Dystonic Neck Pain Keeps Waking me up... - Parkinson's Movement

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Dystonic Neck Pain Keeps Waking me up at Night. What to do?

OREOLU
OREOLU

Hi friends, any advice would be appreciated.Have you experienced this type of neck pain,that stiffness your neck ,more on the side most affected by PD?I am on C/L and just recently increased my dose as instructed by my MDS.I noticed recently,increasing neck dystonia,most especially at night ,hence affecting my sleep,despite taking half 15mg mirtazapine for sleep. If you are in my shoes,what has worked for you apart from DBS?Please help.

16 Replies
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If you haven't tried it already, it might be worth trying magnesium chloride oil (MO) spray as it can reduce inflammation and relax muscles while offering pain relief. It is inexpensive so it won't cost you much to see if it helps relieve the dystonia at all. MO is also useful for quickly relieving muscle cramps in hands, feet, arms and legs as well as relieving tension headaches associated with neck and shoulder tension. Oral magnesium products can not do many of the things that MO can, but in combination they work well together. MO also penetrates the skin and can add to your total magnesium intake. Here is a link to one inexpensive product that will be plenty for the purpose of testing :

amazon.com/Now-Magnesium-To...

Good luck and please keep us updated on your use of MO for your neck!

Art

OREOLU
OREOLU
in reply to chartist

I will try this spray.Thanks, charist.

jujulini
jujulini
in reply to chartist

Chartisi/Art - Is it oily? Some reviews on Amazon complain that its oily and grimy. Wouldnt it mess up your sheets and clothing?

chartist
chartist
in reply to jujulini

Yes, it can be and the usual reason why is because the commercial products can be around 70% magnesium chloride which is strong and apparently NOW brand makes theirs around that 70% or stronger range which is at or almost at a saturated solution. I make my own at 50% / 50% which will feel less oily and dry faster on the skin.

You may think that 50% is weaker than 70% and it is, but in experiments that I and others did, a 50% solution is almost as effective or equally as effective as 70%. Another thing I do to make the solution feel less oily is I substitute vodka for the distilled water in my home made mix.

If a person has a commercial product that they find to be too strong and too oily, they can dilute it with vodka or distilled water to bring it closer to a 50% solution. I would take an ounce of the commercial bottle and put it in a small bottle and add a quarter ounce of distilled water and see if that makes it less oily or more comfortable on the skin.

Lastly, I only chose that brand because of the price which would make it really inexpensive for testing to see if it helps or not. Once it is determined that it is helpful, you can try other brands that are more "user friendly", but generally cost significantly more per ounce or like me, I make my own very inexpensively as I outlined in my magnesium post. If the inexpensive product is not effective, you are only out $6~$7 for the test. User friendly products may cost 4 or 5 times as much and these are generally much much more comfortable on the skin. One thing that I have also found helpful is to apply a very small amount of your favorite body lotion right on top of the application area for a more comfortable feeling on the skin. Someday I will make a mag oil lotion to see how it does.

Here is a link to the magnesium post that explains how I make my own and what I use it for and more :

healthunlocked.com/parkinso...

As far as if it can mess up your bedding, I'm sure some must come off on your bedding, but if it does, I have not noticed and my sheets always come clean.

Art

Hi, I found it in my email box this morning. They do charge for a program. The magnesium oil really helps. You can also try essential oils put on the area. Lavender, frankincense would be good ones.

dystoniarecoveryprogram.com/

OREOLU
OREOLU
in reply to parkie13

Thanks parkie13.

parkie13
parkie13
in reply to OREOLU

One more thing, one of those far infrared Jade stone heating pads really helps with pain, truly helps to relax the muscles. I have a size small and you can look at them on eBay and Amazon

I have had some dystonia recently so this issue has been a recent project for me. C/L can make it better or worse. At the moment I am not taking any and that seems to be helping. On other occasions it did seem to help. I do use the magnesium oil that Art suggests and that seems to help a bit. The other thing I am trying which seems to help a bit are leg cramp remedy potions. The most basic of these involves apple cider vinegar with garlic and ginger.

In addition hot showers, liniment, yoga and massage all help as well.

Hi. Could you give more info on your leg cramp potions?

Here is one of the remedies I am trying. It is also available from Amazon:

completenaturalproducts.com...

Here is another:

amazon.com/gp/product/B079D...

Or you can try making your own. I started to experiment with that but did not complete the work.

hanifag
hanifag
in reply to park_bear

How do you take applecider with garlic and ginger

OREOLU
OREOLU
in reply to park_bear

I will try whatever works,as long as it is non invasive.Thanks park_bear.

My husband had terrible back pain due to rigidity which completely resolved when he started on Amantadine 100 mg twice a day. It also helps the C/l work better!

He also takes Neuro-Mag (Magnesium L-threonate) for leg cramps, Melatonin CR from Source Naturals, at bedtime.

He also takes High Dose Thiamine 2 grams a day, and PD symptoms have improved by at least 60-70% and has not needed to increase c/l from initial dose. He was dx’d almost 7 years ago.

This is what works for him...maybe worth a try! Feel better!

OREOLU
OREOLU
in reply to Kattripp

Thanks Kattripp.

OREOLU, I use magnesium "oil" made by Health & Wisdom that I get from either amazon.com or vitacost.com. It's around $15.00 for a 12 oz bottle and a bottle lasts me for many months. Just before I go to bed, I put a few drops on the back and sides of my neck and also on the top of my feet and around my ankles to prevent each of these sites from cramping while I sleep. It works well. It 's not really an oil, but it's a little thicker than water. Yes, there is a salty residue left on your skin after it dries. However, I've read that after it has dried, it has at that point been absorbed into your skin, and it's OK to wipe off the residue with a wet wash cloth. Yes, it does rub off on your sheets, but it comes out when the sheets are washed. To me, to not be awakened with painful spasms at night is worth a little residue on my sheets.

Topical magnesium will add to your overall cellular level of magnesium - which is a good thing. I've read that most people don't get enough magnesium in their diets and magnesium is essential for our body to operate properly.

Two words of caution: 1) you might not want to put it on the bottom of your feet, as it causes the skin on the bottom of your feet, but only on the bottom of your feet, to peel a lot. The peeling doesn't hurt anything, but it looks a little strange. 2) If you haven't started using magnesium yet, start slowly. Some people can have a very intense feeling of weakness the first time they use it.

I also very gently massage my neck as I'm falling asleep.

I hope this helps, and I hope you have sweet dreams.

Thanks Heartsong.

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