Deep Brain Stimulation: Thought about DBS... - Cure Parkinson's

Cure Parkinson's

25,511 members26,825 posts

Deep Brain Stimulation

Richter profile image
12 Replies

Thought about DBS? Please view my daughter's 7 minute video on my experience with Deep Brain Stimulation. (Spoiler: it worked!)

youtu.be/QjuoZhSv-XI

Thanks, folks.

Written by
Richter profile image
Richter
To view profiles and participate in discussions please or .
Read more about...
12 Replies
billyroca profile image
billyroca

Your father's a brave man, well done to him. thanks for making the video. It's definitely food for thought.

Nitro53 profile image
Nitro53

I echo billyroca Good for him. I did notice though that he still had tremor and also his head looked like they did more than just drill two quarter sized holes. Could you explain. I’m very interested. Thank you

Astra7 profile image
Astra7

Very positive. So glad it worked so well.

park_bear profile image
park_bear

A good education on the effectiveness of DBS. Nicely done!

rebtar profile image
rebtar

Thanks! I'm nearby and also go to UCSF for treatment. It's good to see positive results from the DBS option. I'm not there yet, but in the future maybe. Congratulations on your good results and perseverance.

Niggs profile image
Niggs

So very pleased for you friend, thank you for sharing.

MissionTBC profile image
MissionTBC

Wonderful film - very inspiring. Lots to learn about DBS.

wobblykev profile image
wobblykev

looks very positive thank you for sharing I am just the process of being considered for DBS and in all honesty it scares me to hell (drilling my BRAIN).

So video of brave people like your dad helps, could i ask how is he doing now.

Jlloy5 profile image
Jlloy5

Wow. Thanks for sharing.

jeffmayer profile image
jeffmayer

absolutely incredible been thinking about it myself think you have convinced me all the best stay welli do cycle myself so I know the difference it can make

Richter profile image
Richter

Mnay thanks for positive comments. But apparently I did not make this clear: my daughter made the film, I am the protagonist. My father died from a PD-related fall in 2015, age 88. Also I must state that I am no doctor and that any look at a DBS for PD site will remind you that we are all different. So don't even begin to think that your experience will necessarily resemble mine.

DBS involves drilling those famous holes in the head and then inserting fancy little electrodes or probes or whatever they are, which simulate the brain to produce dopamine. We also need batteries to power the device, which can be compared to a heart pacemaker. These are inserted under the skin of the chest.

Please don't ask me details of the device or the process. It's all over the internet. You could start by looking at the Deep Brain Stimulation discussions right here in Health Unlocked.

Still, comrades, DBS has been just wonderful for me.

--Richter

PS: Here is my DBS timeline:

RICHTER'S 2017 DBS TIMELINE

Sept. 26 DBS fitnesss tests (3)

Oct. 4 Pre-op w/ NP Monica

Oct. 5 brain operation: hosp. stay 2 days

Oct. 7 Home

Oct. 26 Battery Implant

Oct. 13 1st staples removal (Ow!)

Nov. 3 Second staples removal; initial generator adjustment

Nov. 29 Clinic postop.

Dec. 22 voltage check 1.9/ 4.1 Blew my mind!

Sleeplessparki profile image
Sleeplessparki

I had mine done on june 11th..... nothing short of a miracle!!

You may also like...

Quercetin Found to Stimulate New Brain Cells

https://articles.mercola.com/sites/articles/archive/2021/02/25/quercetin-found-to-stimulate-new-brai

Vibrotactile stimulation prototyping (Tass gloves)

pattern of on and off burst stimulation at the fingertips. Dr Tass has experimented with several...

Brain

My brain feels as if it is clenching. It only lasts a few seconds The after effects seem to linger....

Experiences with bHaptics TactGloves for Tass vCR stimulation paradigm?

-- with what stimulation algorithm, intensity and routine? And what are your experiences on...

Who is using Vestibular Stimulation?

device? Here are the videos House2 shared: https://youtu.be/qj6u--lfeGo...