23 & Me Parkinson's Research Initiative - Cure Parkinson's

Cure Parkinson's

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23 & Me Parkinson's Research Initiative

tlongmire profile image
6 Replies

Dear Terri ,

We have some exciting news to share. Boxing legend, Muhammad Ali, has joined 23andMe in our efforts to power genetic research in Parkinson's disease. In this brief inspirational video, Muhammad and Lonnie Ali encourage people with Parkinson's disease to participate in 23andMe's research efforts.

Watch the Video

youtube.com/watch?v=XR7pBLA...

Over 6,700 people are already a part of our Parkinson's Research Community. The closer we get to 10,000, the closer we get to a cure.

Help us make this video viral! Please share with your Parkinson's network through email, Facebook and Twitter.

The video premiered at Muhammad Ali's 70th Birthday Gala this past weekend to a rapt audience. If you would like the see the entire Gala, including a brief version of the 23andMe video, it will be aired on ABC on 2/25 at 4pm ET, 2pm PT.

We were so moved by our experiences with the Alis that we wrote about our encounter in our blog, "The Spittoon." Also included are personal, exclusive excerpts from our interview with Lonnie Ali about Muhammad's Parkinson's and their contribution to research.

Read the Blog spittoon.23andme.com/2012/0...

There is strength in numbers, and we are grateful to have your hand in this fight.

Warm Regards,

Emily Drabant, Ph.D.

Parkinson's Research Project Manager

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tlongmire profile image
tlongmire
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6 Replies
Sassynailart profile image
Sassynailart

??I participate in this research study and received this video through 23 and Me. I immediately posted it because I was so moved by the statement it makes.

tlongmire profile image
tlongmire in reply to Sassynailart

Yes, this was the easiest study to participate in. They provide the supplies, you provide the spit, they provide the return mailer and then in a few weeks the results. When I did the study several months ago if you had Parkinsons everything was free.

tlongmire profile image
tlongmire

In case you are interested here is the website to order your kit. :o)

23andme.com/pd/codereq/

PatV profile image
PatV

I sent for it and when it came, it turns out that it is illegal to mail from New York State!!! wth? Is there something fishy about this site that only state of New York knows?

tlongmire profile image
tlongmire in reply to PatV

I've sent an email to 23&Me asking them if there was a reason a kit could not be returned from New York. I'll let you know if I receive a response.

I believe the site to be absolutely trustworthy.

tlongmire profile image
tlongmire in reply to PatV

Hello Terri,

Thanks for contacting the 23andMe Team. While we are authorized to ship kits to the state of New York, 23andMe is currently unable to process saliva samples collected in or mailed from the state of New York. The New York Department of Health considers our Personal Genome Service a test requiring a lab license and direct physician involvement.

You or the recipient of the saliva kit must collect your sample and mail it from outside the state of New York. Upon receipt of your saliva kit, you or the recipient will be required to affirm under penalty of law that the sample for the saliva kit has not been collected in or mailed from the state of New York. This is done in the form of an online question when you are claiming your sample.

We apologize for the inconvenience.

Please let us know if we can provide any additional assistance.

Best regards,

The 23andMe Team

-----Original Message-----

From: TLongmire@aol.com

Sent: Feb 24, 2012 7:22:29 PM

Subject: Illegal to mail....

I participated in the 23&Me research program. I shared The Muhammad Ali video about 23&Me with The Parkinson Movement website and received the following comment after posting.

"I sent for it and when it came, it turns out that it is illegal to mail

from New York State!!! wth? Is there something fishy about this site that

only state of New York knows?"

Is there a reason someone would not be able to return the kit to you if

they live in New York? Please advise.

Thanks,

Terri Longmire

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