parkinsonsnewstoday.com/202...
This problem came up few times on the Hu. Another thing is, supplementing with melatonin can really help the hallucinations. And melatonin really helps the Sundowners disease where the Melatonin has to be divided into two dosages hours apart.
From what I understand this relates to advanced PD when PwP experience dementia, and PwP are treated for non-PD dementia.
At this point in My Parkinson's Adventure I am thinking about the revisions I made to my carer's list of do's a s don'ts. DON'T resuscitate. Do Not Resuscitate is now Tatooed on my butt! And yes Corona virus ois the catalyst that got me going.
Melatonin is from Neurologist. Though she mentioned 3mg and no mention of quick or Slow Release I take 5 mg of Controlled Release Melatonin at 6 PM. Again at 10 PM.
Also tiny amount of Xanax generic 0.25 mg before bed (2-3 hrs before bedtime." Calms bladder. Also calms "busy mind" my primary physician's description. His instructions take 8timed a day S needed. That would be addictive. Take care with Xanax. Take if you really need a sedative. Or if you are prone to occasional panic attacks. Sometimes I add L-Theanine 100 mg. Good luck!
Now who is going to see it on your butt to know not to resuscitate, to resuscitate you they are probably going to see you face up...I'm not sure a fire/rescue squad answering a code or emergency would go looking from that angle for an advanced directive.
Should probably have it re-done on your throat. A simple "DNR" with a smiley face for a period would probably do it. 
I agree!
A question I have about Corona virus & ventilator shortage. If I am swept into a hospital ER and my caregiver is told "She needs a ventilator NOW !" My Living Will is stamped with DNRthroughout and my caregiver love of my life some 40 yrs...now tells me that he cannot "deny me a fighting chance". I was with my mother and brother Sis-in-law hospital waiting room. She was just diagnosed with COPD mid-80's. Mom adamantly insisted on DNR. the ICU crew needed my signature OK for ventilator. I looked for my brother. Meanwhile the intensity in transferring her NOW ...I gave the OK. Family returns and look shocked when I say "Mom is on a ventilator". Well if this virus takes me on my final farewell tour and DNR is STAMPED throughout my recently updated/revised Living Will meaning "no artificial life support" Believe me those words and the wording in the Living Will should mean what I want them to say! AMEN.
Consult a lawyer and legally determine what in the States is referred to is "sole medical power of attorney (POA...to automatically, immediately apply should you become impaired such that you cannot determine consent or refusal for yourself)" and also the legally applicable language of inclusions AND EXCLUSIONS (e.g., specifying what consent matters specifically are authorized and also any limits thereto) who may and who may NOT wield such power or deciding consent). You should have to discuss with the attorney the matter of whether you might in fact change your mind at the last second, which is what your relative says he might anticipate you could want to change at that last second, and whether it should be addressed in the document.
Have this printed and made officiated LEGALLY, i.e. whatever appropriate jurisdiction and witnessing is required by law where you live including appropriate references to such authorizing law that should be included in the document)), then add this all also into the living will also and cleared by the attorney of conflicting language above the appropriate signatures/witnessing. The signatures format must comply with local laws to be enforceable. Make sure the document has a clear title in plain language, and/or a brief explanatory caption/summary at the top as a beginning plain-language brief summary sufficient to be legally part of the document (some laws/jurisdictions, such as some states, exclude by default summary captions as introductions not part of the document, so make sure your summary is definitely legally part of the declaration).
Be sure to have the attorney include discussion of what your wishes are in anticipation of any first-pass challenge such as a petition for some sort of emergency order.
Keep both documents (POA and living will if allowed in your jurisdiction) on your person, and deliver a copy to each of your people and let the documents do the talking for you. Periodically cause them to be legally updated as appropriate to keep current.
My husband died recently, but he was sundowning horribly and I started giving him 10 mg melatonin at 4pm and 10 mg at 10 pm. It stopped the sundowning that had been so bad he wandered off the property, got hypothermia and ended up in the emergency room.
This seems very useful and a great way around antipsychotics.
And the Physicians have never heard of it. I'm very sorry for your loss. Mary
Buried in the article are the criteria to use in a handy downloadable .pdf, probably good to have to pass around to any docs and prescribing nurses and PAs, because they are all going to be in such places, pass them around to anyone you might know or anyone in a nursing facility etc. who might have their providers needing to know in a form they could immediately credit.
sigot.org/allegato_docs/105...
I am reading a third time. Just called my brother. He was diagnosed with Parkinson's 5 yrs earlier. We are clone copies of each other. Struggling with symptoms that he told me were PD I trudged forward doctor to doctor "What's wrong with me?: 3 yrs asking primary physician "Do I have Parkinson's? He replied "No. Parkinson's is both sides not one side of body." I end here. Marionp Thank you for sharing your thoughts, time, and energy to help sort out the complex issues we face daily.
If its not PD you might want to rule out chemical poisoning such as agricultural chemicals and to be certain that differentials do in fact rule out phenomena that occur only on one side. You might want to have a look at the latest ICD (International Classification of Disorders) at your local library or online yourself, particularly where it gets into "differential diagnosis" discussions. Discuss with your specialist where are the limits of what they can diagnose and treat, there are some things one must wait for...but also that specialist doesn't have to wait for refinements in order to look into what clinical approaches can be tried without having the final diagnosis in, there may be some things that provisionally make sense to do now and that is in the normal prerogatives of the doctor to recommend or obtain consultation over. They will be the first to admit that a single practitioner can't know everything and more minds can sometimes do better than one. I know that when I was practicing whenever I encountered something I couldn't figure out the first thing I did was contact a few mates and/or determine whether a referral was also the thing to do.
My husband did have dementia and psychotic medications helped him a lot with his psychosis. The melatonin was really a blessing with the sun downing towards the end that he hadn't had before.
Do all Parkinson patient progress to advanced stages?
WHAT IS YOUR BEST SLEEPING AID? Zzzzzzzzzzzzzzz!
Virtual Reality Training Improves Balance for Patients With Parkinson Disease
First Patient Dosed in Phase 3 Trial of Buntanetap for Early Parkinson's 
Brain Food for Parkinson's Patients (from Michael Fox site)
