If you were able to see the BBC two part documentary on the Bristol GDNF trial you will recognise this woman. These are her feelings now its been dropped by the drug company... youtube.com/watch?v=45FQ-Ei...
If this link doesnt work, the video is called "pfuck pfizer"!
Perhaps this will work...
When I become president (in the US) I will pass a law that requires pharmaceutical companies to continue providing therapy to those who volunteered in the trial for whom the therapy worked. The cost will be paid for by a 1/10 of 1% tax on the pharmaceutical companies. Yes, of course there are a lot of people in the pharmaceutical industry who care deeply about people, just as there are in the telecom industry or the automobile manufacturers, but the executives that run these companies don't. That's my opinion and I'm sticking to it.
Drug companies are extremely relentless and ruthless. Pfizer is one example. God has created the cures first and then the diseases. One has only to explore and search it out. I suspect that there may be some instances in the past in which pharmaceutical companies may have deliberately pushed the cure under the carpet
And the way they do that is a large pharmaceutical company will buy a smaller one that has developed a promising drug to keep it from going to market if it undermines a lucrative symptom therapy. It happens all the time. For-profit drug research doesn't work any better than for-profit healthcare--unless you have money coming out your ears.
I totally agree with you Marc. Not only should Pharmaceuticals provide clinical trial participants with drugs ongoing.... they should, when participants experience "bad outcomes" (eg experience a stroke or infection post operative to brain surgery - where the outcome is clearly the result of trial, voluntarily pay for long term care for the rest of the patient's lives. Let's toss in funeral expenses as well.... rather that the "30 days and you're on your own, good luck, and sue us or your insurance company if you need to" which is the universal policy in the U.S. today. Not looking for "pain and suffering" money here... not a checkbook ongoing...
It seems to me that of the four "stakeholder groups associated with CT's, MD's, Research Organizations, Pharmaceutical Companies and Trialees... 3 of the groups get "paid" and those people risking life and limb get only the "possibility" of a good medical outcome.
There is SO MUCH that the medical industry could do to make Clinical Trials
more attractive to participants. If you want to do something really scary, take the typical 20+ page Trial Consent Agreement to your legal counsel for review. Honestly I'm tired of hearing the refrain from the medical industry on how delayed research is because people are hard to get for CT's. MAKE TRIALS MORE ATTRACTIVE. If Pharmaceutical Companies can't understand the moral issues they seem to be ignoring, perhaps they could view all this in a "cost of doing business" framework.
Put me down for 1 vote for you as President.
Frank, well said. Instead of your vote, how about if you be my running mate?
Frank, I haven't seen an update from you long time. Did I miss it? Is the trial still ongoing? How well has it worked for you?
I just completed a trial for ENT-01, discontinued nilotinib for 2 months and have to start back again, but I'm concerned because 12 lead EKGs are not reliable because of the tremor. I suppose I could try and find an 8 lead machine. They must've done a lot of EKGs on you during the trial?
Nilotinib? You still in the game?
Yes, as I say above I took 2 months off to be in a trial and resume as of a few days ago. How about you?
When I participated in the focused ultrasound study, in the paperwork, Insightec (the sponsor of the study and manufacturer of the equipment) committed to lifelong medical care in the case of an adverse effect.
Marc. Not sure if even president could challenge such a huge corporate. They choose presidents, the are the law makers, even decide about the FDA policies simply because they have money and power.
We should not waste our time waiting for a cure from these people. It will never happen. They only provide symptoms relief drugs as they have continues profits for them. Lets try to find a cure ourselves.
Facts about Pfizer:
I agree, Kia.
Pfizer gets caught testing a drug on 200 children in Nigeria without their knowledge or consent which killed 50 of them and disabled most of the rest both mentally and physically. I guess they figured they could skip studying mice by studying children Nigeria.
Oh Vicky.
It certainly is unethical, and cruel.
God bless and strengthen us.
Xx
Agree with her.
That really is a remarkable statement. Does anyone know how to contact this person?
30 + Ways to increase GDNF Naturally 
Phone call w/ Stem Cell Trial- Preclinical- 10 PWP ASAP. Participate in the preclinical to be first to have chance at phase 1 clinical. Woman from a stem cell trial featured in a short video 
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Buntanetap trial people
