Thiamine and dyskinesia

[Trixiedee]

I have been taking Sinemet for 8 years and have terrible dyskinesia on the lowest dose. I’ve ordered injectable thiamine but can’t see anything about it stopping dyskinesia.

[Hidden]

Some members have reported improvement in dyskinesia. Erniediaz is the last member who I remember mentioning it and his declined significantly in a relatively short time, but he has so far responded relatively quickly to HDT as in just hours after his first dose, he mentioned that he could feel a difference that he equated with his first oral dose of HDT and this would not be a very common occurrence with oral dosing, only with the IM injections which have sometimes shown a response within an hour or so . Many members have reported some response in the first week or two, but some have taken months to see positive results, so patience is an absolute must in order to give HDT a chance to do its thing.

Art

[Erniediaz1018 in reply to Hidden]

That's exactly right Art, my dyskinesia has disappeared and the past few days I've noticed my only symptoms to be a tremor on my right arm and occasionally a slight limp on my right leg. But I've noticed remarkable improvements.

[Hidden in reply to Erniediaz1018]

That is really great to hear, Ernie and I love that you are continuing to improve! I know everyone is different and react differently to HDT, but you have continuously showed improvement on HDT from your first day of oral dosing with the pure powder form if my memory serves me correctly. Are you still using the pure powder form or are you now using the pills that also contain magnesium or some combination of the two? I remember you ordered the pills for your trip, but I thought you had left them with a friend of yours who has PD? How long have you been on HDT now?

Thank you for posting that, Ernie!

Art

[Erniediaz1018 in reply to Hidden]

Still using pure powder. I'd like to order the injectables but waiting to see best price and purity. Started taking HDT 8/19/2018

[umarsadi2001 in reply to Erniediaz1018]

What is her? Pls.n were can I get it ?

[umarsadi2001 in reply to Erniediaz1018]

Hdt?

[Erniediaz1018 in reply to umarsadi2001]

Hdt=High dose thiamine also known as B1

[umarsadi2001 in reply to Erniediaz1018]

Thx ernie. I got it.

[TL500 in reply to Erniediaz1018]

Can you tell us the brand and type of powder B1 please?

How much do you take? Thanks.

[Erniediaz1018 in reply to TL500]

I take 4 grams a day. I'm purchasing bulk powder from Blackburn and capsulating. This is what I'm using

rover.ebay.com/rover/0/0/0?...

[TL500 in reply to Erniediaz1018]

Thanks Ernie. it seems the link is for capsules, not powder?

How many capsules (your powder version) do you take?

which one have you taken that gave you good effect? Thanks.

[sydneyruby in reply to Hidden]

what is hdt?

[Hidden in reply to sydneyruby]

sydneyruby,

HDT = high dose thiamine. Thiamine is vitamin B-1. It is used as a protocol developed by an Italian neurologist named Dr. Costantini who has is practice in Viterbo Italy. Many of the forum members have found very significant improvements in their PD symptoms using HDT. Here is a link to a page that will tell you all about HDT, Dr. Costantini, dosing ideas, a list of 80 symptom improvements reported by members on this forum as well as where and what to get.

healthunlocked.com/parkinso...

Art

[ktbate]

Are you against having DBS? I am 8 yrs out and have dyskinesia from carbi/levo also.

[Trixiedee in reply to ktbate]

I’d rather take thiamine than have DBS but it’s an option if thiamine doesn’t work.

[sydneyruby in reply to ktbate]

what is dbs?

[Trixiedee in reply to sydneyruby]

Deep brain stimulation

[sudoku123]

Amantadine will help.