Hello,
I work as a news writer for the European Parkinson's Disease Association. I'm interested in finding out how people with Parkinson's feel now that various COVID-19 vaccines are becoming available. Do you have any reservations about having it, or is it what you've been waiting for? Is it something you've raised with your clinician? I'd be really interested to hear your thoughts.
Best wishes all and thank you, Verity Willcocks
On one hand I can't wait to have it as I'm shielding and haven't seen my grandchildren for a year almost. But I'm very afraid of side effects
Hello Vwillcocks, as Kaykaykay123 said, I would like to make sure about any possible unknown side effects first. And even when that information becomes available, I would rather not take it. My neurologist hasn't mention the vaccine at all.
Bring it on, got enough on fighting the PD symptoms anything that is likely to prevent something else having a go at my health gets a green light from me.
Hi,If there is a single heavy metal in it, I wouldn't touch it with a barge pole.
That can destroy any good Parkinson's fight.
And the fact it's been pushed out so fast is just the biggest red flag
It's a hard never from me
Is aluminium a heavy metal? If that’s in it I will avoid.
It hasn’t been tested for long term safety and I have no idea if the vaccines have been tested on people over 50. The Oxford one hasn’t. I’ll let other people be the guinea pigs.
Will avoid it like the plague!
I'm a veterinarian, 35 years in practice. When I started my practice infectious disease was a major part of my day: Dogs with parvo, horses with distemper, all diseases that can be prevented by vaccination. 35 years of vaccinating animals these diseases are now quite rare. Being a Vet I've been vaccinated against Rabies virus. 90% effectivity means 10% chance of being an outlier, meaning a low chance of side effects of the vaccination: injection reaction, flu-like signs, etc. I'm 'champing at the bit' waiting for COVID vaccination to be available here.
For how long it's protection will last ? No answer yet. If it's to be repeated within months, I will probably not go for it. Not so much excited untill it's associated pros and cons are proven with the passage of time. We know that these vaccines have been developed in haste and on war-footing basis and everything done hastily have some flaw left in it
Before the PD diagnosis I needed surgery for an obstructed coronary vessel. The doctors insisted I have the flu vaccine before risking surgery. When I was in vet school we were human guinea pigs for experimental rabies vaccine. We were supposed to have two doses three months apart but titers showed antibody level was robust enough after two months that no boosters would be needed.
I'll take it as soon as I can get it. For one thing, Covid will kill me a heckuva lot faster than a contaminated vaccine, i.e., if it has aluminum in it, what is the arc of the damage compared to Covid? In addition, it feels a little bit to me like rejecting a vaccination is more about me me me, then other people.
In other words, if you do not get a vaccination and you do get Covid, how safe is your spouse?
I don’t have a spouse...
But you have two children, friends, neighbors, and strangers count too
A lot of the comments are phrasing the VaccineS as if it is a SINGLE vaccine, ie I heard on the news that the Russians are wanting to sell their Vaccine too, and that makes it about 10 that are out there now, that we know about, so making a statement like " I will avoid IT" is not correct until you KNOW what is in all of them or just the one you may be able to get... The details will come out eventually, so sit tight the manufacturers have a lot of work to do...
As to getting a shot, I estimate it will come to our small 10.000 +- residents later than sooner. Till then we are hunkered down, a bubble of 2... 3 if I count Henrik the dog.
Oh forgot the wife is allergic to thymerserol (Sp?) her call...
I’m for it. Having seen two (younger) friends suffer from Long Covid I would rather have the vaccination.
Yes on vaccine.
Western Colorado...peoplre believe corona is satanic posession and do not believe in vaccines , masks, nothing like that. I wont get it i have had covid and prefer to die but do beliieve in vaccines and dont believe in the dvil....im whats called a rarity around here..............this part of the country in U.S. is a toilet hole.............
Can't wait for it to be available. Possible long term problems against covid 19 -no contest. I have lived with Parkinsons for nearly 20 years and want to live a bit longer yet with my husband who is on immuno suppressive therapy. I was a family doctor for 20 years before early retirement and was well aware of the positive benefits of vaccination as MBAnderson posted . Time soon (hopefully) to start living a more normal life-each year of good quality life is treasured.
Not in any rush, but down here in the western end of the South Pacific we've the benefit of very low case numbers and a generally compliant population.
If i was in the USA i'd be camping out overnight to get it the day it becomes available.
VW,
I would be willing to take a vaccine once it has a proven track record and that would be years of testing on humans, not days, weeks or months. Until then, I think the regimen I have in mind for Covid-19 /SARS CoV2 will be effective enough to get my family, friends, others and myself through to that time that a vaccine has proven its safety in humans. I am willing to experiment on myself, but that is with things that already have a proven good safety profile or better. A Coronavirus vaccine has never been done before and I am not interested in being a guinea pig for a huge corporation that has zero liability for a vaccine that is essentially untested in humans over many months or years. If people have a bad reaction to this vaccine months or years down the road, they are essentially on their own.
Art
Would you be willing to share the regim you have in mind?
I have posted it in the melatonin/Covid-19 thread and have written about parts of it.
1. I will use high dose melatonin (HDM) @1 mg per kilogram or higher based on Dr. Neels experience in over 1,000 of his Covid-19 patients as well as studies which have more clearly defined the role of melatonin as it might apply to Covid-19 as well as personal experience in my friends.
devinenews.com/dr-neel-intr...
2. I will use Xlear nasal spray with grapefruit seed extract and xylitol @ 2 squirts per nostril 3 times per day Based on a very small clinical evaluation that I posted about here :
healthunlocked.com/parkinso...
3. I will use colloidal silver via a cold process vaporizer/humidifier, based on a recent study showing that AgNPs are capable of disrupting the SARS CoV-2 virus membrane at as low as 1 part per million.
ncbi.nlm.nih.gov/pmc/articl...
4. I will drink colloidal silver at 10 to 20 mg per day based on my own use and experience with it it over years at relatively high dose
ncbi.nlm.nih.gov/pmc/articl...
I am not recommending that anyone else try this as it is untested. The first one is tested by Dr. Neel.
The second one is only tested in a small group of people with Covid-19, but people have been using this excellent nasal spray for years.
The third one I have tested myself multiple times for colds, flu and other illnesses.
The fourth one, I and others have previously tested for other bacterial and viral infections over years.
Imo, the first 2 items will be effective on their own, the second 2 items are to put more pressure on the virus to try and destroy it as rapidly as possible in order to try and avoid future health issues that are starting to pop up months after people have supposedly recovered from Covid-19. Imo, destroying the virus as quickly as possible before it has a chance to damage or worsen a preexisting health condition is proactive and useful for my health.
Art
Hello chartist ~ have you looked into supplementing with Qurcetin? Dr. Mercola has good information about covid supplementation for preventative and treatment if you do get it. My husband’s (he’s the one with Parkinson’s) ND has kept him on the the Qurcetin supplement. I can’t remember all of Dr. Mercola’s covid protocol, but he does have some good information.
Hi Lizzy9,
I have read about and tested quercetin which is thought to help zinc compete for the docking site (ACE2 receptor)that the SARS-CoV2 virus attaches to, to hijack cells to convert the machinery of the cell for viral replication . This is only theory and not proven. While I believe that quercetin can offer health benefits and is synergistic with HDM, on its own or even with zinc, I do not believe it is nearly enough to fight the virus. HDM is proven in over 1,000 of Dr. Neel's Covid-19 patients to rapidly reverse the effects of the virus and reduce symptoms, prevent the cytokine storm, Covid pneumonia and the need for a ventilator. On top of that it also has shown the ability to reduce deaths when given to patients already on a ventilator. None of the currently readily available drugs like Remdesivir, Hydroxychloroquine or Faviparivir have shown that ability.
Dr. Neel uses HDM with high dose vitamin C and High dose vitamin D, but has clearly stated that he feels melatonin can be a standalone treatment for most cases of Covid-19. He also said that he has run into a mutation of Covid-19 that brings diarrhea and more gastro issues with it and melatonin worked well against it.
My thinking remains that the combination of HDM and Xlear Nasal Spray can be a good way to get over Covid-19 as quickly as possible and I further believe that this combination is a good backup plan in case this virus that has shown the ability to mutate frequently mutates beyond the ability of the current vaccines to control it.
This is a simple and inexpensive treatment plan that I have written about extensively here :
healthunlocked.com/parkinso...
And here:
healthunlocked.com/parkinso...
One of the aspects of the after effects of Covid-19 is that people are showing up with complications from the disease months after supposedly being clear of it and I think melatonin may also be useful in preventing some if not all of these complications based on numerous melatonin studies that indicate as much. Obviously the currently used drugs do not do this as the patients treated with these drugs still show longer term complications. In Covid-19 autopsies, the disease has shown itself to attack the brain, liver, kidneys, lungs, heart, eyes, skin, spleen and much more and this is an incomplete list! Melatonin has shown protective effects for all major organs of the body. A recent article has even suggested that melatonin may help the vaccine work more effectively.
news-medical.net/news/20201....
Here is a quote from the article : >>>A team of researchers at the University of Toronto in Canada has found that melatonin can be an adjuvant to augment the efficacy of anti-SARS-CoV-2 vaccines. They believe that the drug is a potential “silver bullet” to combat the COVID-19 pandemic.<<<
Art
Art, you are a great spokesman for melatonin. Thank you for doing this.
Another great drug is Ivermectin. Has been used by billions of people around the world. It is a safe drug. It is also being used as a prophylactic against covid-19. You can Google it if you want more information.
Mary
Thank you, Mary!I have only read a little about the antiparasitic drug, Ivermectin. It is also thought to have anticancer effects. So I can definitely afford to read some more about it.
One of the things I like about HDM is that it can potentially protect against the after effects of Covid-19 and nobody is really addressing that issue very much yet, but it will need to be addressed at some point and preferably soon.
Art
Lena warned me about ivermectin being a neurotoxin
Yes, I have seen the warning. It actually has significant side effects that I consider somewhat in line with Remdesivir. Here are side effects for Remdesivir:
mayoclinic.org/drugs-supple...
Side effects for Ivermectin :
mayoclinic.org/drugs-supple...
So in the world of Covid-19 drugs, I do not consider it to be worse than Remdesivir, but I consider melatonin to be a much safer option than any of the popular Covid-19 drugs.
Side effects of melatonin :
mayoclinic.org/healthy-life...
I consider the Covid-19 drugs to have the potential to be neurodegenerative , but I consider melatonin to be neuroprotective and protective of all body organs which have been shown to be under attack in Covid-19. So for me the choice is simple.
Art
Hi Art, this video has a lot of good information.
Our two grandsons, they are both on their own, recently had covid 19. They had it at different times and live in different states. We did not know about it until after the fact. As far as we know they don't have any lingering effects.
Mary
Yesv I would have the vaccination. We don't know the long term effects but neither do we know the long term effects for those who recover from covid
I’ll definitely take it. Regarding side effects, the fair comparison should be against getting the virus with potentially serious long term effects, not assuming you remain healthy.
I’ve had my first shot and scheduled for a second on February 9th. So far PD symptoms the same.
I decided to take it because I’ve had throat cancer, in conjunction with PD I have slight swallowing issues. Three strikes and your out.
NONE of these "vaccines" have been tested for contra indications with PD meds do consider them lethal.
Since the vaccine has NOT been evaluated for contra-indications - pharma has received immunity from liability for exactly this reason. Vaccination is dangerous because of these indications
JR
COVID vaccine?
Covid vaccine
Another Study Finds A Link Between Covid-19 and Parkinson's Disease 
Where are all the recent posts questioning the side effects of the Covid vaccines?
Have any of you PWP had Covid-19 yet?
