Are non motor symptoms harder to control than motor symptoms with C/L over time?

[Spottedtowhee]

Diagnosed 8 years ago, on C/L for three years. Increased my daily dose to 500 mg July 2019. Motor symptoms improved, felt more energetic and moved better so that I could confidently take walks alone and also began rock steady boxing. My non motor symptoms also much improved. Since January, my motor symptoms are still quite good, but my non motor symptoms have reappeared or worsened. Am I under medicated or are non motor symptoms harder to control with progression?

I also find that I feel good in the morning, then quite unwell from 1:30 PM to 5 PM and then I feel fine for the evening. For those few hours in the afternoon I feel lousy. I just want to sleep and escape. If I could figure out why I suddenly feel better than during the afternoon, maybe I could counter it. Any one have a similar experience?

Thanks for your help.

[Hidden]

I was dx 2012.

Over time my motor symptoms had a slight decline. Solved with reduced B1

[Spottedtowhee in reply to Hidden]

Good to know. I started taking B1 three weeks ago, starting at 100 mg a day and increasing by 100 mg every week.

[Hidden]

About four a.m. and about four p.m. I find myself fighting tremor

[Spottedtowhee in reply to Hidden]

I guess there’s no explanation for much of what presents to us

[Joanne_Joyce]

PD is so strange. I feel best at 2am in the morning. Pain free, energy.

[Spottedtowhee in reply to Joanne_Joyce]

How long does it last?

[Joanne_Joyce]

I used to get up and use the time to work, usually on my computer. I would stay up until morning with no difficulty. But then my neuro warned me that I was putting myself at risk of developing dementia if I don't get enough sleep, So I decided to try to go back to sleep even though I was wide awake. So now I have learned to try to sleep again by 3:00 or 3:30 am. By the time I wake up again around 5 my meds have worn off and I'm back to coping with PD symptoms the rest of the day

[Spottedtowhee in reply to Joanne_Joyce]

Yes, sleep is so important, but it’s too bad you can’t enjoy the hours awake when you feel better. If you don’t mind my asking, are you taking anything to help you sleep? I’m also sleeping very little these days and I've been trying different supplements to help.