dave

[trotter72daveextri]

i was diagnosed 20 years ago with pd and as an ex marathon/triathlete ihhave found the fitness/cardiovascular aspect has helped me--i am now 72 get occassional energy boosts(walking soccer,walk to the pub) but can freeze suddenly(5 mins) cannot walk.breathe,talk,swallow,incontinence etc wheelchair job until stalevo works up to 1hour-------------i was flat on my back all lunchtime but just walked up town and back--the wife just called me a liar----what can i do?please help me before i commit suicide-------------

[Hidden]

Hello dave, I am roy, 71 yo. Let me get back to you on that last comment.

[Kwinholt]

Hi Dave, while I am 56 and have had PD going on 6 years , I am a marathon/ultra runner and my first symptoms were the freezing , not being able to move at all. Before I got familiar with my meds and how fast or how they worked , there were times that I would walk into a store and freeze and not be able to move to get out. And the more I would panic the worse it got. Fortunately I had my phone and called my husband to come get me. My cd/ld is what helps release my freezing . Are you on meds? They have an injection , similar to an epi pen now but with our PD meds in it that when you freeze you can inject in your muscle to help release it. Maybe a thought. I too agree with you having been a runner prior to diagnosis it has helped and I still continue running but I am much slower at the marathons then I used to be . 😊 Karen

[M1tz1 in reply to Kwinholt]

You're fantastic, Karen. Well done!

[Hidden]

Hi Dave,

Since it appears you are new here, here is a link that discusses high dose thiamine (HDT/ vitamin B-1) as a possible adjunctive treatment that has helped many members of this forum. How has it helped the forum members? Here is a list of actual benefits that have been reported on this forum by members who are either testing or taking HDT :

healthunlocked.com/parkinso...

Here is a link that will answer most if not all questions you may have about HDT:

healthunlocked.com/parkinso...

Does it work for everyone? No, there are no supplements or drugs that work for everyone, but in the case of HDT it works for the majority of people who have tried it under Dr. Costantini's guidance via email for free!

If you have any questions, post them and they will be answered.

If you decide that you would like to contact Dr. Costantini regarding his HDT therapy, please use the form at this link for that purpose :

healthunlocked.com/parkinso...

Good luck!

Art

[Kwinholt]

Hi Dave, Art is right , the B1 has helped a lot of us as well . That’s always another route as well. I hope you find the relief you need. I also get Botox injections in my foot and leg for my twisting and curling muscles as well . Take care . Karen

[park_bear]

To be called a liar when you are suffering in this way is terrible thing. Doing yourself in to punish her for this abuse would also be a terrible thing. It speaks to the extremity of your desperation. The both of you need to get to a marriage counselor and have regular sessions. Are you and she willing?

[Xenos in reply to park_bear]

I got the same feeling as Parkbear, trotter72...

[JohnPepper]

Hi trotter. Don't despair! I have been doing FAST WALKING since 1994 and as a result I no longer have needed to take any Pd medication since 2002. Exercise is the ONLY PROVEN WAY to reverse the symptoms of Pd. Read more about it on my website - reverseparkinsons.net It will cost you nothing contact me and I will send you my videos and a lot of helpful information. Start living NOW!

[Connie18]

Please show this to your wife as I have only been diagnosed 6 years and have exactly the same problem and I go off really quick and and the symtoms are the same as yours and I cant breathe swallow or talk and need toilet desperately you are the only other person that!has mentioned these things. There is nothing worse than feeling like you are going to wet yourself or worse and you cant help,your self. It takes up to an hahour to kick in and if I've aten it i doesn't work at all. It's,a mystery that alhtoughni cant move I'm not ridged And my body can move if someone else does it, lots of people think I'm putting it on as it hapens so quickly and so exteme but luckily my family do,

It must be hard on your wife it will be hard on hard in her as well.