We just got home from Columbus, OH couple hours ago where the FUS was done.
I hope I answered all your questions in Iqbal’s thread. If not, ask away.
Otherwise, here is everything you could want to know in videos.
5:30 min video
If some of these YouTube links don't work, go to YouTube and enter focus ultrasound tremor or Parkinson's.
It does hurt to have the helmet/bracket screwed into your head. Actually getting the Novocain shots hurts more. On a scale of 1 to 10, I give the pain a 7+, but it only lasts for a few minutes.
My impression is that it has benefited everyone, except perhaps those where the doctor missed the target. A forum member here has said the benefit only lasted her 3 or 4 months, so maybe success is defined as how long the benefit last. I don't know if she had a thalamotomy or pallidotomy. My expectation is 18 months, my hope is maybe more.
Doctors are tightly limited as to what they can say, but I am of the impression that pallidotomy relieves tremor, rigidity, and bradykinesia. I suspect there is some spillover benefit into other areas and I believe our brain does some work around tricks.
The tremor disappears at the time they're doing the procedure. While I was in the MRI, they announced that they were going to do another sonication which is a 15 second burst of soundwaves. Then they come in and examine the tremor. Then they go back and keep doing sonication's until the tremors gone.
Because it was a trial, the doctor was not allowed to acknowledge that it was a sham procedure, but in my case, I'm sure he knows I know I got the sham.
I have 3 follow-up evaluations, after which I can schedule the real thing, which I will do.
They do 2 of these every Monday and sometimes they do a third during the week. They are getting far more people than they anticipated and are expecting the stop recruiting in all locations at the end of this year.
PS. In the paper Iqbal posted, there is some speculation that it may slow progression. Scuttlebutt is 1 of the women who had done in Switzerland has enjoyed the benefits now for 6 years.
I would encourage you to watch these videos. I researched the cr*p out of this 1 and I'm confident it's the right thing for me.
Focus Ultra Sound Foundation
The manufacturer is Insightec. Go on their website too.