CUE1 - a little gizmo to improve movement

[Dap1948]

Has anyone tried this? youtu.be/7cQ7XMQ2LWI(Not working as expected?) I merely post this for information. Perhaps it will help someone...

[Dap1948]

I apologise if it’s already been posted here!

[GymBag in reply to Dap1948]

no need to apologize. even if it has been posted there will be lots of people that did not see it. me for one, thanks

[Juliegrace]

First I’ve seen it and it looks interesting, thank you. However, it’s not available yet and will only be available in the EU.

med-technews.com/features/m...

[BootsOn]

I put my name on their waiting list at the end of September since it looks so promising. Not heard anything since.

[Fed1000]

Thanks for posting. I signed up for their news letters.

[alaynedellow]

Not tried it Daphne but it looks good. I wonder how to get one? I cann see the idea working. Thanks

[jeeves19]

Nice one Daffers, but it always worries me when an organisation won’t reveal the price! The revelation is often something of a shock.

[Dap1948 in reply to jeeves19]

I think they’ve only just finished trialling it and have not yet prepared it for market.

[Cbgs in reply to jeeves19]

Good one jeeves19!🤣🤣

[Buckholt]

Looks hopeful.

[Dap1948]

This is a link to the firm charconeurotech.com/videos/

[Rhyothemis]

The mechanism is called 'coordinated reset vibrotactile stimulation' - basically, the brain is getting feedback from the stimulation causing is to 'reset'. Here's a video - not sure if it is exactly the same as used in CUE, but the same principle:

youtu.be/bMVC5IcNxIM(Not working as expected?)

[jeeves19 in reply to Rhyothemis]

So are Stanford producing something that would be available to the public. The results are most impressive eh?

[Dap1948 in reply to jeeves19]

charconeurotech.comI suggest you check out this link if you haven’t already. You can put your name on a waiting list...

[Dap1948 in reply to Dap1948]

Sorry, that doesn’t follow on from your question about Stanford's different device, but check out the cue1 link if you haven’t already

[Rhyothemis in reply to jeeves19]

Casey H Halpern is listed as the PI for the clinical trial:

clinicaltrials.gov/ct2/show...

The PI for a publication on peripheral vibrotactile coordinated reset stimulation (PVCRS) for PD is Helen Bronte-Stewart and the researcher that appears to have done the most work on it (and co-author) is Peter A Taas:

ncbi.nlm.nih.gov/pmc/articl...

Of the three, only Taas has patents (as far as I can tell) :

patents.justia.com/inventor...

I can't find any related company information.

Cala Health, which makes Cala Trio, a device for essential tremor (and maybe in future PD?) operates on a different principle (I think of it as 'smart TENS'), is headed by Kate Rosenbluth, a Stanford grad with ties to Bronte-Stewart:

essentialtremor.org/wp-cont...

Perhaps Taas et al. are doing something to commercialize the technology, but in 'stealth mode'.

[Rhyothemis in reply to Rhyothemis]

I'm not actually sure how different the Cala Trio is, though. Rather than vibrotactile stimulation, it uses TENS that is dynamically modified by the tremor frequency (if I have it right). However, there may be signalling to the brain that causes the 'reset' phenomenon. And I'm not too clear on the details of how the 'reset' thing works. I hope someday one of these researchers does a talk that gets posted on YT.

[Sapeye2020 in reply to Rhyothemis]

There was a post here by catodd about a video on " vibro tactile stimulation " about 3 months ago sent to her by a friend, maybe a research aid , because she can not find it but she mentioned, I believe, Jimmy Choi, of that game where you have to jump on oversized balls etc, and he is also an Ambasador (?) for MJJFoundation, being in the video from Stanfield U. IIRC catodd said she saw the change of an exercise, pre and post Vibro tactile stimulation...Despe must have been able to find the video as she said " Wow! The results are too good to be true. "

[Sapeye2020 in reply to Sapeye2020]

I forgot but several Dr.s have demonstrated the same effect to music.

[Dap1948 in reply to Sapeye2020]

The effect of music on movement is two-fold. First the body has a desire to entrained to music, we want to tap our feet or dance. One of the origins of gait impairment in Parkinson’s is deficient internal timing. Music can help this. Secondly, music activates more areas of the brain than any other daily activity. It can activate an undamaged part of the brain to take over the control of movement. I discuss, very fully, how music can be used to benefit Parkinson’s symptoms in my book "Music as medicine, particularly in Parkinson’s". I'm not sure CUE1 works the same way.

[Rhyothemis]

ideas on why some PwP can ride bikes:

brainfacts.org/diseases-and...

[pvw2]

The small centrifuge in the CUE seems to be adding a neurological equilibrium to the people it is helping. I was unaware that equilibrium was that much of the cause of movement issues with PD.

[chartist]

Apparently it also shows benefit for fibromyalgia patients in testing :

arthritis-research.biomedce...

Interesting!

Art

[GymBag]

I have watched that video 4 times and I do not understand how it works . Can someone kinda give me clue .

[Dap1948 in reply to GymBag]

I don’t know if this helps...charconeurotech.com/how-it-...

[GymBag in reply to Dap1948]

That is what I needed and I would buy this for the medication reminder alert alone. I have continuous high pitch sounds in my head and can not hear alarms . This would be perfect. I signed up to be notified when I can get it here in Canada.

Thank you for posting this