Amantadine : Hi, if you’ve had experience... - Cure Parkinson's

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Amantadine

Foncie profile image
20 Replies

Hi, if you’ve had experience with taking Amantadine please share your information with me. I was doing well and had first appointment with MDS and she decreased my Rytary and took me off QUEtiapine Fumarate. I haven’t felt well since. Appreciate any feedback. Thank you.

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Foncie profile image
Foncie
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20 Replies
theAfrican profile image
theAfrican

Put Amantadine on the search . There are a lot of opinions.

Foncie profile image
Foncie in reply to theAfrican

Thank you

park_bear profile image
park_bear

Sometimes MDs think they need to tinker with your meds to feel like they are doing something. However, they should not be trying to fix what is not broken.

If what you were doing was working for you and you have not felt well since, insist on going back to the old regimen.

Foncie profile image
Foncie in reply to park_bear

Thank you

Enidah profile image
Enidah

I hope you weren't taken off your Seroquel (Quetiapine fumarate)abruptly. That would certainly explain not feeling well. If it helps with depression and your doctor doesn't think that's a good option perhaps a different antidepressant. I take Lexapro or the generic actually, escitalopram, 10 mg a day and it helps with depression and anxiety.

I've been taking amantadine for years without any side effects that I know of. Twice a day 100mg.

If none of that is the problem then I don't see why you couldn't take your rytary at the same level where it was working. Doctors love to tinker with our meds. I suppose it makes them feel useful and that our appointment was worthwhile but it does us no good.

lenamm profile image
lenamm

Amantadine was a disaster for me, caused 100% insomnia and a bad mental spiral. I know one person who does super well with it - 15 years out with low dose C/L and Amantadine. It varies person to person.

Foncie profile image
Foncie in reply to lenamm

Thank you for your response.

aspergerian profile image
aspergerian in reply to lenamm

Lenamm,

Your point is important. And concise.

andrehypnotic profile image
andrehypnotic

Made me extremely tired and gave me the worst nightmares ever.Very good for chest infections and the flu though.Good Luck.

Zella23 profile image
Zella23

My husbands taking Modapar and Rasigiline, but was having problems with dyskinesia. Neuro added in Amantadine which really does help stop the dyskinesia.

Sometimes is able to decrease the Modapar and lengthen times between doses. Often forgets to take dose of Modapar as he doesn’t seem to get defined on and off times.

Hope you can either go back to your meds that suit you, or at least have that conversation with your Neuro. Hard to wonder why they changed them.

jeffmayer profile image
jeffmayer

Started a month ago due to dyskinesia can't say it's done much really

Been taking amantadine for over a year. Dr prescribed 3x 100mg a day, 3 was too much, not good, 2 a day works for me.

Ballerina335 profile image
Ballerina335

Just started taking amantadine 5 days ago due to dyskanisia. I now have reduced dyskanisia /squirming. Longer time between c/l doses and more energy. 5 years dx.

MarionP profile image
MarionP

What exactly was your doctor's rationale for the changes? why were you on these particular meds in the first place, and how was that working out, and what do YOU think the change was about? What exactly do you mean by haven't felt well since? What's your relationship with this doctor? What's your background story, health history, co-occurring disorders, general condition, history, stage and diagnosis, age? Hard to make a competent guess without some context, actually rather a lot of context. Does this doctor even know how you feel?

tarz profile image
tarz in reply to MarionP

Didn't you know? Doctors are well-recompensed by the drug companies for prescribing their drugs. The more drugs (and the more expensive) they can prescribe the greater their rewards! This leads them to want to experiment with different drugs. There are many websites exposing this problem. Here is one of them:

healio.com/news/orthopedics...

tarz profile image
tarz in reply to MarionP

Didn't you know? Doctors are well-recompensed by the drug companies for prescribing their drugs. The more drugs (and the more expensive) they can prescribe the greater their rewards! This leads them to want to experiment with different drugs. There are many websites exposing this problem. Here is one of them:

healio.com/news/orthopedics...

Oceanflow profile image
Oceanflow

I’ve been taking amantadine for almost a year and I found it helpful (noticed an improvement in my speaking ) the first few days I took it . I haven’t noticed a difference lately, to be honest. But perhaps my progression is making all the drugs I take seem not as remarkable. When my doctor wanted me to take two amantadine pills daily I discovered that it was too much as I couldn’t sleep at night— so I am still taking one along with a handful of other drugs and supplements.

tarz profile image
tarz

Didn't you know? Doctors are well-recompensed by the drug companies for prescribing their drugs. The more drugs (and the more expensive) they can prescribe the greater their rewards! This leads them to want to experiment with different drugs. There are many websites exposing this problem. Here is one of them:

healio.com/news/orthopedics...

MarionP profile image
MarionP

Didn't you know, while responding to a question directed at fonsi, that you are not fonsi? Did you know that you are different people and that she was the one asking and only she could answer those questions? Didn't you know?

andrehypnotic profile image
andrehypnotic in reply to MarionP

😳😂

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