Hello, I rejoin you all.: Bonjour, I am a... - Cure Parkinson's

Cure Parkinson's

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Hello, I rejoin you all.

10 Replies

Bonjour,

I am a 66 years old man, living in France. I have been diagnosed with Parkinson's disease two years ago but I remember having suffering symptoms in 1993.

I'm taking actually 3 x modopar 125 and one Rasagaline each day.

My right leg is troubled and my right arm doesn't balance normally, this gives me difficulties to walk more than two km.

And I have urinary and digestive difficulties.

Read more about...
10 Replies
saraoutwest profile image
saraoutwest

Welcome!

wriga profile image
wriga

Hello Stefff,

I'm in France too. There aren't many of us I guess because most of the posts here are in English. I'm also a researcher and I'll be posting on some new research very soon. Keep in touch.

Wriga.

Gioc profile image
Gioc in reply to wriga

Piacere di risentirti Wriga, è un onore averti di nuovo qui con noi.

Gio

wriga profile image
wriga in reply to Gioc

Hi Gio,

This has been a long hard journey of research and discovery into completely new areas for me. Gene transcription factors and plant biochemistry ... drugs that work and will never be approved because they can't be patented, but could be accessible to everyone. That's why I've been silent for months. The research will be presented not as a research article but as a Chronicle, a personal adventure, fully transparent, along with my mistakes, setbacks and hope. As such it is pretty well finished for me. I can't take it much further without $millions that I don't have, but it maybe the beginning for others. I just need to get it checked over by some real experts with whom I'm already in contact. That will start next week. Some will say I'm crazy.. maybe.

Gioc profile image
Gioc in reply to wriga

good Albert, the fight is always the one, that is between the status quo and the positive change. Two impulses present in man, one leads to the underworld of suffering (staus quo) the other (change) will lead us to conquer the stars. Personally, I resolved this conflict many years ago and gained the ability to move from fixed conditions and do new things. I see with joy that you have also overcome the problem of change and you will agree that life is so much more fun that it is all we need especially with PD: ... a fun "game" with the others friends that it helps everyone.

gwendolinej profile image
gwendolinej in reply to wriga

Well done wriga, what you describe is exactly why Mannitol hadn't been researched further since I don't know when.

Mannitol has been used at least in the 1950s when a friend was doing her nursing training. My GP, who retired last month, said it was used in brain surgery when he did his training in 1979, and the Austin Hospital, a major hospital here in Australia uses it for brain injuries.

It took a VIP in Israel to get PD and raise the money for the research to be upgraded. Now there's a full blown trial being done. I'm assuming you know all this.

Mannitol has turned my husband's life around. I hope you can achieve the same thing. Good luck.

FlossieKay profile image
FlossieKay in reply to wriga

I'm new here and very interested in your research news when you share it.

ElliotGreen profile image
ElliotGreen

Greetings and welcome. I'm an American living in Scotland. I'm 47 and I was diagnosed in 2016.

Xenos profile image
Xenos

Welcome to the club nobody wants to be part of !

French and living in France too...

Gioc profile image
Gioc in reply to Xenos

Hi Xenos,, LOL

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