Parkinson’s and lymes: Has anyone... - Parkinson's Movement

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Parkinson’s and lymes

Sandmanliz
Sandmanliz

Has anyone found they have lymes disease ? I have Parkinson’s symptoms but also very very sick. Extreme fatigue. Finally found I had lymes with DNA test with urine . Blood test were negative. Not sure if I have both or if one is causing the other?

39 Replies
oldestnewest

Lyme disease is curable.that what cause your fatigue.

Hidden
Hidden

Lyme can mimic many PD symptoms, but do you have an actual diagnosis of PD or just Lyme?

I'm just curious if you have tried colloidal silver nanoparticles as part of your Lyme regimen? I don't think it can eradicate Lyme on its own, but it is a rather potent antibacterial, antiviral and anti fungal that has a pretty good safety profile in humans and has shown the ability to have synergy with quite a few antibiotics and in some cases has shown the ability to refunctionalize antibiotics that have lost their effectiveness through resistance.

draxe.com/how-lyme-disease-...

Art

hi i tested positive for lymes privately but struggled to get the nhs to take it seriously even though the main centre also said early signs of nueroborrlyiosis. nit sure what to do nxt as i have been diagnosed also with yopd, the stalevo helps in short periods.

any advice please???

Sandmanliz
Sandmanliz in reply to Todd-pw

Lymes is often misdiagnosed especially if just left blood tests are done. You need to have your urine checked with a DNA test. It is called a lyme panel . I was just too sick for it to be only Parkinson’s. I can barely get out of bed. Neurologist just said you probably have Parkinson’s . He gave me sinemet with no instructions and said see you in three months. I have a nurse anesthetist for 30 years and i’m embarrassed at how lazy General medicine has gotten. I knew that in my practice as I had to work up my patients myself . Anyway, sinemet had no effect so it made me wonder if something else was going on also I was much more sick than most PD patients.

My tremors are so bad that I cannot work, wright or barely type anymore . Thank you to this site that has logical thinkers and great research.

park_bear
park_bear in reply to Sandmanliz

Here is a blog by someone with Lyme and Parkinson's:

bobcowart.blogspot.com/

Someone who was healed from Lyme disease by practicing Qigong:

youtube.com/watch?v=2lPdvAO...

embodyinglove.us/about_vivi...

Qigong also has helped me quite a bit with Parkinson's, my story here: healthunlocked.com/parkinso...

I have also observed that Qigong has not healed everybody - I do not know what the crucial variable is but I do know that it does take dedication.

bepo
bepo in reply to Sandmanliz

A dark microscopy done in the SF bay area, I forgot the name of the lab, is the only test I am aware of that can definitively diagnose Lyme.

have a look at the breakspeare centre, specialists in lymes

Todd-pw
Todd-pw in reply to Todd-pw

this is in the uk

As someone who has battled Lyme, I found the alternative medicine and regimes to actually work. My husband has Lyme too but also PD. He is only 48. His PD symptoms were racing out of control for 6 months as I battled to get him approved for a DAT scan. His tremors increased to where he could barely lift a spoon, couldn't sit for more than 2 min. had to lay flat on the floor for any small relief, couldn't sleep either. Finally had scan and received sinemet. However, we are treating the underlying Lyme because Lyme mimics a lot of chronic/autoimmune diseases. Each Lyme patient is unique therefore there is no one cure for it. Antibiotics don't work unless you are the lucky 30% who get a bulls-eye rash and treat within days of that. Undetected, Lyme attacks the weakest places in your body. For some, muscle and joint, others brain: hence neuro symptoms. One must find a regime that focuses on the symptom areas. Research, research, research. Be smart and only "hire" doctors who are willing to listen and work with you.

Thank you so much for your comments. Reinforces that I am on the right track. I am doing Dr. Rawls protocol. He wrote unlocking lyme. That is my foundation of herbs. I have also learned that my mercury level is high. Need to get those fillings changed out. Apparently lymes likes mercury and uses it to create bio films. Most people with lymes have high mercury levels which is also not so great with Parkinson’s.

I am pretty weak right now. Have to wear old sweatpants because I can’t pull up my good jeans. Can not write or walk very far.

Two years ago I was skiing living here in Colorado. I am 59 years old. I was starting the herbal protocol last week also with more herbs added by my natural path yesterday. Also using rife treatments. Give me A few weeks and I will update you guys. Might be an interesting thing for people with Parkinson’s to look at as lymes is exploding right now.

My husband has had parkinsons and before we knew he had parkinsons he had lyme. What type of lyme is it? It is only curable in a small space of time. It remains in your system and can flare up. There are quite a few different strains and all have different reactions to antibiotics. If your parkinson's symptoms came from the lyme, it was an advanced case. Lyme will go neurological depending upon the type and time you've had it.

LindaP50
LindaP50 in reply to Samantharex

My husband started with Lyme. His exhaustion was one of the main symptoms. Treated by a Lyme specialist which helped with the exhaustion but the Lyme morphed into Parkinson's/Parkinsonism (jury is still out on this one). Both Lyme disease and PD can reduce dopamine.

Many conventional doctors do not believe in chronic Lyme disease unfortunately forcing affected people to go to integrative doctors and its costly $$ all out of pocket.

My advice is to go to a well know LYME doctor. They are not always covered by insurance, but also know more than the typical MD. I am not sure where you are located, but we are in NYS and the medical community here is oblivious to lyme in many cases, as that is how the insurance companies want them to be.

Opt8
Opt8 in reply to Samantharex

I feel many Doctors truly want to help us; however, unfortunately, are controlled by the insurance companies along with others. I too wonder about Lyme disease. My pd symptoms are diminishing since trying holistic things yet my immune system is messed up. I feel the mystery of the source of my symptoms still prevails.

I have eight of the 15 strains. My natural path says one of the worst Resulta you seen. I guess I do something right ha ha Believe me I’ve been doing research for months and months I also have a medical background and agree that the general medicine know.nothing. There are many lawsuits being won right now by patients with insurance companies are convincing doctors not to take in Lyme Patients. There are two senators on the East Coast asking for government funding for research and treatment. Anabiotic’s only work in the first six months. After that anabiotic’s can make it worse as lymes is shaped like a spiral and digs and hides from anabiotic‘s. Guess where the best places to hide are ? Your brain and your joints. Anyway I know the spaces for Parkinson’s but if anyone has questions about lymes I’m happy to help. I’m in Denver and my neighbor across the street daughter also got limes. She’s from Vermont so she recognize the rash and treated right away. It is not just an East Coast thing anymore.

I was recently diagnosed iwth PD and went to a taented integrative medicine Doc who is looking more at addressing causes than symptoms.. She ran a number of test including pathogen tests including toxoplasma gondii, lymes bands, ebv, hhv and a few more. Many showed relatively high titres. Her treatment protocols are novel (and expensive) and involve iv infusions as well as oral meds and supplements.

She also tested for toxins and glyphosate (than you f'in monsanto and fda), organophosphates, lead and some other chemicals showed up high. I didn't grow up or ever live on or near a farm so some of these had to be pollutants in food and water.

The common denomenator is they are all pro-inflammatory and generate high levels of reactive oxygen that can and do affect our neurology.

After 14 weeks of reatment levels of most of the bad guys have dropped significantly. More to go...

aspergerian13
aspergerian13 in reply to Jandeb

Inducing pathologies by allowing "safe" levels of toxicants is one of the duties of regulatory agencies.

Thank you. I’m going for a full body scan today using electromagnetic testing. Listen, this anesthetist had to really open her eyes. I’m not doing anything without full research and probably drive my natural path crazy. Thanks for giving me another list to ask them about :-) they’re checking me for parasites fungus and mold etc. today . Even with Parkinson’s I think it’s important to check out the rest of your body. I’m researching right now a toy called the amp coil. I’ll let you guys know what I think.

LindaP50
LindaP50 in reply to Sandmanliz

A full body scan? Is insurance paying for this scan? Husband had a DatScan and luckily was paid in full by insurance - was approximatley $7,000. Radiologist found reduced dopamine and diagnosed as Parkinsons.

Sandmanliz
Sandmanliz in reply to LindaP50

Lymes can drop dopamine too. I did not do a DAT scan because I was so sick I didn’t want to be injected with anything unhealthy also was going to cost $4000 with insurance. My body scan was done with an electrical magnetic scanner. It seem a little kooky but there is a lot of science. Basically it works like a tuning fork. They look for different frequencies and different dermatomes to see what hiding .

LindaP50
LindaP50 in reply to Sandmanliz

Interesting!

I reached out to a friend of mine who has had Lyme disease for many years. She has recovered to the point of being able to take care of her activities of daily living. Here is what she had to say:

"For starts, I'd suggest two divergent paths - one antibiotic based and the other herbal based. These are not mutually exclusive and the LLMD who wrote the book I'd recommend for antibiotic treatment also uses herbs and supplements. The herb-based one isn't as open to antibiotics. Dr Richard Horowitz has two books focused on diagnosing and treating Lyme and co-infections and also youtube video interviews. I've read his books and believe he has a solid grip on it but I'd already gone through all the treatment I intended (w/o a cure as you know) and didn't follow his program. But much of the antibiotic treatment I did use was similar to what Horowitz suggests but I was so much earlier in time that there wasn't any standard of practice or complementary medicine component (although I figured one out). Also I was/am limited by allergies.

The herbal approach I used is similar to what Stephen Buhner lays out in his books although I've not read any but his 2005 book Healing Lyme. The most extreme treatment advice is from Dr Dietrich Klinghardt and he also has youtube videos, books and a website. IMO the best youtube interviews/podcasts with Klinghardt are done by Scott Forsgren who has LOTS of blog posts, conference proceeding notes, and youtube videos under the name Better Health Guy. He's good but goes way further than I could afford or wish to do. Scott had/has Lyme, mold, and other health troubles and became involved to save his own life. Now it's more of a mission and business.

All these people are easily found with a google search and have abundant info online plus books."

LindaP50
LindaP50 in reply to park_bear

Husband recently saw an NP who opened her own practice and she is under the tutelage of Dr. Richard Horowitz. Seems we've done everything we could for the Lyme and now focusing on the Parkinsonism.

Which came first the chicken or the egg?

park_bear
park_bear in reply to LindaP50

I believe the Lyme disease came first.

LindaP50
LindaP50 in reply to park_bear

I do too, but the integrative NP was inferring to PD. I did not agree. Thanks for your reply.

Sandmanliz
Sandmanliz in reply to park_bear

Thank you so much. Bughner he’s pretty much the father of herbal anti-lymes. Dr. Rawls is very similar .

LindaP50
LindaP50 in reply to Sandmanliz

We cut back on sugar and caffeine for the Lyme. Did an herbal protocol.

Still use liposomal glutathione and NAC (precursor to glutathione), turmeric, cinnamon and a few others.

bepo
bepo in reply to park_bear

Dr. Kinghardt is great!

bepo
bepo in reply to park_bear

Be careful with too many antibiotics. Ozone works better.

See articles listed and linked:

scholar.google.com/scholar?...

scholar.google.com/scholar?...

scholar.google.com/scholar?...

We were helping a woman in our small town who has had lyme for 60 years. She was told she was crazy, that there was no lyme. We began treating her to ozone saunas. She noticed she was feeling better. We told her to come at 10 am. She liked to sleep until 12:30 pm. So, she stopped coming. Then she went to our local MD who does autohemotherapy with ozone. She got a herx reaction and didn't return. I asked her, "Who would you be without lyme?" She has had it all her life. Also, Dr. Jay Davidson's wife had Lyme. He has a different treatment protocol. My bet is on the ozone. Go to: robertrowenmd on youtube. "Is ozone the miracle cure?".

chartist
chartist in reply to bepo

Several reasons why silver nanoparticles (AGNPs) may be very useful as part of an anti-Lyme regimen :

townsendletter.com/July2016...

Art

bepo
bepo in reply to chartist

Thanks for the post and a new, potential source of info.

chartist
chartist in reply to bepo

Please note how they point out that the positive effects are related directly to using silver nanoparticles (AGNPs) as opposed to colloidal silver which is often times ionic silver (AG+), which would be the more correct name for it. AGNPs attack many aspects of LD including biofilms, parasites and multiple bacterial and viral strains as well as some fungus and more making it a potential adjunctive to a strong LD regimen. All while having a very good safety profile toward normal cells at the concentration required to be effective. AGNPs are also known to cross the blood brain barrier where the neurological disease effects come into play. Rodent studies have shown antiinflammatory effects in the brain via increased hydrogen sulfide (H2S). AGNPs have also shown the ability to recycle antibiotics that have become ineffective over time.

I think researchers will be hard pressed to find any other individual supplement or prescription with as much potential to treat LD while exhibiting such a good safety profile!

Art

bepo
bepo in reply to chartist

Thanks.I will pass it on, Art.

chartist
chartist in reply to bepo

Most are probably aware of teasel and stevia, but I forgot to mention that "grapefruit seed extract" is a potent spirochete destroyer.

Art

chartist
chartist in reply to bepo

Lastly, because of multiple biofilm issues, Serrapeptase will help to break these down allowing the offending bacteria to be effectively attacked. The AGNPs will likely be additive in this action.

Art

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