I was diagnosed with Idiopathic PD in Feb ‘18 and put on a course of Madopar which, in varying doses, I’ve been on since. The Madopar simply doesn’t seem to have any effect and I can genuinely not make any distinction between how I feel after having taken a dose and (for example) 1st thing in the morning when it’s perhaps 12 hours since my last one. I experience nothing at all in the way of “on-off” periods that many other people report.
I have many of the normal symptoms of PD including tremor, bradykinesea, rigidity, micrographia, etc and recently my speech has become more effected. I also get a lot of back ache and when I walk it’s like my centre of gravity has shifted uncontrollably forward, giving me a very awkward and uncomfortable gait.
I’ve been told that Madopar is pretty much the “gold standard” drug treatment for PD and also that the effectiveness of the treatment is one of the ways diagnosis is confirmed.
Since the drug doesn’t seem to be helping me very much at all, (and I’ve been on it 18months now) I’m becoming concerned that it may not be PD but one of the “PD Plus” ailments. The list of symptoms for MSA seem a good match for my condition and I’m wondering I might have that instead?
Anyone have any comments or similar to share?
Paul (61 y/o, UK)