More on the VieLght/ sense of smell c... - Parkinson's Movement

Parkinson's Movement

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More on the VieLght/ sense of smell came back

rhyspeace12
rhyspeace12

I have a long running post on the effects of the VieLight on my husband. I can no longer find the comments that come to me to respond to.Connie (I believe) asked if the VieLight has any effect on the sense of smell. My husbands sense of smell did come back. I didn't think to attribute it to the Vie Light. It was just a curious thing that seemed to have happened. Now I believe that is why he can smell again. It's not as good as when he was young, but he can smell, even things like wine.

He has kept the good results he has had in the last 2 years with the VieLight. He doesn't have cognitive loss.

16 Replies
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good for your husband , however I hadn't noticed any benefit from it and therefore returned the device. Is your husband also taking mannitol? Many people using mannitol have reported their improvement in the sense of smell

He isn't taking mannitol. Nothing changed at all other than his sense of smell came back. It isn't back to fully normal, but he can smell my scented candles, wine, things like that. He has been using the VieLight 810 for around 2 years now. It helped with other problems within few weeks, but he didn't have sense of smell until just a few months ago.

hanifag
hanifag in reply to iqbaliqbal

HI iqbaliqbal

yes I have noticed strong sense of smell coming back everything which stinks I can smell it

the other day I had very strong smell of food I have been using Vielight therapy for 6 months close to 7 months as for your earlier post I have not ordered it yet

planning to order this week please be specific how did it help you

I am also getting evaluated for FUS which is a trail going on at Stanford

Friday I had 2 hour session with 3 neuropsychiatry they told me I am a good candidate

for DBS or FUS I am weighing all my options now I was bending towards stem cell too

talking to a source in Malaysia I biggest hurdle is when the meds wears off and it takes time for the meds to kick in I really paralyses me and my foot dystonia is getting worst in the morning I would like to thank you for all the research you do

rhyspeace12
rhyspeace12 in reply to hanifag

My husband was helped a great deal with wearing off by starting Rytary. It is a sustained release capsule. It is different from Sinemet ER.

iqbaliqbal
iqbaliqbal in reply to hanifag

I didn't understand. Are you saying that you have purchased vielight and it has helped you?

hanifag
hanifag in reply to iqbaliqbal

Yes

iqbaliqbal
iqbaliqbal in reply to hanifag

I didn't feel any difference after using vielight for 3 months and returned it to the vendor. If it's working for you, keep using it. Try to get enrolled in FUS trial as well as it less invasive as compared to DBS. BTW what's your age and when were you diagnosed

I write these posts on behalf of my husband. He was diagnosed about 7 years ago and he is 79 now. He has been using the VieLight for about 2 years .When he went off it for about a week i could tell.

Hi Rhyspeace12. I have been following your posts and would like to thank you for taking the time and effort to document how vielight810 has helped your husband and changed your lives.

After a respiratory infection, my husband lost his sense of smell about 8 years ago. We do not know the cause actually. He has also been troubled by frequent night urination 6-8 times a night. After seeing a urologist and determining that nothing was wrong, I purchased the Vielight neuro which consists of both the gamma and alpha. I was determined to use the gamma for the 6 month period.

1. After 4 weeks he was waking up 3-4 times to pee at night.

2. He is having better quality sleep and sleeps earlier

3. At a sushi bar he could suddenly smell the meat being seared by the torch

It has been 12 weeks and I am hoping that the gamma can restore fully his sense of smell and arrests and rectify whatever is not right.

I am amazed that you are getting good results with the 810. We are using primarily the gamma 6 times a week resting one day.

Hidden
Hidden in reply to Millbrook

Millbrook,

Since the urologist has determined that there is no apparent problem such as BPH which can cause the nocturia that your husband has, it might be worth trying the spice, nutmeg which helps some people with nocturia. A dose of 1/8 ~ 1/4 th of a USA measuring teaspoon as used by bakers is popular.

Art

Millbrook
Millbrook in reply to Hidden

Thanks Art. Will try it. Do you take this at bedtime or in the morning?

Hidden
Hidden in reply to Millbrook

One other that is helpful is pumpkin seed oil :

ncbi.nlm.nih.gov/pmc/articl...

Millbrook
Millbrook in reply to Hidden

Thank you. Will order it

My husband still uses the vielight 810. His main problem now is having his dopamine wear off and he gets horrible stomach aches. They can't be controlled with pain meds. We are trying real hard to keep his Rytary on time, every 3 1/2 hours and it has helped a lot. Also, he has started Remeron to help with sleep and as an antidepressant; started about a week ago. That will kick in over time and we will see how that goes. He gets the stomach aches, then a panic attack that leads to psychosis. So far, no new psychosis using the Remeron.

One more thing, our friend stopped being able to smell (he doesn't have Parkinson's). His doctor gave him some sort of treatment that worked. Iit was due, I believe to polyps in his nose. I can find out more about that if the VieLight doesn't improve your husband's sense of smell. I mention this because you mentioned your husbands' problem starting with a respiratory problem.

Thank you for your feedback. My husband had his nose checked and everything was ok. He lost his sense of smell after using nasal sprays. I do not know if there is a deeper underlying cause so we are using vielight gamma for restoring his smell and nocturia

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