Feeling Better Than Last Year!: I saw my... - Cure Parkinson's

Cure Parkinson's

25,501 members26,819 posts

Feeling Better Than Last Year!

jujulini profile image
34 Replies

I saw my neurologist last week and he was pleased to see how well I was doing. At my previous visit (8 months prior), he said, "You must be doing something right." We discussed the homeopathy and the mannitol, and I was just starting the high dose thiamine.

At this recent visit, I told him I was feeling really well, better than a year ago, and had improved since starting the HDT. He said he read up on Dr Constantini's protocol since my last visit, and was encouraged, but wished there were some studies with placebos.

After doing a few pull tests, observing my walking, and doing some finger taps, he laughed and said, "Well, it looks like youre taking better care of yourself than I am, do you want to change places?"

He is very encouraged with my improvement, and went on the computer to the Health Unlocked site while I was there and will be looking more into Dr Constanini's HDT. I'm so lucky to have a neurologist that is so humble and open to alternatives.

Please check my profile for more details on my thiamine,etc. I just updated it.

Written by
jujulini profile image
jujulini
To view profiles and participate in discussions please or .
Read more about...
34 Replies

lucky to have a neurologist that is so humble and open to alternatives.

Goldencbc profile image
Goldencbc

What good news!

Fed1000 profile image
Fed1000

In the medical field it is very difficult to find such humility. You are lucky. How long have you been using Mannitol?

jujulini profile image
jujulini in reply to Fed1000

ive been taking mannitol since 11/17 felt just generally better since taking it, but the biggest noticeable thing was that i got my sense of smell back.

ion_ion profile image
ion_ion

Me too! But Mannitol does give stomach problems?

RS313 profile image
RS313 in reply to ion_ion

ion yes its gives a lot of gas!

jujulini profile image
jujulini in reply to ion_ion

i dont have any problems with it.

ion_ion profile image
ion_ion in reply to jujulini

I read in a comment which I do not find no more that there is mannitol with an antigas substance; is that what you use? and how much per day do you take?

Thank you.

jujulini profile image
jujulini in reply to ion_ion

I use the bulk supplements brand from amazon. 2-3 tsp/day.

jujulini,

Kudos to you on the steady improvements over the past year and kudos to your neurologist too, for taking an open approach to HDT!!!

Art

enjoysalud profile image
enjoysalud

I am happy for you!

JANVAN profile image
JANVAN

Fantastic, a real pragmatic reaction !! Where does your neurologists lives ??

And what's your regime of tablets now and how long you've been diagnosed ??

jujulini profile image
jujulini in reply to JANVAN

please check my profile for details. my neurologist is in williamsville ny, a suburb of buffalo

JANVAN profile image
JANVAN in reply to jujulini

Thank you.....but a bit difficult for me, as I am living in Europe....

Berylhorsey1 profile image
Berylhorsey1

I am seeing my neurologist next month. I have been on B1 for six months and I feel the improvement is phenomenal. Be interested to see what they say.

jujulini profile image
jujulini in reply to Berylhorsey1

yes, let us know.

jimmydook profile image
jimmydook in reply to Berylhorsey1

How much do you take please?

Berylhorsey1 profile image
Berylhorsey1 in reply to jimmydook

I take 1000mg a day. 500mg x2 at breakfast, 500mg at lunch and 500 atdinner

in reply to Berylhorsey1

Berylhorsey1,

I am very happy to hear that your results using Dr. Costantini's HDT protocol are "phenomenal " and durable over the past 6 months since starting! I don't know if you have seen the following post, but you might be interested in reading it if you haven't!

healthunlocked.com/parkinso...

Art

sue2000web profile image
sue2000web in reply to

Thanks easilly, I had it sent to me as I had an on line consultation with dr C some time ago. I really hope he is well soon. Thanks for sending it through though x

Oceanflow profile image
Oceanflow

So happy to hear this! Aren’t you lucky to have a good dr. !!

jeeves19 profile image
jeeves19

Funny as I was thinking of ditching the Mannitol! How long have you been on the B1 for Jujulini?

jujulini profile image
jujulini in reply to jeeves19

please check my profile for details. it is recently updated.

2Farmboys profile image
2Farmboys

What homeopathy are you using, may I ask.

jujulini profile image
jujulini in reply to 2Farmboys

arsenicum album & zincum metallicum, but as you probably know, it is individualized - what works for me may not work for you. do you use homeopathy?

2Farmboys profile image
2Farmboys

Our functional dr has my husband on several remedies.

Unfortunately we are also fighting Lyme, mycoplasma, heavy metals, and mold/mycotoxin toxicity as well as Candida.

jujulini profile image
jujulini in reply to 2Farmboys

2farmboys - heavy metals (mercury) caused my pd. See my profile for more info.

in reply to jujulini

i think mine came from a combo of mercury from amalgam fillings and working nine summers in the corn fields full of pesticides. I'm feeling better with B1 also

ConnieD profile image
ConnieD

Do you still get dystonia at all?

jujulini profile image
jujulini

the only time i used to get the distonia was very early in the morning before i take my first dose of c/l. now not at all.

ConnieD profile image
ConnieD in reply to jujulini

Same here but I still have it in the am, I wonder if it’s one of the other supplements you take since I take mannitol too and after being up and down the b1 doses have also settled on 200mg. I think we might have the same Dr., Dr. G? Are you on a special diet or exercise regime? Thanks!

jujulini profile image
jujulini

connied- no, its definitely the thiamine, because the distonia stopped within 3 weeks after starting it. i dont have an exercise regime; i was never one to exercise. and i dont really have a special diet - except that i dont eat any processed food, everything is made from scratch, and very little sugar (but i do eat trader joes belgian chocolate regularly-so yummy & really cheap, lol), no coffee, tea or alcohol. i eat alot of vegetables and fruit, and plenty of proteins at dinner. i stay away from vegetable fats - and instead i use olive oil, lard and lots of butter, and cream. and, no, i am not fat. lol....

yes, dr guttuso? how long have you been seeing him? he diagnosed me in 2006. isnt he great?

ConnieD profile image
ConnieD in reply to jujulini

Yes that’s my Dr too! I was seeing another dr in his group that wasn’t open to supplements and he definitely is, I want a dr I can be open with. The other dr said flat out no to anything so I knew She wasn’t getting the full picture and I worried what if something I’m taking could adversely interact with my meds, I’m certainly not a dr. and while I want to try things that could improve my situation I also want guidance so I’m not doing anything dangerous. I’ve only seen him twice so far but yes he seems great! 😊👍

david1972 profile image
david1972

We buy it from mannitolbalance.com

because of its Non-GMO and made in France.

You may also like...

Voice recognition software -- better than any pill.

because it will surely be better than the microphone that comes in your computer and it will make a...

PTT 1 year later. This will be my last PTT status report.

most recent neurology exam, last week, the neurologist said he could detect no stiffness or...

Is ELDEPRYL the reason for my PD not getting vorse the last 15 years?

would think. The only thing I see I do differently than most others is that I take ELDEPRYL 10mg 1...

Is Rytary really working better than Carbidopa/Levodopa?

I saw my first neuro after over five years

I think the Thiamine helped me but he did not buy it. I told him I feel much better than five years...