Facial Dyskinesia

[jcavana]

Anyone have this? If so, what did you do?

Could combo of azilect and sine start cause this?

[justjohn46]

no jcavana you will find a lot of people here get it i did its just one of theses things people with parkinsons get.regards john.

[rhyspeace12]

My husband gets it when he has an extra amount of dopamine in his system.

[Stazina]

This happened to my husband, he had started on Artane but was drinking heavily while on it. He was also taking Carbadopa/levodopa. When he stopped taking the Artane, the facial dyskinesia stopped. Please tell your doctor because if the meds your taking are helping you with symptoms otherwise, he/she can give you something to stop the facial movements. This is often EPS, Extra Paryramidal symptoms meaning it's caused from a certain med.

[Despe in reply to Stazina]

Artane: EVIL MED! Stay away!!!

[Stazina in reply to Despe]

You've got that right!

[etterus]

I have tongue dyskinesia... a real party attraction. Ya gotta make the most of any and all assets when you are “out there “!!

[Stazina in reply to etterus]

That made me laugh, but I know it's not a laughing matter. If it's being caused by one of your medications, which it sounds like it is, your MD can order a med to stop that. My husband had tongue darting and lip smacking from a Dopamine agonist med called Artane then took Primidone and same thing.

[Sandman501]

I got the eye closing one. Where my eyes close and I need to open them with my fingers.

[Stazina in reply to Sandman501]

I have not heard of anyone experiencing this symptom before, wow what does your doctor say about that?

[Sandman501]

She just said it was a form of PD. I also read a British article saying the same thing.

[Zella23]

My husband who takes C/L only gets this occasionally when he has too much dopamine in his system, sometimes at the end of the day! Comes and goes.

[jcavana in reply to Zella23]

Did you talk to your neurologist about a medication to stop it?

[Zella23 in reply to jcavana]

We did talk to our neurologist about problems with C/L but he just wanted to add a dopamine agonist. My husband prefers to adjust his C/L as to his needs as it’s more predictable on the effect it has on him rather than introduce an unknown. We are at the moment changing neurologist as he is really difficult to communicate with and my husband is finding some relief with B1 plus other supplements - we can’t discuss with neurologist! He seems to be anti discussing alternatives and my husband is really frustrated with him.

[Bazillion in reply to Zella23]

My PD specialist is a gem she really listens .Like you she suggested I adjust my meds to suit my needs works well and haven’t needed to increase dose or take extra meds . I have regular times between meds but if I get up early start early if I get up late start late.seems to work for me

[Zella23 in reply to Bazillion]

Thanks for your reply. Off on Tuesday to the London Hospital for Neurology so will be interesting to see how their approach differs from our previous experience with our Neuro is. We re hoping much more than we ve previously experienced.

A colleague of mine attended the above hospital with her mother and the difference in their attitude was very supportive and helpful! This was the opposite of her experience with her previous Neuro - and oddly enough the one my husband was seeing.

[Fenian5]

I have been on Azilect for 9 yrs and have had no side effects that I can attribute to that med. I’m also on Rytary and MirapexER. No side effects, unless morning stiffness can be blamed on them!

[jcavana in reply to Fenian5]

Do you take Azilect at the same time as a sinement dose?

[Fenian5 in reply to jcavana]

No, I take two Rytary when I get up, then 1 five hrs later, and the third one five hrs after that one. I take Azilect after I eat breakfast.