings in a computer.
Even Fauci said that it would not stop the spread of the virus...so what is the point? They really don't know what this will do in our bodies...this is all an experiment on humankind. Personally I believe that this is no different than all the inhumane experiments Hitler did. But it is all done under the disguise of doing good.
However, with all the censoring and propaganda in the media we will not be told how many suffer injuries or even death from this human experiment. We really all need to be concerned what is happening in the world and our own country...we are no longer being protected by our U.S. Constitution. The 1st Amendment might as well not exist.
No government or medical institution should have the power to coerce or mandate a medical procedure on anyone or anyone's children without their full knowledge of the risk involved and without their full consent. And beware how the media turns us against each other. They are using FEAR to control us.
When man messes with God's creation he destroys it. All these contagious diseases, like measles, mumps, chicken pox were in steep decline before they came out with all these vaccines. Why? Because man's living conditions greatly improved. They use to live in crowded conditions with no indoor plumbing etc. It was very unsanitary and that is why diseases spread so quickly and killed so many.
But unfortunately we were made to believe that it was the vaccines that worked to eradicate these contagious diseases. While always being sold the lie that they are safe and effective. Today Big Pharma and other corporations are running and controlling our world. Just look at all the ads in magazines and on TV.
You should know that it was not too long ago the the vaccine manufacturers went to Congress because they were experiencing too many lawsuits against them for injuries. They asked Congress to protect them from all liability. Our children are mandated vaccine to enter school. It they get all the vaccines that the CDC recommends they will receive 16 vaccines and 72 doses by 18 years old.
I got all (what we called then) the typical childhood diseases, measles, mumps, and chicken pox and now I am immune for life. Vaccines were intended to work the same but they don't. I may also have gotten polio as the greatest number of people only experienced very mild if any symptoms, similar to this virus. But this is not the story we have been made to believe. Scientist now believe that who experience the the wild virus of these diseases have a stronger immune system against other diseases and some forms of cancer.
So, Congress passed a bill to protect them and we the taxpayers help pay for injuries through the Vaccine Compensation Program. But it is not easy to get compensation for any injuries. You must get your own lawyer and fight for it. Only 1 to 10% of vaccine injuries are even reported on the VAERS CDC's reporting system.
Therefore the vaccine industries have nothing to loose. They are not held accountable for any injuries their products may cause. Think how much money you would make having a product that everyone is recommended to take and that has no liability for any injuries. And people actually think it great that the government is footing the bill for this vaccine. Don't they know is their own tax monies that are paying for it? Beware FEAR travels faster than disease it also is the enemies tool to divide and control.
Sorry, I didn't mean to go on so long.
National Vaccine Injury Compensation Program
Monthly Statistics Report
Updated 01/01/2021 Page 8
Awards Paid (see $ value on last page)
Sorry Hikoi, I meant no offense. I am new to all this. I don't do the social medias and this is the only blog I belong to. Hope you got some good out of what I shared. All these things can be very controversial. I am only sharing what I have learned about the vaccine issue. Everyone has to check the truth out for themselves. But unfortunately the internet is being more censored and filled with so much propaganda that it is becoming harder and harder to find the truth.
Trailing. We don't all live in the US! What does ‘our’ US congress and the first amendment got to do with 50% of people here?
I'll let you know if I have a reaction on February 6. There are a few threads with info about PD and the vaccination.
Just had a consultation with my MDS. He told me that :
1. They already have data that shows that PwP's recover more slowly than the general population after contracting the virus.
2. The data also shows that PwP's are at no more risk than the general population with respect to the vaccine.
Given the above information, he "strongly recommended" that I get the vaccine when it is offered.
Just for perspective, this is the Center of Excellence at UCSF San Francisco CA. Surely, they have enough data to support their recommendation?
Got shot No change in my symptoms.
I'm glad you recognized an adverse event from the COVID-19 vaccine. It needs to be reported to VAERS, where these incidents are tracked. Here's the link: vaers.hhs.gov/
My husband, with PD had vaccine and had no side effects. I don’t have PD and felt most side effects the next day. In U.K. we re told that we could still pick up COVID and pass it on so rules still apply to us as mentioned above.
I never had any side effects after the first shot of the Pfizer vaccine. Second one is due in the beginning of February. I asked my neurologist who said it was recommended to get vaccinated.
I know of NO MEDICAL DOCTORS who don't push for vaccinations! My mother passed away as a result of the FLU SHOT.
This is awful. Personally I had flu vacation for many years and it was worked as intended. It is a very personal choice of course.
Thank you. When a very dear immediate family person dies because of the flu vaccine, is there anyone to convince me that flu shots have no side effects?
I am so sorry to hear of your mom's passing. All vaccines have side effects, including possibility of death. This is true for all medical interventions. There is always risk of complications, infection, etc. which may lead to death. It is so hard when our loved ones die trying to be healthy and protect themselves. The irony and subsequent anger is natural and challenging to process. May your mom bring you comfort from heaven. Hugs.
I got my tremors worsening even with the flue vaccine...but passed after a few hours. I guess anything tjat stresses the system gets a depletion of dopamine. Yes. It would be wise to notify the health dept so they could warn other patients on what to expect. Hope your husband is all right now.
Received first Moderna vaccine on Saturday. Other than a very sore left arm on Sunday (helped greatly by 2 Tylenol), no reaction or impact re: PD symptoms.
Was he stressed about getting it? My symptoms always seem worse when I’m stressed about something. My 89 year old mother received the vaccine last Wednesday and is feeling great, she has some autoimmune issues but not PD
He was probably stressed about. Emotions in any way affects his PD symptoms ... anxiety, happy events, sad events, anger ... nearly always affect the symptoms negatively.
know what? I have Covid the disease right now. I am typing this from bed and I am miserable. And my pd symptoms are MUCH worse. I am having trouble with the keys. I can’t stand up by myself. And it’s been a week.
I say: get the vaccine. I tried....in my state you have to be over 65. If you are lucky enough to have access for heaven’s sake do it!
My husband also had the Covid virus also. He ended up in the hospital with double pneumonia. Luckily, he did not need oxygen treatment. He was back in the emergency room two weeks after that with a partially collapsed lung. Be aware of your breathing. If it feels stressed, go to the ER.
Oh my gosh, so sorry, amykp. My elderly mom had it and was in the hospital in misery. She's okay now, but like you was bedridden and feeling awful. Healing thoughts to you.
Thanks. I am lucky I will be fine! I'm just annoyed listening to folks trying to convince others the vaccine is too dangerous--after I tried so hard to get it and couldn't.
Yes, that would be pretty annoying, especially since you tried hard to get the vaccine. I wonder if folks don't always realize the severity of illnesses like Covid or even the flu. But I know re vaccines it's scary too -- more chemicals in our bodies. But it still seems better than the actual illnesses, which can cause way more damage. Good you have docs in the family. Make them pamper you :). Soon hopefully, feeling so awful will be in the rear view mirror and you'll be back to yourself.
I know folks are scared. Really though, we are exposed to chemicals everywhere--unless you live on a far-off mountaintop and eat only what you grow, there's not a lot of point in singling out vaccines.
As my husband likes to say: of course vaccines have risk. But you probably put yourself in more risk DRIVING to get one. And if you ever don't wear a seatbelt? Hundreds times more risk.
But that's not even what bugs me--it's fine to refuse one yourself--just don't try to convince others!
He and you make really good points. Funny how we hate to fly but are okay to drive, which is riskier (before Covid). Yes, it can be hard if you've decided to take it and then get the arguments. There are too many voices clamoring in our heads nowadays, I think! I'm all for vaccines; especially since more viruses will pop up in our modern world as we go.
I agree with you exactly. I think it is a matter of control. Nobody likes to feel out of control.
And everyone fears the unknown.
Thanks, btw, for the chat. It is taking my mind off myself!
You put it exactly right. We fear loss of control and boy, the world is out of control now. And we already have PD to deal with. Talk about lack of control LOL. Hey, any time: glad it's helping/helped. !!
amykp, So enjoyed your input and outlook! If life was different and we lived closer, we could go for walk and have a cup of tea or coffee and solve all the problems of the world🤣😂. Well, maybe a few of the problems our own lives🙂. Hang in there! As my Mom would always say, “this too shall pass”. She was right, however, once this stuff passes, there is more sh-t to come😜🤪!
Hi Amykp,How are you feeling? Better I hope, but I know it takes time. I hope you’re at least feeling less miserable, or actually feeling much better.
Actually, today much better thank you. After the last post I basically stopped moving/writing/thinking--it hit me like a truck.
This morning I put on real clothes and actually planted two tomatoes and onion starts in the garden. And cooked dinner.
Thank God. And thank you for asking :o)
Oh, I’m so glad. It sounds awful. But thank goodness you’re better and how nice to get dressed and do stuff again! Yay! Always think it’s nice after you’re sick when you can take a shower and change sheets it’s like wow I feel so wonderful. I’m glad you feel better though. Good news!
I have a pulse ox--the little thing you put on your finger. I have to say I do feel breathless but I keep checking and it's been ok.
Did he have an appetite? My daughter (who gave this to me thank you) couldn't stop eating. I am nonstop nauseated. And I am exhausted--like I'm perpetually running up stairs.
BTW whoever said it--you are NOT contagious from the vaccine. And my husband who had both shots, does NOT have to quarantine...even though I have it. (He works in a hospital!)
But he does have to wear a mask, just in case. FYI.
We have the pulse ox thing too🤗. He never complained of chest pressure or shortness of breath. His oxygen levels were not great, but not awful either ... 92, 93, 94. But he was acting a bit weird ... kind of unsettled, confused, he too was exhausted and just could not rest comfortably. I was up with him all night just keeping an eye on him. Had a video meeting with his primary doc which was a waste of time. Decided to take him to the ER in the morning and after tests and X-ray, they admitted him. I had called Urgent care and they said to go straight to the ER and actually get him some real face to face medical attention. Think about it ... if they say you are okay, that will be comforting in itself.
Hmmm. Well, I am lucky in that my husband and my brother are both dr's...although I have to say my husband is convinced I am malingering in order to get him to deliver tea in bed and my brother wants him to bring home an IV 🙄
Actually, you are right that oxygen is what they are both most concerned about.
Thank you, btw :o)
Get my 1st Covid shot about two weeks ago and I felt a little more exhausted then normal for 3 days.
Got my first COVID shot over a week ago. Zero side effects or symptom changes as a result. Psychologically, I feel much better to have received it.
Most symptoms people report seem to recede after a day or two.
By the way, for anybody who still doesn't know, 95% effective means that from this point on, out of 100 consecutive people (who had not previously been infected) getting the shot, 95 of them would not develop symptoms upon subsequent infection. It doesn't mean that in your own case you would develop 5% of the symptoms or 5% of the possible ¹00% of severity.
Sometimes another illustration portrays that if you, yourself, if you hypothetically had been given the shot 100 times, 95 of those 100 times you would not become ill or have other symptoms upon being infected or reinfected with the virus, having from the shot thereby stimulated your immune system to generate antibodies which would inhibit the virus upon infecting you. It does not mean that you cannot transmit the virus to others. Thus, 95% means that were you to take a shot, and you were cloned so that 100 of "you" existed and each were given the shot, then in five of those 100 times taking the shot those 5 of your clones would not be protected from harm from being infected by the virus.
There are still problems with that second illustration though, since obviously there is no such thing as one person taking the shot anew 100 times (since upon the first shot you are then spoiled from being a clean subject after that), and then also since there is no such thing as every 100 people being infected with exactly the same form or mutation or variant of virus in the wild, the rating has to do with group statistics, meaning a probability withing groups of persons. There is no "95%" in the sense of some phenomenon within any individual person, i.e. there is no getting 5% of how sick you could get, it is not some percentage of symptom reduction or something else to occur in any one patient, it's not about an individual patient, so it is not some proportion of your own individual case.
It simply means that out of every 100 people in the door given the shot, 95% of them, on average, will be completely protected in their own selves. It also does not mean that you could not transmit, just that you would be immune from its effects in your own self. Now in the hypothetical occasion that your individual person had 100 clones (actually 99 clones to be more correct) one could illustratively say that In your own person, you would be completely immune from its effects 95 times out of the 100 times you take it, and correspondingly, in the remaining five times the immunization would be 100% ineffective in preventing you from becoming sick the other five times...
By the way, even using that hypothetical of a hundred "you's" would actually also not be truly correct, since we would have to grant that the biology was exactly the same amongst them, and the biology of the immunization samples also were identical to each other, and finally that the subsequent viruses you encounter were identical each of those 100 infection samples...and we know that in the human bodies and infecting viruses mutations inevitably can occur. So the cloning example eventually fails at some point.
So if you are much less likely to get symptoms but still able to transmit it then isn’t that quite dangerous? Asymptomatic transmission?
Yes exactly, until the virus has been neutralized by your immune system antibodies. I don't know how long that would be, probably not long as the virus has no way to thrive, I'd ask the local public health authority...especially now that there are multiple mutant variants.
Also immunity via either post-infection or -immunization is not known to be permanent, so the health people may have an idea on how long is known thus far, and if you caught it before vaccination and haven't been vaccinated yet, then perhaps your naturally derived immunity might then be perhaps up to 8 months as currently reported. And of course no one knows yet if it will require periodic boosters or new vaccines for the new mutations and variants as time goes on (like we must do for flu).
I got the Pfizer shot yesterday. Some soreness in my arm otherwise fine. Opted in on V Safe which reports to the CDC how I’m doing. Next shot mid February.
Yes agree Not going to let up this late in the game
If the human race is going to get wiped out by 1 of the dozen of mutations of Covid 19 or the very next pandemic that's going to come along, it won't be the virus that does it.
It will be our own stupidity.
We will of had a shorter run this planet than did the dinosaurs and they were really stupid.
Well that was uplifting.
The same thing happened to me but it took several days to get back to normal.I am scared to get the second one now because it is even sronger i heard
Yes, my symptoms got much worse during the night and the day after my first dose. Yours is the first reference I could find to this happening. The next day I felt back to my normal state. Thanks for posting, it was a relief to see that someone else had experienced the same. I'm still all in favour of having the vaccine.
Try not to worry, we live in scary times and its tough on everybody. Apparently side effects from the second dose seem to be milder although it looks like more people will get them than they did with the first. Some of my friends felt as though they had pretty bad flu for about two days and it looks like, from your husband's experience and mine, that our increase in PD symptoms only last as long as everybody else's flu symptoms.The NHS website in UK says side effects will not last longer than a week - I don't know anybody whose side effects lasted that long. Having bad PD symptoms is not something to look forward to but at least we know it wont last and we can keep safe until they go away. I tried going for a walk before i realised I was about to became immobile and I barely made it back to the house. It's worth it - Covid will make people like us with PD sick and we will suffer horribly for weeks followed by death. Thanks again for your post, I was so relieved to know I wasn't about to lurch into another horrible phase of PD. lots of love
I have gotten both vaccine shots (Pfizer), I'm 67 yo and have had PD for ~10 years. First shot, arm was sore and very mild chills that night, by morning, back to normal. Second shot, nothing, a little soreness at the injection site, worked all day and worked-out that night. I would highly recommend we all get the COVID-19 vaccine(s), side-effects mostly have been minimal (mine were less than the yearly influenza vaccination). Good luck all, we need everyone to help us get to “World Herd Immunity!” Frank
As a PWP, I had a couple days of mild arm discomfort, after the first shot, as an only symptom. After my second shot, it was a different story. I had 3 days of muscle pain, and stiffness, in my legs and arms. My knees and shoulders, and rt. wrist, were sore, and hurting. I had some trouble with walking, and had problems with just a couple steps, walking up. I had mild chills, on the second day. All my symptoms dissipated, within 3 and a half days, after the second jab. I was back to my normal, PD self, after 4 days. So, in my case, some symptoms of PD flared up, after the second jab. These were all fairly mild symptoms, that were painful and bothersome, at times, but would not stop me from getting the vaccine! Getting COVID, would, for sure, be much worse, and I will not take that risk. I do believe that symptoms vary with each person, whether one has PD, or not. My wife, who suffers from heart failure, and metabolic syndrome, had just a couple days, with a sore arm, after her second jab.
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