How do you fight fatigue all day?

[theAfrican]

I like to hear from people who diagnosed more than five years. Hope we can help each other.

Thank you

[Pa-zzi69]

Curious to understand why you set a limit of five years… I have fatigue experience to share but I have been diagnosed for 2 1/2 years...

[ABDESSLAM1 in reply to Pa-zzi69]

In the world of Parkinson they call it the end of honeymoon . That why I mention 5 years. I would love to hear your experience with fatigue. After all is the same symptom at all stage of Parkinson’s

[NanCyclist in reply to ABDESSLAM1]

Whenever I feel the need to rest instead I take a walk around the block around several blocks or ride my bike stationary bike, or I dance to a dance for PD DVD. The point is that I exercise instead of rest, and that gives me more energy for some reason. I was diagnosed 12 1/2 years ago. Best of luck.

[KERRINGTON in reply to Pa-zzi69]

Please share your 'receipe' for fighting fatigue...thanks !

[laglag]

Exercise (Rock Steady Boxing) helps me. And I have to keep moving at home, and when I'm extremely fatigued, taking a 1/2 hr. nap helps. And I drink a lot of water & once a day put some Emergen C in a glass of water.

[Hidden]

I take naps as needed, and drink a cup of coffee at 3 pm (late afternoons are the worst time for me).

[lenamm]

Vitamin B12 injections every 10 days, exogenous ketones, exercise, good sleep. I've had PD just over 5 years.

[LAJ12345]

Sort out your diet, lots of veges, no additives etc. exercise. Thiamine.

Take Hardys daily essential nutrients.

Take berberine and allimed for gut issues, alternating weekly with a good probiotic.

Try horny goat weed and carnosine.

Slowly the fatigue will reduce. It’s not instant.

[KERRINGTON in reply to LAJ12345]

Thanks for introducing me to Hardy's. I'm on their DEN, GREENS/PROBIOTIC, and am adding their AMINO'S for a trial run.

[LAJ12345 in reply to KERRINGTON]

Great . Is it helping? We have their inositol too to calm when feeling stressed.

We haven’t tried the aminos. I’d love to know how you find them.

[KERRINGTON in reply to LAJ12345]

I'll let you know after I use them up !

[LAJ12345 in reply to KERRINGTON]

Hubby is struggling at the moment with winter coming on and coronavirus worries. I am fairly sure light is a huge part of his problem as every year at the exact same time he starts feeling worse as the days shorten. Weather has been sunny so it is the length of days that is the problem. We are in NZ

[KERRINGTON in reply to LAJ12345]

I put a lot of my indoor lights on at full blast as fall and winter approach. They are on during the day too.

Doing this seems to help. .

[LAJ12345 in reply to KERRINGTON]

Yes, he has a sun lamp which we use. The problem with modern light bulbs being LED they don’t have the full range of wavelengths so I think that has made it worse over the years since the change from tungsten. Plus the screens - when he is feeling worse he will sit playing bridge all day on the computer which makes it worse.

We were all ready for winter this year with flights to cairns Australia booked just before his normal down turn date to get a little extra sunlight but coronavirus put a stop to that. And having kids home all day on lock down arguing and refusing to do school work has not been easy either.

[KERRINGTON in reply to LAJ12345]

Agree re the LED'S. My husband and I still use the old bulbs...we gradually bought a bunch yrs ago when we got wind of the changes. Don't led's have mercury in them too ?

I guess you up your husband's vitamin D..

I'm from NJ, going into later spring...

[LAJ12345 in reply to KERRINGTON]

There’s vitamin d in Hardy’s, and I’ve had it tested after he had been on it about a year and he was above the top of the normal range so I don’t think it would be low now.

Most our lights are the inset LEDs without bulbs. I don’t think we can get normal ones now. I’m getting him to not wear his tinted glasses on our daily walk. Hopefully that might help. And I’ve set him up now in a much brighter room than where he has been sitting recently.

I’ve just looked at my records for the last 3 years and his anxiety seems to rise at almost the exact same time every year So I’m fairly sure it’s the daylight hours reducing.

[KERRINGTON in reply to KERRINGTON]

Hello again...Does your husband take DEN more than once a day ? Thanks

[LAJ12345 in reply to KERRINGTON]

Sorry just saw this! He takes 3x4 per day.

How is it going for you?

[jeffmayer]

I cycle every day which helps

[Hidden]

i take 7.5 mg adderall 2 times a day. its approved for pd as well as ritalin. cheers!

[katherinecompton22]

My AM Selegiline helps quite a bit. Any midday nap longer than 45 minutes makes me a slug for the rest of the day. I take many of the supplements others on this site take, plus Tru-Niagen, citicholine, and Lithium orotate. I take Rytary, but routinely space the higher doses, to avoid what feels to me like a levodopa "dump". For instance, my dosing is four times a day: 3 caps - 2 caps- 3 caps- 2 caps. I take 2 caps at 8AM, then the third cap about an hour later. Maybe this should be unnecessary for Rytary, but this is how I best tolerate it and avoid feeling like I want to go back to bed. This routine, plus exercise has made fatigue rare; tremor is another story!

[faridaro]

I commonly experience the so called "afternoon slump" when I feel completely drained. In those times I usually try to get myself outside for a 15 min walk or just take a 30-60 sec brisk walk around the house simultaneously swinging my both arms forward with a clap and backward with a clap repeatedly. However, there are also times when I just give in and take a nap to recharge my batteries.

[Pnyldy]

It’s been 6 years since my diagnosis. I too, tend to “tank” around 3 in the afternoon. But no matter how sluggish I feel, I make myself get on the treadmill for a brisk, but gentle walk. 15-30 minutes. This always helps. I avoid naps and caffeine, as I want my night time sleep to be the highest quality possible. I see a functional medicine doctor ifm.org/find-a-practitioner/ who helps with my nutrition and supplements. I just this week am starting high dose thiamine (HDT) protocol to hopefully help with fatigue as well. Too soon to evaluate, but looks promising.

Enjoy seeing what the rest of you are doing (-:

[Paralelo]

Con fuerza de voluntad. Es la más fuerte que hay. Y te llevará a donde quieras. Dios está en cada uno de nosotros y está es su forma de manifestarse.

[Paralelo]

Diagnosticado hace 9 años.