Parkinsons: Help! Suddenly my daughter is... - Cure Parkinson's

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Parkinsons

Williemom profile image
19 Replies

Help!

Suddenly my daughter is talking out of her head, random talking, not making sense,

Just all over the place.......asked if she had taken anything extra besides the sinemet.

She said no, but it’s very scary ..... just not herself.

Is this normal??

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Williemom profile image
Williemom
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19 Replies
Juliegrace profile image
Juliegrace

You/she needs to consult with her doctor. It could be an imbalance of her meds, it could be she's hallucinating, it could be early dementia, It could be a stroke or it could be none of these things or something else. If that happened to my loved one I would consider it emergent and seek immediate medical help.

Williemom profile image
Williemom in reply to Juliegrace

Tried to get I touch with her doc but she didn’t return call. Will try again tomorrow. She had a spell like this a few months ago. It’s not an everyday occurrence. I’m thinking her sinemet needs adjusting but then I’m only a caregiver not a doctor. It makes me want to sit and cry.....PD is a “bad dude”...

park_bear profile image
park_bear in reply to Williemom

Is there anything you can think of that brought the previous spell on, or that helped to alleviate it?

jeffreyn profile image
jeffreyn

Does your daughter use a multi-compartment pill container, to ensure that she doesn't sometimes take a double dose?

Williemom profile image
Williemom in reply to jeffreyn

Her pills are in pill cases and most the time she is able to keep them straight but think sometimes she is not sure if she took it at right time and may take another one being confused. Most of the time she will call me and I go over to check out the situation.

May have to resort to locking up the pill bottles after the cases have been filled.

It’s a process.

Sugarbear67 profile image
Sugarbear67

Is your daughter also on antidepressant? This could do it, I would cuss and shake my head.

Williemom profile image
Williemom in reply to Sugarbear67

She is on lexapro 10 mg daily

But doesn’t act this wY everyday...

Trying to figure out what triggered it.

She is very stressed right now....trying to get disability pay since May of 2019. Can’t Drive any more, all kinds of issues with her body because of the PD..... she’s 52 and been diagnosed 7 years as early onset then.

Hopefully and prayerfully today will be a better day. Someone on here said they “try to find the good in everyday” so that’s what we are gonna do. And be thankful the good Lord has allowed us another day!

God bless you and all the PWP and their caregivers!!!❤️

Sugarbear67 profile image
Sugarbear67 in reply to Williemom

I'm sorry to hear this it seems like her symptoms have happened so fast. Has the Dr. Looked at MSA? I'm praying for her.

Williemom profile image
Williemom in reply to Sugarbear67

Thank you for suggestion and prayers.

Grumpy77 profile image
Grumpy77

Just curious, because of the nature of PD associated as a disease for the elderly, it's usually the daughters/sons who are caring for and worried about their PD parent.

Not saying the reverse isn't possible, but just wondering if she may be too young for PD... and thinking it may be something else mimicking PD symptoms, so that when PD meds are used it results with these adverse effects

Kwinholt profile image
Kwinholt in reply to Grumpy77

Grumpy, I was diagnosed at 49 and confirmed with a DATScan and I’m sure I had it for a few years prior. Going to be 57 this year. It is becoming more common for the young onset now . I agree Williemom, that you should take your daughter to doc/ER when your daughter has an episode. If she is generally getting relief with her meds and this happens occasionally maybe it is triggered by accidentally taking too much or a mixture of something else. Or the hallucinations , dementia as well. And as we all know , stress makes everything worse. Take care. Karen

Trixiedee profile image
Trixiedee in reply to Grumpy77

Have you not heard of Young Onset PD? I was diagnosed at 40. I know people who were diagnosed in their 20s!

MerckK profile image
MerckK

It doesn't happen in PD. Age is not a criteria for this disease now a days as it starts from the age of 30 years and above..The doctor is probably not able to diagnose the disease correctly. Following are the symptoms of PD:

1. Tremors start from one hand and increase to the same side of feet. Spreads to other hand and feet àfter few months, if left unattended.

2. One eye may get short in size.

3. Cramps in hand and feet muscles

4. Non clarity of speech

5. constipation

6. Slow movement of body ànd rigidity.

The symptoms mentioned by you are not even the result of sinemet reaction. She must be having some other neurological disease which needs to be diagnosed by conducting -SPECT or PET Scan.

Pl. Speak to the doctor in detail to have clarity. Giving wrong medicine will do harm instead of any positive results.

I am not a doctor but a patient of PD and help many with sharing my experiences

Take care

Williemom profile image
Williemom in reply to MerckK

Yes keeping notes daily until her next visit.

Have tried to contact doctor but have not had a recall yet.

2bats profile image
2bats

Could be B12 deficiency - youtube.com/watch?v=BvEizyp... - B12 DEFICIENT?

Williemom profile image
Williemom

I’m thinking we may have to put away the pill bottles after her pill cases are filled to be sure she doesn’t get confused and accidentally take extra meds. Doc has told her to take 1/4 of a 25/250 sinemet when her legs hurt so that could be the problem.

I guess I’m worrying myself to death trying to figure it out...,.but that’s what parents do , right?

Thanks for all the help everyone gives .....

PD is individual and it helps to read if any one else is experiencing these things and what you’ve tried to overcome it...,.

❤️❤️

Hikoi profile image
Hikoi in reply to Williemom

I think you have worked out the problem - multidosing. It is so easy to be uncertain whether you have taken a dose and take extrea. Though lev/carb is less likely than other meds to cause these problems, it still can. I suspect it happens when your daughter crosses a threshold, she tolerates them until she has too much for her. All the best.

ncbi.nlm.nih.gov/pubmed/116...

Hikoi profile image
Hikoi in reply to Williemom

I think you have worked out the problem - multidosing. It is so easy to be uncertain whether you have taken a dose and take extrea. Though lev/carb is less likely than other meds to cause these problems, it still can. I suspect it happens when your daughter crosses a threshold, she tolerates them until she has too much for her. All the best.

ncbi.nlm.nih.gov/pubmed/116...

MarionP profile image
MarionP

These symptoms occur in many diseases and there easily possibility of co-occurring disorders. Not for casual assessment, she needs to be assessed at least by an internist immediately with proper full and complete medical history and personal history ASAP. Not to be done here.

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