I need help in finding a neurologist in Sydney open to talking about Mucuna Prurience and green tea

[verlaat]

I was diagnosed with PD 6 years ago and up to now have not really taken Madopar for PD. The neurologist did put me on 3 by 250mg of madopar at night for my restless legs. Whether that dampened my PD symptoms during the day or not I do not know. The Madopar became ineffective and for the last two weeks I have been Silfor (low dose),which to now is working fine. Over the last month or so I have been more troubled by stiffness and slowness and balance, to the extend that I am considering giving up my (social) tennis. My neurologist is talking about putting me back on Madopar, this time spaced out during the day I suppose. I am keen to give mucuna combined with green tea a trial but i have no idea on dosages. Until I know better I am starting with 3 by 250mg Mucuna Dopa by Biovea (supposed to contain 100m of Ldopa, with a weak cup of green tea with each dose.

I am in my late seventeenth by the way

I will mention it to my neurologist, but based on prior do not expect any great help.

Can anyone recommend a neurologist in Sydney that would be prepared to help me with dosages and guide me on this journey,

[Astra7]

Can’t help with a neurologist suggestion as I am in Perth.

Suggest you try PEA for stiffness. Some of the chemists over here make it up and I expect they do over east. It’s made a big difference to me. Takes a few months to really get working.

Important to keep playing social tennis- so good for all aspects of PD.

[TL500 in reply to Astra7]

what is PEA please? Thanks

[verlaat in reply to TL500]

TL500, I just "googled" P/E.A. and found research paper at

ncbi.nlm.nih.gov/pubmed/283...

or just google P.E.A and Parkinson.

Thank you Asta7 for bringing this to our attention

[TL500 in reply to verlaat]

Thanks verlaat. It's positive.

[verlaat in reply to Astra7]

Thanks for the advice Astra7, but I join TL500 in asking, what is PEA please, and does it help balance as well as stiffness?

[condor39]

I don’t understand your logic. You are turning down medication recommended by a health professional with know benefits and known side effects, and you want to find another health professional who will recommend medication with unproven effects and unknown side effects ?

[verlaat in reply to condor39]

Hi Condor 39

I suppose the main reason I am considering a natural solution is that I do not like the limitations and known side effects of present Parkinson medication and would at least like to explore natural products. I have read quite a number of papers who show the efficacy of mucuna and green tea.

[condor39 in reply to verlaat]

Good luck.

[TL500 in reply to verlaat]

Same here.

[Hidden in reply to condor39]

For these reasons, finding a neuro in Sydney who endorses alternatives will be difficult. Cant speak for other countries but Australian specialists tend to stick to what's in the books.

[condor39 in reply to Hidden]

You mean they stick to things that have been proved to work?

[Hidden in reply to condor39]

Yes. Personally I think it would be bizarre if a neurologist started advocating for random brown powder from the internet to treat your brain disease, but it seems some are open to it.

[verlaat in reply to Hidden]

they are the "some" I am trying to find,

[Hidden]

My issue with Mucuna powder (whether it's 10 percent or 50) is that you have to pile so much in that you are now eating loads of whatever other stuff the manufacturer has seen fit to put in there. Who knows that is and what it's doing to you medium to long term? On the hand, when you've already got PD...

[verlaat in reply to Hidden]

I understand your point of view, that is why I would only deal with companies like Biovea or Nutrivita. Biovea have a 250mg pill with 60% L-Dopa, and Nutrivita have a powder that is guaranteed to be 100% pure. To mimic the action of Benzarazide in Madopar people use green tea. The real tricky bit is to determine the amount of green tea. The potency of the L-Dopa in the brain will depend on the amount of green tea. It makes sense to me, but you may well be correct, but I think it is worth a try.

[Hidden in reply to verlaat]

I think it's worth noting that 99% ldopa by nutrivita is not really 'mucuna' as every other part of the Mucuna plant (and the research indicates that these other parts are having a probable positive effect) has been eliminated. So be conscious that you aren't really replicating research where they use Mucuna Pruriens.

Have you tried stalevo?

[HormosiraBanksii]

I am looking for the same thing as you, but have not found such a neurologist in Sydney.

In the meantime, this chapter from the book, Parkinson's Disease - Understanding Pathophysiology and Developing Therapeutic Strategies, is written by a neurologist and has useful information ::

intechopen.com/books/parkin...

Also, the book specifically mentions the cautions about using green tea and mucuna. I hope you find what you are looking for.