thiamine

[pascal1]

Bonjour à tous.

Je suis nouveau ici, j'ai parkinson et je voudrais tester la thiamine (Doct Costantini)

J' ai commandé de la vitamine B1 (thiamine) Solgar 500mg. J'ai parkinson depuis 3 ans. Dois je la prendre en complément de mon traitement: Sifrol :1.05mg - rasagiline le matin + Modopar125: 3 comp/jour.

Je voudrais commencer par 1 comp de 500mg le matin + 500mg le midi pendant une semaine puis 3 comprimés la 2éme semaine, puis 4 comprimés la 3éme semaine, en contrôlant les effets.

Quelqu'un a t il une expérience (avec un peu de recul) avec un traitement similaire ?

Merci d'avance

Pascal

[Hidden]

One additional source of B1, thiamine hcl capsules:

You can try to use a preparation of vitamin b1 pure, without any excipient in case the patient is not allergic to thiamine but to the substances that are used to compact it in the capsules or tablets. To us in Italy provides the pharmacy Severi of Grosseto that assured me that can ship it worldwide and I assure you at good prices. Contact them directly for information from them on their pure thiamine. Below is the email address.

The following is direct from the pharmacy to Dr. Costantini :

Dear Antonio, I'm going to give you the following words in English that you requested for your Anglo-Saxon patients: "Our Pharmacy prepares capsules of Vitamin B1 (Thiamine) in the prescribed dosages.The preparations is carried out with exclusively pure Thiamine (100%) without any added excipient. For more information, write an email to: [e-mail] "If you think you need to add something, just let me know. Cordiali salutiAndrea Severi

[pascal1 in reply to Hidden]

Thank you and very grateful for you answer RoyProp

Impressed by the speed.

Good night

Pascal

[chartist]

Translation:

................................................

Good morning, everyone.

I'm new here, I have parkinson's and I'd like to test the thiamine.

I ordered vitamin B1 (thiamine) Solgar 500mg. I've had parkinson's for 3 years. Should I take it in addition to my treatment: Sifrol :1.05mg - rasagiline in the morning + Modopar125: 3 comp/day.

I would like to start with 1 tablet of 500mg in the morning + 500mg at lunchtime for one week, then 3 tablets in the 2nd week, then 4 tablets in the 3rd week, controlling the effects.

Does anyone have any experience (in retrospect) with a similar treatment?

Thank you in advance.

..................................................

Reply

Dr. Costantini said that HDT/B-1 is compatible with all PD meds.

I highly advise that you take "very precise notes" upon starting B-1 and mention every little change that you think might be attributable to B-1.

Take a 10~15 minute video of you walking, talking, climbing up and down stairs, walking fast, walking in a large figure eight, getting up from a seated position,getting up from bed, exercising and writing. The video is for your future reference and will be very important if you turn out to be a slow responder to B-1. This video will also be useful later to monitor disease progression and is worth keeping indefinitely.

Art

................................................

Le Dr Costantini a déclaré que le HDT/B-1 est compatible avec tous les médicaments de la DP.

Je vous conseille vivement de prendre des "notes très précises" lorsque vous commencez le B-1 et de mentionner chaque petit changement qui, selon vous, pourrait être attribuable au B-1.

Prenez une vidéo de 10~15 minutes vous montrant en train de marcher, de parler, de monter et descendre les escaliers, de marcher rapidement, de faire un grand huit, de vous lever d'une position assise, de vous lever du lit, de faire de l'exercice et d'écrire. La vidéo est pour votre future référence et sera très importante si vous vous avérez être un répondant lent au B-1. Cette vidéo sera également utile plus tard pour suivre la progression de la maladie et vaut la peine d'être conservée indéfiniment.

Art

[Pa-zzi69 in reply to chartist]

Art,

I am impressed by your generous translation for Pascal1. Assuming that you used a robot-translator I am curious to know which one, including my favorite one: translate.google.com

Marc

[chartist in reply to Pa-zzi69]

I used the one that we used when communicating with Dr. Costantini and recommended by forum member Xenos as being slightly more accurate than Google translate. Google offers more languages though.

deepl.com/translator

Art

[bibsie in reply to chartist]

Deeply is great! I am studying French and Spanish and can generally express myself in either pretty well but I double check my compositions with Deepl. The translations are accurate AND use the syntax and stole of the target language appropriately. I find them to be a good learning tool.

[chartist in reply to Pa-zzi69]

I forgot to give the link, but have added it to my original reply.

Art

[Pa-zzi69 in reply to chartist]

Thank you Art. DeepL and translate.Google are indeed very comparable. They seem to differ mostly in their ancillary frills. If you're into foreign translations of specific words I highly recommend DeepL's other program called Linguee at linguee.fr. It provides translations of the word within a sentence in many different contexts.

[pascal1 in reply to chartist]

Thank you and very grateful for you answer Chartist

Impressed by the speed.

Good night

Pascal

[Pa-zzi69]

Bonjour Pascal, tu t'adresses au bon forum, très riche en information sur la thiamine, malheureusement dans la mauvaise langue… N'es-tu pas capable de t'exprimer en anglais, au moins de le lire ? Connais-tu le traducteur-robot translate.google.com ?

Je suis dans un cas médical similaire au tien si on ne tient pas de notre différence d'age j'ai 78 ans. Je pourrais t'aider plus facilement en liaison directe si tu me communiquais ton adresse courriel.

Marc

ps Je suis heureux pour toi de voir que Chartist t'a traduit. Il représente à mes yeux le meilleur ambassadeur de la thiamine sur ce forum.

[pascal1 in reply to Pa-zzi69]

Bonjour Pa-zzi69

Tu as Parki,? Veux bien communiquer avec vous.

A bientot

[Pa-zzi69 in reply to pascal1]

Oui j'ai bien le Parkinson depuis deux ans à l'âge de 77 ans, en traitement de Carbodopa-Levodopa [l'équivalent de Madopar] plus vitamine B1 thiamine depuis plus d'un an. Envoie-moi ton adresse courriel à mon adresse personnelle sur le forum: healthunlocked.com/user/Pa-zzi69 et nous pourrons correspondre directement avec plus de facilité, éventuellement même se téléphoner malgré les 9 heures de décalage horaire entre nous puisque j'habite en Californie et si tu habites en France.

[Hidden]

Vitamin B1 use instructions ;

Join Facebook group Parkinson’s thiamine hcl

m.facebook.com/groups/23226...

[Hidden]

Diagnosed 2012

My regimen:

The positives after B1: no bradykinesia, I cut my food with a knife, no button difficulties, brush my teeth now w/o needing elect brush, more strength. Getting in and out of bed, turning over is easier. No more (less) constipation. Parkinson's progression stopped. Suppressed most motor and non-motor symptoms...

My 8th year post diagnosis and have not fallen, not once, to the surprise of my neuro.

- subject to change/evolution -

I follow this regimen:

4x day, C/L 25-100mg IR.

2 x day (8 am 1g, and at noon 1g) vitamin B1 (as thiamine HCL) 500mg easy swallow capsules.

Magnesium L-Threonate 144mg per day.

Doxazosin 8mg, once daily.

Pramipexole 0.05mg, once nightly.

[Manajanabo2001]

thank you for this information