Parkinson’s : I I found out that I had... - Parkinson's Movement

Parkinson's Movement
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Parkinson’s

starlove1995
starlove1995
30 Replies

I I found out that I had Parkinson’s when I was a child I was in and out of hospitals doing brain scans as I got older my memory has been bad and I’ve been dealing with depression and anxiety does anyone know if it’s cause of it? Please help me

30 Replies
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Lucal

from what I have read, depression seems to be a common symptom, but also to a large extent treatable.as well as anxiety. What meds are you on ?

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starlove1995
starlove1995
in reply to Lucal

Currently im not on any meds right now what about the memory part?

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Lucal
Lucal
in reply to starlove1995

More probably is related to anxiety. When was you diagnosed ?

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starlove1995
starlove1995
in reply to Lucal

I was diagnosed with it at the age of 13

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starlove1995

My dad has it too he don’t really talk to me about it

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MBAnderson

Pretty common that some family members clam up.

But, you found this forum. It will help a lot, plus you'll get more health information than from your father.

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starlove1995

Last time I went to the hospital for the brain scan they said I want be able to drive 😩 either and I have been trying but I just have to much anxiety and thank u so much for helping me get answers

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Erniediaz1018

Yes the Parkinson's is a cause of those, depression and anxiety. Contact Dr. C at once he should be very fascinated by your situation. In a good way that is...I surely am. Sorry you got it so early.

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starlove1995

Who is Dr.c ?

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Hidden
Hidden
in reply to starlove1995

Here is information that will tell you more about Dr. Costantini, an Italian neurologist who uses high dose thiamine (HDT) as an effective adjunctive treatment for PWPs :

healthunlocked.com/parkinso...

Art

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Juliegrace

Look for a Young Onset (YOPD) support group in your area. There are some online, too. Although "young" is relative. Definitely look into thiamine and find an exercise program that you enjoy.

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2bats

The Keto Diet is good for depression, and may improve your general health enormously.

Try

for background and

for a great Keto website. Good Luck!

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PDConscience

Rather than serving as a guinea pig for the latest-greatest anti-psychotic med (or for the best bets of HU PD forum members), your best move at this point may be to locate a ‘functional/integrated medicine’ practitioner in your area.

In order to address your health issues, they will review your medical history, your diet/lifestyle, and run tests by which to correct nutrient/mineral deficiencies, balance hormones, etc., in order to target the actual cause (versus throwing a pill at current symptoms).

Practitioners near you: ifm.org/find-a-practitioner/

Top-50: draxe.com/top-50-functional...

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danfitz

These “functional/integrated medicine” practitioners pay to be trained for a whole five days in order to hang out their shingle. 😂

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PDConscience

I'm guessing that passes as 'wit' there in the tool-shed(?).

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danfitz

You guessed wrong. It is comedy. You present yourself as the “dreaded adversary of fraudsters and medical chicanery” but you are peddling medical services that can be provided by a massage therapist who ponies up the fee for a rigorous five days of training to receive their certification. Nope, it is not wit it is comedy. 😂😂😂

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PDConscience

[yawn]

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justhavefun2

That’s why it is critical to check out our provider’s credentials...all of them! I was recently referred to a pain doctor in my area who had his license revoked in two other states. On the other hand, I have an integrative medicine neurologist who has had years and years of training and a good track record. You just have to be careful who you see...

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WinnieThePoo

I only have recent experience of these practitioners (today on Kia17's post regarding probiotics). It doesn't inspire me with confidence.

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Redginger

I totally agree with PDConscience! your symptoms could even be fueled by living in a water damaged building(s) when you were a child.

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starlove1995

What ?i don’t have time for negativity

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Redginger

It is indeed difficult to communicate without being able to talk face to face. I meant this not as negativity at all, but as a tip to try to help you search out reasons for illness. My husband is suffering from PD because of living in water damaged buildings. It is real and many people suffer with it. All of us in our family suffer from it, but in different ways. I truly sympathize with your situation.

I do not mean that I always agree with PDC, but in this instance, I agree that finding a functional medicine doctor might prove beneficial to you, of course, they are not all "created equal" so to speak. Do you understand any better what I'm trying to say?

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HugoRipanykhazov

You have our deepest sympathies but there is something I don't understand: Who diagnosed you all those years ago? A GP? What course of action did they recommend and what have you been doing for treatment in the interim? What country are you in and do you have some sort of national health service?

We kinda need to know these things because the drug names change for different countries.

Have your originally diagnosed symptoms been getting worse for the last ten years, because you don't seem to be under any sort of medical regimen? Or are you in some 'redneck' US state where medical treatment / health insurance is discouraged?

I can tell you that the standard treatment for Parkinsons is a drug called Sinemet (co-careldopa), three times a day but if you haven't got a doctor or health insurance, I can't imagine where you would get it, besides online pharmacies in places like India. This is often prescribed with selegiline (Eldepryl tablets and syrup). And possibly Nortriptyline for depression but I wouldn't imagine anyone here would know if these 'standard' treatments would be appropriate for extremely-early-onset PD which has been progressing (?) for a decade!

If you really haven't got a doctor, lots of people on this forum email that doctor in Italy and use some alternative treatment involving a vitamin called Thiamine that (lots of those users report) makes all the symptoms go away. So if that works for you (and you don't mention what any of your symptoms are?) pretty soon you shouldn't be bothered by the depression without any symptoms to worry about?

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Cycling8

I'm so sorry that you have PD at such a young age. Michael J. Fox, the actor, got it at age 29. He is now 57 and still going strong.

If you can find a local neurologist that is also a "Movement Disorder Specialist" he/she should be able to help you. I was diagnosed with PD 2 1/2 years ago and have both depression and anxiety; both are treatable. The medication I am taking may not be appropriate for you so you should contact your own doctor. I am also in contact with Dr. Constantini by email and recently started taking his High Dose Thiamine therapy.

"Every Victory Counts" (How to live well with Parkinson's) manual by the Davis Phinney Foundation has in depth information about exercise, nutrition, emotional health, medication, therapies and more. It is free and also inspirational. You can get it as an eBook or as paper manual. Use this link:

davisphinneyfoundation.org/...

Good luck!

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Hidden
Hidden

13 is exceptionally young, and probably has a genetic component. There may be info here that would be helpful: parkinson.org/Understanding...

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SilentEchoes

Functional medicine has a lot to offer but you need to screen carefully for the most qualified practitioners. Many are DCs (chiropractors) and some are MDs. They will help get to the root of the problem and offer therapy that is tailored to your specific needs.

You may have been misdiagnosed. A PD diagnosis is sometimes a default for when a doctor doesn't know what's wrong.

There are a lot of causes for PD, most are environmental and can include mold, fungus, pestcides, household chemicals, solvents, etc. Which we are exposed to every day.

Vulnerability to environmental toxic exposure(s) is genetic. The saying goes: Genes load the gun, exposure pulls the trigger. Without pulling the trigger we wouldn't get sick. This means there is a lot of opportunity to change our lifestyle to improve or recover our health.

It sounds like you haven't had the support you need from your family. I experienced this too at first and it really hurt me. They're scared for you and for themselves. And sometimes they can't face it, especially when it's a parent. My mom was devastated at first but then she started opening up about her PD which she never did before.

I had genetic testing at the University of Minnesota and I don't carry Mendelian Parkinson's genes. I think it would be helpful for you to know your status. If you do have a the familial form, it can still be treated and not just with levodopa.

Best Wishes

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Jumex2017

Surely bad memory doesnt mean Parkinsons, does it?

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