From comment on Facebook group Parkinson’s thiamine hcl, January 3, 2019.
Member commenting is Margie Pyle.
“I started b1 Thiamine hcl the middle to end of November. I’m taking 2 500mg capsules with breakfast and again 2 with lunch. I must say I don’t have PD but do have parkinsonism. I don’t have tremors but have so many other symptoms of PD. My constipation is gone and I’m starting to notice smells. On New Year’s Eve I slept on my stomach for the first time in at least 4 years. I wasn’t able to roll over during those four years. Now I can. My son was telling me some riddles last weekend. I got all but one correct. One month ago I would not have been able to answer them. I was having Chorea movements in my right foot. I am taking Agrezza for it but I feel it has improved since starting HDT. Unfortunately I’m still fatigued everyday. I’m taking Provigil for the fatigue. I’m taking it off label. It’s helping some but not as much as I would like. I don’t think I’ve been on HDT long enough to help the fatigue. I use a walker. I think my walking has improved also. The brain fog has definitely cleared some. Today I noticed my eyesight seemed clearer. I’m not actually looking for specific improvements. I’m just suddenly surprised when I realize I’m doing something better or I can do something again. I am just amazed at the quick improvements I’m seeing. Symptoms for me started in 2013 and I was diagnosed in 2014 with the parkinsonism. I hope this helps.”