Today is day 2 of my trial with hubby using glove and TENS machine. It is supposed to be good for neuropathy so I wondered if it might help with whatever the problem is with his hands. After initial reluctance to put gloves on he promised to try for 10 minutes which he then extended to 20 then 30 minutes. Day 2 he is less reluctant but the putting on of the gloves is the most traumatic part of it. Once it’s on he can lie there and enjoy it.
Will let you know results once he has done it for a few weeks, unless he decided he just won’t put them on any more!
He is enjoying this TENS machine with pads on shoulder muscles, less so putting feet on it as it is not a completely comfortable position to sit in while playing bridge on his computer!
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LAJ12345
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My theory is a lot of physical symptoms are caused by physical issues like restricted myofascial layers, pinch nerves, stiff shoulders so I am embarking on a series of experiments to try and loosen up the muscles in his shoulders and free up any pinched nerves etc.
My second theory is that some symptoms are caused by side effects of medications.
It makes sense. Before I was diagnosed I felt awful and I kept trying to get some kind of help with myofascial stuff and joint and muscle problems. It’s interesting you mention the medication. While they definitely provide benefits, you have to wonder. It’s strange; since I switched to Rytary, I felt sciatic pain, and my elbow is really really painful. It doesn’t really make sense because that medication is just another form of levodopa. But I wonder if when you take these meds you have to really work on body issues too. Anyway, just my thoughts. I hope it goes well with the glove and he gets some relief with it. Let me know. I’ll be getting one for myself LOL.
I suppose so you know which one you accidentally dropped in the toilet when taking it so you can take another? So you don’t mix them up.
I’m not liking the two tone blue of madopar either! Worse than the yellow of kinson. It’s indigo carmine & Titanium dioxide and iron oxide (. red, yellow or black)
Oh, yuck. Good point, Buckholt: why do they color the tablets? I suppose for the same reason companies add flavors or scents to everything, thinking we couldn't possibly tolerate the natural flavor/smell/color. They're trying to make products "appealing."
If you haven't heard of Heller Work or Rolfing try to get a book called BODYWISE by Joseph Heller(author and onetime protege of Ida Rolf), you might start thinking about bodywork differently. good reading
Please keep us posted on this. Macquarie Uni in Australia did some research comparing tens and scenar which is similar and the scenar came out well on top of tens. As far as I am concerned, whatever works is all I'm interested in.
The Revitive has TENS and EMS electrical muscle stimulator settings. Is scenar the same as EMS?
It says it increases blood flow to the legs when used on the feet so it sounds helpful. Plus I feel it might remind his brain where his hands are with the repeated sensations. He never was very dextrous even as a child holding a pencil so always avoided using his hands for anything involving fine motor skills so I think that's why they have failed first.
I understand that the tens does something to the nerves to stop the pain whereas the SCENAR has some setup whereby it sends messages to the brain to say there is an area of disfunction here so the brain sends neuropeptides to the area of disfunction to repair the damage.
I believe the SCENAR is a wonderful device and I bought one several years ago when I was financial. You can even search Scenar+Parkinson's and you will find a couple of recommended treatments using the scenar.
To be quite frank I feel as though I have had the best result from mannitol, L-serine, and coffee cherry concentrate. I am losing that feeling of anxiety I have had for ages. Mind you I also use the infrared helmet from the Dorsett Men's Shed, take 11 supplements pills each morning, Have used the Halo Sport to help get my balance back, make a smoothie with brain foods like Brahmi, Lions Mane, Ashwagandha, Gotu Kola etc and eat well (no sugar and crap). Also exercise regularly.
I use my scenar to pump cerebral spinal fluid up and down my spine using a protocol called Little Wings and I also use my scenar on my temples, 3rd eye and C1, crown and between collar bones. I also take a heap of probiotics including bacillus subtillus.
If you want further info on these why not check my posts. I advise you though that I have no scientific knowledge and am working by trial and error on ideas from this group that I think worth a try.
Thanks. That sounds similar, and promising. Not sure if I can get him to wear the, for 12 hours but so far he has had 4 days of 30 minutes. Problem being they need me to help getting them on and off and you can’t really use a computer while they are on I think? Or read as pages hard to turn over. So if he hasn’t got anything to occupy his brain he gets agitated.
So far he said his hands were worse playing bridge with real cards that night but I think it is because they were tired from a mini workout so I would expect that .
Not sure if these gloves deliver exactly the same type of stimulation though.
Have you ever been able to have your hubby to do a visualization of the current following /tacking up the nerves? That might keep him occupied as it is continuous based on previous TENS treatments i have had.
I have tried before but he finds it impossible to do visualisation type things. We used to do qigong before he point blank refused to do it any more and he found it impossible to picture things. He appears to be missing his third eye 🤣
It says the revitive vibrates at 1-50 Hertz which is mainly alpha, beta, theta, delta and the low end of gamma waves I think?
Scenar Home Device
It supports just one frequency setting of 90 Hz. The Amplitude Modulation feature in RITM SCENAR Home is fixed to 3:1 and is very effective in the treatment of pain in muscles and ligaments. The RITM SCENAR Home also supports Frequency Modulation in the range from 30 Hz to 120 Hz.
DBS is greater than 100Hz.
The vibrotactile stimulation seems to vary over a range of wavelengths from lower ones 5-50 to as high as 400, and seemed to vary the frequency with the goal of desynchronisation.
The Apollo apolloneuro.com uses different frequencies in different modes so you can set it to relax, focus, wake up etc. they say it is between 0-200 Hz depending on the setting.
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