Our daughter was prescribed neupro to help with her leg pain.
Does anyone use this med? She was told by her pharmacy that it would cost $700:@month......what is it with these expensive meds for the average person???? Not sure if her insurance will cover any of it and she’s not on Medicare, not that that would matter......
Any side effects?
Hi a have been on nepro patch 3years now for Parkinson have been taken night cramps at night and my toes curl up so needing to change medication xx
Surely there is another medication for her leg pain. See another doctor. If she has PD, find a movement disorder specialist. Aside from the cost, Neupro can cause addicting behavior such as binge eating, spending, gambling.
I am on 4 mg patch for a few years now. Also C/L and Rytary. Go to Neupro website. Doctor can help fill out a form and comPany helps with expense. My copay is $10 a month.
I have been using the Neupro patch for several years (8mg/24 hours). I also take sinemet and amantadine. all three of them have various compulsive behaviors as a possible side effect, but I have not experienced any of them. I am on Medicare so my insurance covers most of the cost.
My husband has been on Neupro since 2012 with no side affects. It was a life saver as far as he was concerned. He’d been diagnosed with Lewey Body Dementia (Parkinsonian dementia). He was lying on the bed all day with extreme inertia, not interested in anything(no dopamine). He was on Madapar (levodopa) which did nothing we could see. He started on 4mg of Neupro (patch) and within weeks was up and about and back to normal mentally. Diagnosis then changed to Parkinsons. Neupro is also prescribed for restless legs. It can have(for some people) a severe side affect of causing addictions, gambling, sex etc, but only in some. It shouldn’t be the reason you don’t try it. It’s pretty easy to stop taking it. It has unfortunately stopped working for us and he’s been back in bed (20+ hrs a day) no dopamine. He is now on a trial drug from the US (Xadago) which works with levodopa apparently. It has started working (3weeks on), but has a way to go. Fingers crossed. As far as cost goes, I find it hard to understand how a country like the US can have such a crummy health care system. I’ve decided we in Australia have the best health care in the world. The most Neupro would cost here is $40 a script (28 days supply( and if you are unimployed or on a low income $7. Someone on this site suggested previously that you get a script and have it filled in Hong Kong. No idea how you do that. I’m sure someone here could tell you.
Maybe don’t tell your specialist though 🤭. Good luck
gwendolinej
The US does not have a crummy health care. Health care in the US has better outcomes than any other country. The reason you pay so little on drugs is due to socialized medicine which imposes price controls on drugs sold in that country. we don't yet have price controls on drugs so the cost of drugs is what the market will bear. Drugs are also expensive just as healthcare because the cost is born by 3rd party and not by the consumer. A free-market capitalist economy is the only humane economic system that will reduce the cost of healthcare. When consumers have to pay they will shop for the best price which forces pharmaceutical companies to find ways to reduce cost in order to satisfy what consumers want. It works in other sectors of the economy e.g. cell phones, computers, etc. Government control/regulation squashes innovation which also accounts for the high cost of drugs and health care. Those who advocate price controls live in a fantasy world. Economic reality eventually exposes the ugly head of socialism e.g. Venezuela whereupon everyone is miserable.
Well said. Worked in the heathcare industry for 26yrs. Still the best in the world, even though the government is trying to ruin it.
Leg pain? Neupro is prescribed for Restless Leg Syndrome (RLS) and Parkinson's Disease. Is leg pain associated with RLS and that is why it was prescribed? The cost of drugs depends on your health plan. Neupro would cost me about $100/month thru a retail pharmacy but I can get it thru mail order at $90 for a 3 month supply.
Side effects vary with people. I've been on Neupro for about maybe 9 -12 months but I take other medication so it's difficult to determine which drug I take is giving me side effects such as runny nose, urge to spend money, lightheadedness, sleepyness, blurred vision, urinating more than usual.
rxlist.com/neupro-side-effe...
Really. We look after our disadvantaged and our health system is not socialised. It is actually studied and copied by many 1st world countries? The US is a great country in many ways, but like every country, it's not perfect, and it's health care system is one area where there's big room for improvement. We have spent a lot of time in your country and love it. We have defended it against criticism in many areas over the years and still do.
Cheers
gwendolinej
I think neupro, like any medication, should be taken with caution. It is addictive meaning the dosage has to be raised over time, and there is difficulty to come off of it is my experience. It took me a couple weeks to normalize from withdrawal symptoms when I decided to stop it.
She’s waiting to start the Neupro until she sees what her insurance will pay.
Another question......should sinemet be taken on an empty stomach. She takes hers every 3 hours (25/100) so it’s almost impossible. Just wonder if this is necessary.....reading that the absorption is slower is not on an empty stomach.
Didn’t know I would raise any issues with health care system. Just wanted to know if anyone had used Neupro and if the side effects were worth the e pensive med.
We may go with a Itsmin and herb supplement first to se if that helps. However, that can get expensive too and insurance definitely doesn’t pay for those.
So it’s a conundrum.......confusing......
Any advice? Good/bad experiences with the Neupro patch for PD? 
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